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HELLO I am new and SMELL...................   Topic List   < Prev Topic  |  Next Topic >
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#4102 From: "jacnbailcathouse" <jacnbailcathouse@...>
Date: Sun Jul 5, 2009 9:58 pm
Subject: HELLO I am new and SMELL................... 		jacnbailcath...
Offline Offline
Send Email Send Email
  
LOL..but really, the sudden horrid smell I have been smelling since i got sick 2

months ago is irritating to say the least.

I got sick 2 mos ago with some kind of mutant flu or something, I was with

SINUS, and bronchial, fever and on ANTI-B 3 different kinds, and still have a

cough somewhat...NOW....after about the first few days of the illness i started

smelling BLEACH, then AMMONIA, and i was looking all over trying to find the

source of the smell, having someone come over to see if they could smell

it...NOPE just a clean house smell...I smelled it at the store, in my house but

not outside.

I was going mad..

Then I started smelling something like a DIRTY WET ASHTRAY/cigarette smoke

smell....I do not smoke, nor do I have anyone or anything in my home that would

smell like that....AHHHHHHHHHHHHHHHH

now I get worried I am smelling smoke running about looking and checking plugs,

cords, appliances, the breaker box, then it goes from smoke smell to wet

cigarette ashtray smell..yuck!

I do not smell it outside however....sometimes I seem to think I taste it

but????,,,,I had a break from this for about a week when I had gotten better,

then a few days ago it started again and have pot nasal drip....I am thinkinh

maybe I have a hidden sinus infection or something, but these horrible

smells.....just gross...


Reply | Forward
#4103 From: "jacnbailcathouse" <jacnbailcathouse@...>
Date: Tue Jul 7, 2009 1:30 am
Subject: Re: HELLO I am new and SMELL................... 		jacnbailcath...
Offline Offline
Send Email Send Email
  
Hi Does anyone come to this group?...Will be kinda hard to post to myself and

get a different point of view...HMMMM?????--- In dysosmia@yahoogroups.com,

"jacnbailcathouse" <jacnbailcathouse@...> wrote:

>

> LOL..but really, the sudden horrid smell I have been smelling since i got sick

2 months ago is irritating to say the least.

> I got sick 2 mos ago with some kind of mutant flu or something, I was with

SINUS, and bronchial, fever and on ANTI-B 3 different kinds, and still have a

cough somewhat...NOW....after about the first few days of the illness i started

smelling BLEACH, then AMMONIA, and i was looking all over trying to find the

source of the smell, having someone come over to see if they could smell

it...NOPE just a clean house smell...I smelled it at the store, in my house but

not outside.

> I was going mad..

> Then I started smelling something like a DIRTY WET ASHTRAY/cigarette smoke

smell....I do not smoke, nor do I have anyone or anything in my home that would

smell like that....AHHHHHHHHHHHHHHHH

> now I get worried I am smelling smoke running about looking and checking

plugs, cords, appliances, the breaker box, then it goes from smoke smell to wet

cigarette ashtray smell..yuck!

> I do not smell it outside however....sometimes I seem to think I taste it

but????,,,,I had a break from this for about a week when I had gotten better,

then a few days ago it started again and have pot nasal drip....I am thinkinh

maybe I have a hidden sinus infection or something, but these horrible

smells.....just gross...

>


Reply | Forward
#4110 From: DANNA FRANKS <dannafranks@...>
Date: Tue Jul 7, 2009 4:13 pm
Subject: Re: Re: HELLO I am new and SMELL................... 		dannafranks
Offline Offline
Send Email Send Email
 
Believe me – this group is awesome – I think you may have posted while everyone was on holiday or vacation.  I lost my smell over a year and a half ago and this group is the reason for my sanity!  It helped me to realize that I was not going crazy – like I thought I was!

I lived with the horrible distorted smells for a very long time, due to losing my sense of smell.  I used Zicam gel swabs during and after suffering from  acute bronchitis.  

I still, after a year and a half – have some things that don’t smell right, but mostly I just don’t smell.  The distorted stage is the worst!!  You literally think you are losing your mind.  

But, nothing I took or was treated with did anything for my symptoms.  I’m sorry to say – but you may have to endure the period with not much relief and let it run it’s course.

Good Luck and keep posting!  I promise people are listening and will be your support!

Danna


On 7/6/09 6:30 PM, "jacnbailcathouse" <jacnbailcathouse@...> wrote:


  

  

Hi Does anyone come to this group?...Will be kinda hard to post to myself and get a different point of view...HMMMM?????--- In dysosmia@yahoogroups.com <mailto:dysosmia%40yahoogroups.com> , "jacnbailcathouse" <jacnbailcathouse@...> wrote:
>
> LOL..but really, the sudden horrid smell I have been smelling since i got sick 2 months ago is irritating to say the least.
> I got sick 2 mos ago with some kind of mutant flu or something, I was with SINUS, and bronchial, fever and on ANTI-B 3 different kinds, and still have a cough somewhat...NOW....after about the first few days of the illness i started smelling BLEACH, then AMMONIA, and i was looking all over trying to find the source of the smell, having someone come over to see if they could smell it...NOPE just a clean house smell...I smelled it at the store, in my house but not outside.
> I was going mad..
> Then I started smelling something like a DIRTY WET ASHTRAY/cigarette smoke smell....I do not smoke, nor do I have anyone or anything in my home that would smell like that....AHHHHHHHHHHHHHHHH
> now I get worried I am smelling smoke running about looking and checking plugs, cords, appliances, the breaker box, then it goes from smoke smell to wet cigarette ashtray smell..yuck!
> I do not smell it outside however....sometimes I seem to think I taste it but????,,,,I had a break from this for about a week when I had gotten better, then a few days ago it started again and have pot nasal drip....I am thinkinh maybe I have a hidden sinus infection or something, but these horrible smells.....just gross...
>

  
    



Reply | Forward
#4111 From: Pat <patandtaz2@...>
Date: Tue Jul 7, 2009 6:49 pm
Subject: Re: Re: HELLO I am new and SMELL................... 		patandtaz2
Offline Offline
Send Email Send Email
 
sometimes it seems NO ONE is listening- then we all come out of the woodwork like termites! Welcome to this group- it might not solve your problems, but there is a great deal we use to support one another. I hope you'll keep posting, and get some solid information.If you read some of the older posts, that mite help also. Again,welcome
 

 

 

 

 

     

 

 

 "Trying to forget someone you love is like trying to remember someone you never met"-Pat                                            

  



From: jacnbailcathouse <jacnbailcathouse@...>
To: dysosmia@yahoogroups.com
Sent: Monday, July 6, 2009 9:30:24 PM
Subject: [dysosmia] Re: HELLO I am new and SMELL...................

Hi Does anyone come to this group?...Will be kinda hard to post to myself and get a different point of view...HMMMM? ????--- In dysosmia@yahoogroup s.com, "jacnbailcathouse" <jacnbailcathouse@ ...> wrote:
>
> LOL..but really, the sudden horrid smell I have been smelling since i got sick 2 months ago is irritating to say the least.
> I got sick 2 mos ago with some kind of mutant flu or something, I was with SINUS, and bronchial, fever and on ANTI-B 3 different kinds, and still have a cough somewhat...NOW. ...after about the first few days of the illness i started smelling BLEACH, then AMMONIA, and i was looking all over trying to find the source of the smell, having someone come over to see if they could smell it...NOPE just a clean house smell...I smelled it at the store, in my house but not outside.
> I was going mad..
> Then I started smelling something like a DIRTY WET ASHTRAY/cigarette smoke smell....I do not smoke, nor do I have anyone or anything in my home that would smell like that....AHHHHHHHHHH HHHHHH
> now I get worried I am smelling smoke running about looking and checking plugs, cords, appliances, the breaker box, then it goes from smoke smell to wet cigarette ashtray smell..yuck!
> I do not smell it outside however....sometime s I seem to think I taste it but????,,,,I had a break from this for about a week when I had gotten better, then a few days ago it started again and have pot nasal drip....I am thinkinh maybe I have a hidden sinus infection or something, but these horrible smells.....just gross...
>



Reply | Forward
#4104 From: gafoodies706@...
Date: Mon Jul 6, 2009 9:41 pm
Subject: Re: Re: HELLO I am new and SMELL................... 		gafoodies
Offline Offline
Send Email Send Email
 
It has been 2 1/2 years for me.  Head trauma not illness but those smells sound about right.  I do not remember when they finally stopped.  They will stop soon. It is horrible when you are going through it though.
Good luck.
 
In a message dated 7/6/2009 9:31:04 P.M. Eastern Daylight Time, jacnbailcathouse@... writes:


Hi Does anyone come to this group?...Will be kinda hard to post to myself and get a different point of view...HMMMM?????--- In dysosmia@yahoogroups.com, "jacnbailcathouse" <jacnbailcathouse@...> wrote:
>
> LOL..but really, the sudden horrid smell I have been smelling since i got sick 2 months ago is irritating to say the least.
> I got sick 2 mos ago with some kind of mutant flu or something, I was with SINUS, and bronchial, fever and on ANTI-B 3 different kinds, and still have a cough somewhat...NOW....after about the first few days of the illness i started smelling BLEACH, then AMMONIA, and i was looking all over trying to find the source of the smell, having someone come over to see if they could smell it...NOPE just a clean house smell...I smelled it at the store, in my house but not outside.
> I was going mad..
> Then I started smelling something like a DIRTY WET ASHTRAY/cigarette smoke smell....I do not smoke, nor do I have anyone or anything in my home that would smell like that....AHHHHHHHHHHHHHHHH
> now I get worried I am smelling smoke running about looking and checking plugs, cords, appliances, the breaker box, then it goes from smoke smell to wet cigarette ashtray smell..yuck!
> I do not smell it outside however....sometimes I seem to think I taste it but????,,,,I had a break from this for about a week when I had gotten better, then a few days ago it started again and have pot nasal drip....I am thinkinh maybe I have a hidden sinus infection or something, but these horrible smells.....just gross...
>

Reply | Forward
#4105 From: jeanjeannie@...
Date: Tue Jul 7, 2009 4:18 am
Subject: Re: Re: HELLO I am new and SMELL................... 		jebaynnie
Offline Offline
Send Email Send Email
 

Sounds like smell distortion to me - which onset can be due to varied situations.  One of which is sinus infection.  I stumbled upon this Yahoo group, which has been very helpful for me.  Mick's page is also great page for information:

 

http://personal.ecu.edu/wuenschk/ViralMick.htm

 

I hope this is helpful. 

 


----- Original Message -----
From: gafoodies706@...
To: dysosmia@yahoogroups.com
Sent: Monday, July 6, 2009 7:41:54 PM GMT -07:00 US/Canada Mountain
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL...................



It has been 2 1/2 years for me.  Head trauma not illness but those smells sound about right.  I do not remember when they finally stopped.  They will stop soon. It is horrible when you are going through it though.
Good luck.
 
In a message dated 7/6/2009 9:31:04 P.M. Eastern Daylight Time, jacnbailcathouse@... writes:


Hi Does anyone come to this group?...Will be kinda hard to post to myself and get a different point of view...HMMMM?????--- In dysosmia@yahoogroups.com, "jacnbailcathouse" <jacnbailcathouse@...> wrote:
>
> LOL..but really, the sudden horrid smell I have been smelling since i got sick 2 months ago is irritating to say the least.
> I got sick 2 mos ago with some kind of mutant flu or something, I was with SINUS, and bronchial, fever and on ANTI-B 3 different kinds, and still have a cough somewhat...NOW....after about the first few days of the illness i started smelling BLEACH, then AMMONIA, and i was looking all over trying to find the source of the smell, having someone come over to see if they could smell it...NOPE just a clean house smell...I smelled it at the store, in my house but not outside.
> I was going mad..
> Then I started smelling something like a DIRTY WET ASHTRAY/cigarette smoke smell....I do not smoke, nor do I have anyone or anything in my home that would smell like that....AHHHHHHHHHHHHHHHH
> now I get worried I am smelling smoke running about looking and checking plugs, cords, appliances, the breaker box, then it goes from smoke smell to wet cigarette ashtray smell..yuck!
> I do not smell it outside however....sometimes I seem to think I taste it but????,,,,I had a break from this for about a week when I had gotten better, then a few days ago it started again and have pot nasal drip....I am thinkinh maybe I have a hidden sinus infection or something, but these horrible smells.....just gross...
>


Reply | Forward
#4106 From: "Felicity Bedggood" <fjb01@...>
Date: Tue Jul 7, 2009 9:57 am
Subject: Re: Re: HELLO I am new and SMELL................... 		fjb01@...
Send Email Send Email
 

Hi, I have suffered from anosmia for over 9 years now - occasionally alleviated with prescriptions of Prednisolone, typically 30mg for 10 days, but the last two didn't help at all.  I had nasal polyps associated with the loss of taste and smell and late onset asthma diagnosed in 2001.  Two sinus operations have not helped much.   For myself, I think it must be easier to cope with no taste or smell than with distortions.   I can appreciate sweet and sour and I try and get some pleasure from the appearance of food and the memories of how I used to enjoy them - especially chocolate.   Actually, I found the depression when the steroid effect wore off harder to bear than the affliction.   My asthma has been particularly bad over the last few months and I am beginning to find my everyday activities restricted by breathlessness.   I have just started seeing a respiratory specialist and hope things will start to improve but no sign yet.   Love to you all, Felicity   PS I read all the postings with interest even if I don't contribute often
----- Original Message -----
Sent: Tuesday, July 07, 2009 5:18 AM
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL...................

Sounds like smell distortion to me - which onset can be due to varied situations.  One of which is sinus infection.  I stumbled upon this Yahoo group, which has been very helpful for me.  Mick's page is also great page for information:

 

http://personal.ecu.edu/wuenschk/ViralMick.htm

 

I hope this is helpful. 

 


----- Original Message -----
From: gafoodies706@aol.com
To: dysosmia@yahoogroups.com
Sent: Monday, July 6, 2009 7:41:54 PM GMT -07:00 US/Canada Mountain
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL...................



It has been 2 1/2 years for me.  Head trauma not illness but those smells sound about right.  I do not remember when they finally stopped.  They will stop soon. It is horrible when you are going through it though.
Good luck.
 
In a message dated 7/6/2009 9:31:04 P.M. Eastern Daylight Time, jacnbailcathouse@yahoo.com writes:


Hi Does anyone come to this group?...Will be kinda hard to post to myself and get a different point of view...HMMMM?????--- In dysosmia@yahoogroups.com, "jacnbailcathouse" <jacnbailcathouse@...> wrote:
>
> LOL..but really, the sudden horrid smell I have been smelling since i got sick 2 months ago is irritating to say the least.
> I got sick 2 mos ago with some kind of mutant flu or something, I was with SINUS, and bronchial, fever and on ANTI-B 3 different kinds, and still have a cough somewhat...NOW....after about the first few days of the illness i started smelling BLEACH, then AMMONIA, and i was looking all over trying to find the source of the smell, having someone come over to see if they could smell it...NOPE just a clean house smell...I smelled it at the store, in my house but not outside.
> I was going mad..
> Then I started smelling something like a DIRTY WET ASHTRAY/cigarette smoke smell....I do not smoke, nor do I have anyone or anything in my home that would smell like that....AHHHHHHHHHHHHHHHH
> now I get worried I am smelling smoke running about looking and checking plugs, cords, appliances, the breaker box, then it goes from smoke smell to wet cigarette ashtray smell..yuck!
> I do not smell it outside however....sometimes I seem to think I taste it but????,,,,I had a break from this for about a week when I had gotten better, then a few days ago it started again and have pot nasal drip....I am thinkinh maybe I have a hidden sinus infection or something, but these horrible smells.....just gross...
>


Reply | Forward
#4113 From: "Wuensch, Karl L" <WuenschK@...>
Date: Tue Jul 7, 2009 10:39 pm
Subject: Samters 		klwuensch
Offline Offline
Send Email Send Email
 

            The combination of anosmia (with polyps) and asthma suggests that Samters Triad is a possibility.  Have your docs mentioned that?

 

Cheers,

 

Karl W.

From: dysosmia@yahoogroups.com [mailto:dysosmia@yahoogroups.com] On Behalf Of Felicity Bedggood
Sent: Tuesday, July 07, 2009 5:57 AM
To: dysosmia@yahoogroups.com
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL...................

 




Hi, I have suffered from anosmia for over 9 years now - occasionally alleviated with prescriptions of Prednisolone, typically 30mg for 10 days, but the last two didn't help at all.  I had nasal polyps associated with the loss of taste and smell and late onset asthma diagnosed in 2001.  Two sinus operations have not helped much.   For myself, I think it must be easier to cope with no taste or smell than with distortions.   I can appreciate sweet and sour and I try and get some pleasure from the appearance of food and the memories of how I used to enjoy them - especially chocolate.   Actually, I found the depression when the steroid effect wore off harder to bear than the affliction.   My asthma has been particularly bad over the last few months and I am beginning to find my everyday activities restricted by breathlessness.   I have just started seeing a respiratory specialist and hope things will start to improve but no sign yet.   Love to you all, Felicity   PS I read all the postings with interest even if I don't contribute often

----- Original Message -----

Sent: Tuesday, July 07, 2009 5:18 AM

Subject: Re: [dysosmia] Re: HELLO I am new and SMELL...................

 

Sounds like smell distortion to me - which onset can be due to varied situations.  One of which is sinus infection.  I stumbled upon this Yahoo group, which has been very helpful for me.  Mick's page is also great page for information:

 

http://personal.ecu.edu/wuenschk/ViralMick.htm

 

I hope this is helpful. 

 


----- Original Message -----
From: gafoodies706@aol.com
To: dysosmia@yahoogroups.com
Sent: Monday, July 6, 2009 7:41:54 PM GMT -07:00 US/Canada Mountain
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL...................

 

It has been 2 1/2 years for me.  Head trauma not illness but those smells sound about right.  I do not remember when they finally stopped.  They will stop soon. It is horrible when you are going through it though.

Good luck.

 

In a message dated 7/6/2009 9:31:04 P.M. Eastern Daylight Time, jacnbailcathouse@yahoo.com writes:

 

Hi Does anyone come to this group?...Will be kinda hard to post to myself and get a different point of view...HMMMM?????--- In dysosmia@yahoogroups.com, "jacnbailcathouse" <jacnbailcathouse@...> wrote:
>
> LOL..but really, the sudden horrid smell I have been smelling since i got sick 2 months ago is irritating to say the least.
> I got sick 2 mos ago with some kind of mutant flu or something, I was with SINUS, and bronchial, fever and on ANTI-B 3 different kinds, and still have a cough somewhat...NOW....after about the first few days of the illness i started smelling BLEACH, then AMMONIA, and i was looking all over trying to find the source of the smell, having someone come over to see if they could smell it...NOPE just a clean house smell...I smelled it at the store, in my house but not outside.
> I was going mad..
> Then I started smelling something like a DIRTY WET ASHTRAY/cigarette smoke smell....I do not smoke, nor do I have anyone or anything in my home that would smell like that....AHHHHHHHHHHHHHHHH
> now I get worried I am smelling smoke running about looking and checking plugs, cords, appliances, the breaker box, then it goes from smoke smell to wet cigarette ashtray smell..yuck!
> I do not smell it outside however....sometimes I seem to think I taste it but????,,,,I had a break from this for about a week when I had gotten better, then a few days ago it started again and have pot nasal drip....I am thinkinh maybe I have a hidden sinus infection or something, but these horrible smells.....just gross...
>

 

Summer concert season is here! Find your favorite artists on tour at TourTracker.com.



Reply | Forward
#4114 From: Paul Collins <pcsworld2006@...>
Date: Wed Jul 8, 2009 3:43 pm
Subject: Re: Re: HELLO I am new and SMELL................... 		pcsworld2006
Offline Offline
Send Email Send Email
 
hi

there seems to be a lot of dislike for steroids as a treatment for anosmia - even on this forum!

For sure systemic (oral, injected) steroids will have prolong biological effects in addition to a possible beneficial effect on your taste and smell. The fact that it has worked though means that you have the capability to recover function. Try locally applied steroid drops (in the UK betnesol or Flixonase nasules). If these work you should be able to stay on these for life with minimum side effects (search for my previous posts for my experience with these drugs). If you cannot get these preps then you could try the sprays and with appropriate advice from your doctor consider administering them as a liquid i.e. open the bottle and drip it into the nose in the inverted head position.

good luck

paul

From: Felicity Bedggood <fjb01@...>
To: dysosmia@yahoogroups.com
Sent: Tuesday, 7 July, 2009 10:57:05
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL...................



Hi, I have suffered from anosmia for over 9 years now - occasionally alleviated with prescriptions of Prednisolone, typically 30mg for 10 days, but the last two didn't help at all.  I had nasal polyps associated with the loss of taste and smell and late onset asthma diagnosed in 2001.  Two sinus operations have not helped much.   For myself, I think it must be easier to cope with no taste or smell than with distortions.   I can appreciate sweet and sour and I try and get some pleasure from the appearance of food and the memories of how I used to enjoy them - especially chocolate.   Actually, I found the depression when the steroid effect wore off harder to bear than the affliction.   My asthma has been particularly bad over the last few months and I am beginning to find my everyday activities restricted by breathlessness.   I have just started seeing a respiratory specialist and hope things will start to improve but no sign yet.   Love to you all, Felicity   PS I read all the postings with interest even if I don't contribute often
----- Original Message -----
Sent: Tuesday, July 07, 2009 5:18 AM
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...

Sounds like smell distortion to me - which onset can be due to varied situations.  One of which is sinus infection.  I stumbled upon this Yahoo group, which has been very helpful for me.  Mick's page is also great page for information:

 

http://personal. ecu.edu/wuenschk /ViralMick. htm

 

I hope this is helpful. 

 


----- Original Message -----
From: gafoodies706@ aol.com
To: dysosmia@yahoogroup s.com
Sent: Monday, July 6, 2009 7:41:54 PM GMT -07:00 US/Canada Mountain
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...



It has been 2 1/2 years for me.  Head trauma not illness but those smells sound about right.  I do not remember when they finally stopped.  They will stop soon. It is horrible when you are going through it though.
Good luck.
 
In a message dated 7/6/2009 9:31:04 P.M. Eastern Daylight Time, jacnbailcathouse@ yahoo.com writes:


Hi Does anyone come to this group?...Will be kinda hard to post to myself and get a different point of view...HMMMM? ????--- In dysosmia@yahoogroup s.com, "jacnbailcathouse" <jacnbailcathouse@ ...> wrote:
>
> LOL..but really, the sudden horrid smell I have been smelling since i got sick 2 months ago is irritating to say the least.
> I got sick 2 mos ago with some kind of mutant flu or something, I was with SINUS, and bronchial, fever and on ANTI-B 3 different kinds, and still have a cough somewhat...NOW. ...after about the first few days of the illness i started smelling BLEACH, then AMMONIA, and i was looking all over trying to find the source of the smell, having someone come over to see if they could smell it...NOPE just a clean house smell...I smelled it at the store, in my house but not outside.
> I was going mad..
> Then I started smelling something like a DIRTY WET ASHTRAY/cigarette smoke smell....I do not smoke, nor do I have anyone or anything in my home that would smell like that....AHHHHHHHHHH HHHHHH
> now I get worried I am smelling smoke running about looking and checking plugs, cords, appliances, the breaker box, then it goes from smoke smell to wet cigarette ashtray smell..yuck!
> I do not smell it outside however....sometime s I seem to think I taste it but????,,,,I had a break from this for about a week when I had gotten better, then a few days ago it started again and have pot nasal drip....I am thinkinh maybe I have a hidden sinus infection or something, but these horrible smells.....just gross...
>



Reply | Forward
#4107 From: Robert Riddle <automan1963@...>
Date: Tue Jul 7, 2009 10:47 am
Subject: Re: Re: HELLO I am new and SMELL................... 		automan1963
Offline Offline
Send Email Send Email
 
Your story is a lot like mine. I got a sinus infection and the ability to smell went away.  I've had 2 surgerys for polyps and no help.  I've taken Prednisone twice.  Both over a week or so.  During those sessions I could taste and smell like I have never in my life.  I went to a clinic here in the US and was prescribed the drug Theophylline.  I took it for about 7 months and it didn't help.  The Dr. wanted me to come back for some more tests and increase the dosage.  He said that if this worked I would have to take it the rest of my life.  I didn't like that so i opted out.  It has been about 15 years for me.  I have given up and accept it. 
Good luck all
Robert Riddle
--- On Tue, 7/7/09, Felicity Bedggood <fjb01@...> wrote:

From: Felicity Bedggood <fjb01@...>
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL...................
To: dysosmia@yahoogroups.com
Date: Tuesday, July 7, 2009, 4:57 AM


Hi, I have suffered from anosmia for over 9 years now - occasionally alleviated with prescriptions of Prednisolone, typically 30mg for 10 days, but the last two didn't help at all.  I had nasal polyps associated with the loss of taste and smell and late onset asthma diagnosed in 2001.  Two sinus operations have not helped much.   For myself, I think it must be easier to cope with no taste or smell than with distortions.   I can appreciate sweet and sour and I try and get some pleasure from the appearance of food and the memories of how I used to enjoy them - especially chocolate.   Actually, I found the depression when the steroid effect wore off harder to bear than the affliction.   My asthma has been particularly bad over the last few months and I am beginning to find my everyday activities restricted by breathlessness.   I have just started seeing a respiratory specialist and hope things will start to improve but no sign yet.   Love to you all, Felicity   PS I read all the postings with interest even if I don't contribute often
----- Original Message -----
Sent: Tuesday, July 07, 2009 5:18 AM
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...

Sounds like smell distortion to me - which onset can be due to varied situations.  One of which is sinus infection.  I stumbled upon this Yahoo group, which has been very helpful for me.  Mick's page is also great page for information:
 
 
I hope this is helpful. 
 

----- Original Message -----
From: gafoodies706@ aol.com
To: dysosmia@yahoogroup s.com
Sent: Monday, July 6, 2009 7:41:54 PM GMT -07:00 US/Canada Mountain
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...



It has been 2 1/2 years for me.  Head trauma not illness but those smells sound about right.  I do not remember when they finally stopped.  They will stop soon. It is horrible when you are going through it though.
Good luck.
 
In a message dated 7/6/2009 9:31:04 P.M. Eastern Daylight Time, jacnbailcathouse@ yahoo.com writes:


Hi Does anyone come to this group?...Will be kinda hard to post to myself and get a different point of view...HMMMM? ????--- In dysosmia@yahoogroup s.com, "jacnbailcathouse" <jacnbailcathouse@ ...> wrote:
>
> LOL..but really, the sudden horrid smell I have been smelling since i got sick 2 months ago is irritating to say the least.
> I got sick 2 mos ago with some kind of mutant flu or something, I was with SINUS, and bronchial, fever and on ANTI-B 3 different kinds, and still have a cough somewhat...NOW. ...after about the first few days of the illness i started smelling BLEACH, then AMMONIA, and i was looking all over trying to find the source of the smell, having someone come over to see if they could smell it...NOPE just a clean house smell...I smelled it at the store, in my house but not outside.
> I was going mad..
> Then I started smelling something like a DIRTY WET ASHTRAY/cigarette smoke smell....I do not smoke, nor do I have anyone or anything in my home that would smell like that....AHHHHHHHHHH HHHHHH
> now I get worried I am smelling smoke running about looking and checking plugs, cords, appliances, the breaker box, then it goes from smoke smell to wet cigarette ashtray smell..yuck!
> I do not smell it outside however....sometime s I seem to think I taste it but????,,,,I had a break from this for about a week when I had gotten better, then a few days ago it started again and have pot nasal drip....I am thinkinh maybe I have a hidden sinus infection or something, but these horrible smells.....just gross...
>


Reply | Forward
#4108 From: Ian Donohoe <idonohoeuk@...>
Date: Tue Jul 7, 2009 11:18 am
Subject: cure 		iandon_217
Offline Offline
Send Email Send Email
 
 
I have had just the same as you. Polyps, deviated septum, allergies, late onset Asthma and even that horrible virus that killed it off for two years. I have had the lot!  The doctor said I had lost it for good.  I had completely given up hope of getting my smell and taste back until I came across this forum.  I was very very depressed.
 
NOW REMEMBER THIS...If it comes back with Prednisone then your senses are ready and able.  Prednisone reduces swelling, and when you take Prednisone then the inflamed tissue way up there in the top of your nose reduces and the smell comes back.  Stop taking the Prednisone and it swells back up again and you lose it again.  All you need to find is the key that unlocks the door for longer periods and without the risks of long term Prednisone steroid use.
I found that with this forums advice and by using Flixonase DROPS not the spray, keeps my world full of taste and smell.  Put the drops in by laying on your bed with your head back over the edge and get the flixonase to get right to the back of your nose where its obviously inflamed to the extent that you senses are blocked.  Lay there for over a minute then turn over on your front.
 
Don't forget I was without taste or smell for about 16 years!  I had given up all hope.
 
IT REALLY WORKS!!
 
Good luck.
Ian.
 


To: dysosmia@yahoogroups.com
From: automan1963@...
Date: Tue, 7 Jul 2009 03:47:45 -0700
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL...................




Your story is a lot like mine. I got a sinus infection and the ability to smell went away.  I've had 2 surgerys for polyps and no help.  I've taken Prednisone twice.  Both over a week or so.  During those sessions I could taste and smell like I have never in my life.  I went to a clinic here in the US and was prescribed the drug Theophylline.  I took it for about 7 months and it didn't help.  The Dr. wanted me to come back for some more tests and increase the dosage.  He said that if this worked I would have to take it the rest of my life.  I didn't like that so i opted out.  It has been about 15 years for me.  I have given up and accept it. 
Good luck all
Robert Riddle
--- On Tue, 7/7/09, Felicity Bedggood <fjb01@globalnet.co.uk> wrote:

From: Felicity Bedggood <fjb01@globalnet.co.uk>
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL...................
To: dysosmia@yahoogroups.com
Date: Tuesday, July 7, 2009, 4:57 AM


Hi, I have suffered from anosmia for over 9 years now - occasionally alleviated with prescriptions of Prednisolone, typically 30mg for 10 days, but the last two didn't help at all.  I had nasal polyps associated with the loss of taste and smell and late onset asthma diagnosed in 2001.  Two sinus operations have not helped much.   For myself, I think it must be easier to cope with no taste or smell than with distortions.   I can appreciate sweet and sour and I try and get some pleasure from the appearance of food and the memories of how I used to enjoy them - especially chocolate.   Actually, I found the depression when the steroid effect wore off harder to bear than the affliction.   My asthma has been particularly bad over the last few months and I am beginning to find my everyday activities restricted by breathlessness.   I have just started seeing a respiratory specialist and hope things will start to improve but no sign yet.   Love to you all, Felicity   PS I read all the postings with interest even if I don't contribute often
----- Original Message -----
Sent: Tuesday, July 07, 2009 5:18 AM
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...

Sounds like smell distortion to me - which onset can be due to varied situations.  One of which is sinus infection.  I stumbled upon this Yahoo group, which has been very helpful for me.  Mick's page is also great page for information:
 
 
I hope this is helpful. 
 

----- Original Message -----
From: gafoodies706@ aol.com
To: dysosmia@yahoogroup s.com
Sent: Monday, July 6, 2009 7:41:54 PM GMT -07:00 US/Canada Mountain
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...



It has been 2 1/2 years for me.  Head trauma not illness but those smells sound about right.  I do not remember when they finally stopped.  They will stop soon. It is horrible when you are going through it though.
Good luck.
 
In a message dated 7/6/2009 9:31:04 P.M. Eastern Daylight Time, jacnbailcathouse@ yahoo.com writes:


Hi Does anyone come to this group?...Will be kinda hard to post to myself and get a different point of view...HMMMM? ????--- In dysosmia@yahoogroup s.com, "jacnbailcathouse" <jacnbailcathouse@ ...> wrote:
>
> LOL..but really, the sudden horrid smell I have been smelling since i got sick 2 months ago is irritating to say the least.
> I got sick 2 mos ago with some kind of mutant flu or something, I was with SINUS, and bronchial, fever and on ANTI-B 3 different kinds, and still have a cough somewhat...NOW. ...after about the first few days of the illness i started smelling BLEACH, then AMMONIA, and i was looking all over trying to find the source of the smell, having someone come over to see if they could smell it...NOPE just a clean house smell...I smelled it at the store, in my house but not outside.
> I was going mad..
> Then I started smelling something like a DIRTY WET ASHTRAY/cigarette smoke smell....I do not smoke, nor do I have anyone or anything in my home that would smell like that....AHHHHHHHHHH HHHHHH
> now I get worried I am smelling smoke running about looking and checking plugs, cords, appliances, the breaker box, then it goes from smoke smell to wet cigarette ashtray smell..yuck!
> I do not smell it outside however....sometime s I seem to think I taste it but????,,,,I had a break from this for about a week when I had gotten better, then a few days ago it started again and have pot nasal drip....I am thinkinh maybe I have a hidden sinus infection or something, but these horrible smells.....just gross...
>



Upgrade to Internet Explorer 8 Optimised for MSN. Download Now

Reply | Forward
#4116 From: Paul Collins <pcsworld2006@...>
Date: Wed Jul 8, 2009 3:48 pm
Subject: Re: cure 		pcsworld2006
Offline Offline
Send Email Send Email
 
hooray

at last someone else who has something good to say about steroids!

keep up the support

regards

paul

From: Ian Donohoe <idonohoeuk@...>
To: dysosmia@yahoogroups.com
Sent: Tuesday, 7 July, 2009 12:18:55
Subject: [dysosmia] cure

 
I have had just the same as you. Polyps, deviated septum, allergies, late onset Asthma and even that horrible virus that killed it off for two years. I have had the lot!  The doctor said I had lost it for good.  I had completely given up hope of getting my smell and taste back until I came across this forum.  I was very very depressed.
 
NOW REMEMBER THIS...If it comes back with Prednisone then your senses are ready and able.  Prednisone reduces swelling, and when you take Prednisone then the inflamed tissue way up there in the top of your nose reduces and the smell comes back.  Stop taking the Prednisone and it swells back up again and you lose it again.  All you need to find is the key that unlocks the door for longer periods and without the risks of long term Prednisone steroid use.
I found that with this forums advice and by using Flixonase DROPS not the spray, keeps my world full of taste and smell.  Put the drops in by laying on your bed with your head back over the edge and get the flixonase to get right to the back of your nose where its obviously inflamed to the extent that you senses are blocked.  Lay there for over a minute then turn over on your front.
 
Don't forget I was without taste or smell for about 16 years!  I had given up all hope.
 
IT REALLY WORKS!!
 
Good luck.
Ian.
 


To: dysosmia@yahoogroup s.com
From: automan1963@ yahoo.com
Date: Tue, 7 Jul 2009 03:47:45 -0700
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...




Your story is a lot like mine. I got a sinus infection and the ability to smell went away.  I've had 2 surgerys for polyps and no help.  I've taken Prednisone twice.  Both over a week or so.  During those sessions I could taste and smell like I have never in my life.  I went to a clinic here in the US and was prescribed the drug Theophylline.  I took it for about 7 months and it didn't help.  The Dr. wanted me to come back for some more tests and increase the dosage.  He said that if this worked I would have to take it the rest of my life.  I didn't like that so i opted out.  It has been about 15 years for me.  I have given up and accept it. 
Good luck all
Robert Riddle
--- On Tue, 7/7/09, Felicity Bedggood <fjb01@globalnet. co.uk> wrote:

From: Felicity Bedggood <fjb01@globalnet. co.uk>
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...
To: dysosmia@yahoogroup s.com
Date: Tuesday, July 7, 2009, 4:57 AM


Hi, I have suffered from anosmia for over 9 years now - occasionally alleviated with prescriptions of Prednisolone, typically 30mg for 10 days, but the last two didn't help at all.  I had nasal polyps associated with the loss of taste and smell and late onset asthma diagnosed in 2001.  Two sinus operations have not helped much.   For myself, I think it must be easier to cope with no taste or smell than with distortions.   I can appreciate sweet and sour and I try and get some pleasure from the appearance of food and the memories of how I used to enjoy them - especially chocolate.   Actually, I found the depression when the steroid effect wore off harder to bear than the affliction.   My asthma has been particularly bad over the last few months and I am beginning to find my everyday activities restricted by breathlessness.   I have just started seeing a respiratory specialist and hope things will start to improve but no sign yet.   Love to you all, Felicity   PS I read all the postings with interest even if I don't contribute often
----- Original Message -----
Sent: Tuesday, July 07, 2009 5:18 AM
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...

Sounds like smell distortion to me - which onset can be due to varied situations.  One of which is sinus infection.  I stumbled upon this Yahoo group, which has been very helpful for me.  Mick's page is also great page for information:
 
 
I hope this is helpful. 
 

----- Original Message -----
From: gafoodies706@ aol.com
To: dysosmia@yahoogroup s.com
Sent: Monday, July 6, 2009 7:41:54 PM GMT -07:00 US/Canada Mountain
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...



It has been 2 1/2 years for me.  Head trauma not illness but those smells sound about right.  I do not remember when they finally stopped.  They will stop soon. It is horrible when you are going through it though.
Good luck.
 
In a message dated 7/6/2009 9:31:04 P.M. Eastern Daylight Time, jacnbailcathouse@ yahoo.com writes:


Hi Does anyone come to this group?...Will be kinda hard to post to myself and get a different point of view...HMMMM? ????--- In dysosmia@yahoogroup s.com, "jacnbailcathouse" <jacnbailcathouse@ ...> wrote:
>
> LOL..but really, the sudden horrid smell I have been smelling since i got sick 2 months ago is irritating to say the least.
> I got sick 2 mos ago with some kind of mutant flu or something, I was with SINUS, and bronchial, fever and on ANTI-B 3 different kinds, and still have a cough somewhat...NOW. ...after about the first few days of the illness i started smelling BLEACH, then AMMONIA, and i was looking all over trying to find the source of the smell, having someone come over to see if they could smell it...NOPE just a clean house smell...I smelled it at the store, in my house but not outside.
> I was going mad..
> Then I started smelling something like a DIRTY WET ASHTRAY/cigarette smoke smell....I do not smoke, nor do I have anyone or anything in my home that would smell like that....AHHHHHHHHHH HHHHHH
> now I get worried I am smelling smoke running about looking and checking plugs, cords, appliances, the breaker box, then it goes from smoke smell to wet cigarette ashtray smell..yuck!
> I do not smell it outside however....sometime s I seem to think I taste it but????,,,,I had a break from this for about a week when I had gotten better, then a few days ago it started again and have pot nasal drip....I am thinkinh maybe I have a hidden sinus infection or something, but these horrible smells.....just gross...
>



Upgrade to Internet Explorer 8 Optimised for MSN. Download Now


Reply | Forward
#4118 From: "Jon Viglione" <jonviglione@...>
Date: Wed Aug 12, 2009 8:29 pm
Subject: Re: cure 		jonviglione
Offline Offline
Send Email Send Email
  
Greetings all,



I used to visit this forum years ago and the day I came back I see this note

which EXACTLY mirrors my experience.  Two sinus operations and a sense of smell

that only returns with oral steroids (prednisone).  About a year ago my ENT

perscribed a budesonide/saline nasal rinse.  I bought these respules that are

usually used for nebulizers, mixed with saline, and injected up my nose while my

head was inverted (lying over the side of the bed).  It had better results than

any spray, but not quite good enough to get my smell all the way back.  I'm just

starting another 1-week prednisone pack and I'm going to try and be more

dilligent about the budesonide sinus rinses and see how it goes.



Has anyone tried both fluticasone (Flixonase / Flonase) and compared it to

budesonide (Pulmicort / Rhinocort) and had better luck with one over the other?



JV

--- In dysosmia@yahoogroups.com, Paul Collins <pcsworld2006@...> wrote:

>

> hooray

>

> at last someone else who has something good to say about steroids!

>

> keep up the support

>

> regards

>

> paul

>

>

>

> ________________________________

> From: Ian Donohoe <idonohoeuk@...>

> To: dysosmia@yahoogroups.com

> Sent: Tuesday, 7 July, 2009 12:18:55

> Subject: [dysosmia] cure

>

>

>

>

>

>

> I have had just the same as you. Polyps, deviated septum, allergies, late

onset Asthma and even that horrible virus that killed it off for two years. I

have had the lot!  The doctor said I had lost it for good.  I had completely

given up hope of getting my smell and taste back until I came across this forum.

I was very very depressed.

>

> NOW REMEMBER THIS...If it comes back with Prednisone then your senses are

ready and able.  Prednisone reduces swelling, and when you take Prednisone then

the inflamed tissue way up there in the top of your nose reduces and the smell

comes back.  Stop taking the Prednisone and it swells back up again and you lose

it again.  All you need to find is the key that unlocks the door for longer

periods and without the risks of long term Prednisone steroid use.

> I found that with this forums advice and by using Flixonase DROPS not the

spray, keeps my world full of taste and smell.  Put the drops in by laying on

your bed with your head back over the edge and get the flixonase to get right to

the back of your nose where its obviously inflamed to the extent that you senses

are blocked.  Lay there for over a minute then turn over on your front.

>

> Don't forget I was without taste or smell for about 16 years!  I had given up

all hope.

>

> IT REALLY WORKS!!

>

> Good luck.

> Ian.

>

>

>

> ________________________________

>

> To: dysosmia@yahoogroup s.com

> From: automan1963@ yahoo.com

> Date: Tue, 7 Jul 2009 03:47:45 -0700

> Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...

>

>

>

>

>

>

> Your story is a lot like mine. I got a sinus infection and the ability to

smell went away.  I've had 2 surgerys for polyps and no help.  I've taken

Prednisone twice.  Both over a week or so.  During those sessions I could taste

and smell like I have never in my life.  I went to a clinic here in the US and

was prescribed the drug Theophylline.  I took it for about 7 months and it

didn't help.  The Dr. wanted me to come back for some more tests and increase

the dosage.  He said that if this worked I would have to take it the rest of my

life.  I didn't like that so i opted out.  It has been about 15 years for me.  I

have given up and accept it.

> Good luck all

> Robert Riddle

> --- On Tue, 7/7/09, Felicity Bedggood <fjb01@globalnet. co.uk> wrote:

>

>

> >From: Felicity Bedggood <fjb01@globalnet. co.uk>

> >Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...

> >To: dysosmia@yahoogroup s.com

> >Date: Tuesday, July 7, 2009, 4:57 AM

> >

> >

> >

> >

> >Hi, I have suffered from anosmia for over 9 years now - occasionally

alleviated with prescriptions of Prednisolone, typically 30mg for 10 days, but

the last two didn't help at all.  I had nasal polyps associated with the loss of

taste and smell and late onset asthma diagnosed in 2001.  Two sinus operations

have not helped much.   For myself, I think it must be easier to cope with no

taste or smell than with distortions.   I can appreciate sweet and sour and I

try and get some pleasure from the appearance of food and the memories of how I

used to enjoy them - especially chocolate.   Actually, I found the depression

when the steroid effect wore off harder to bear than the affliction.   My asthma

has been particularly bad over the last few months and I am beginning to find my

everyday activities restricted by breathlessness.   I have just started seeing a

respiratory specialist and hope things will start to improve but no sign yet.  

Love to you all,

>  Felicity   PS I read all the postings with interest even if I don't

contribute often

> >----- Original Message -----

> >>From: jeanjeannie@ comcast.net

> >>To: dysosmia@yahoogroup s.com

> >>Sent: Tuesday, July 07, 2009 5:18 AM

> >>Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...

> >>

> >>

> >>Sounds like smell distortion to me - which onset can be due to varied

situations.  One of which is sinus infection.  I stumbled upon this Yahoo group,

which has been very helpful for me.  Mick's page is also great page for

information:

> >>

> >>http://personal. ecu.edu/wuenschk /ViralMick. htm

> >>

> >>I hope this is helpful.

> >>

> >>

> >>----- Original Message -----

> >>From: gafoodies706@ aol.com

> >>To: dysosmia@yahoogroup s.com

> >>Sent: Monday, July 6, 2009 7:41:54 PM GMT -07:00 US/Canada Mountain

> >>Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...

> >>

> >>

> >>

> >>

> >>

> >>It has been 2 1/2 years for me.  Head trauma not illness but those smells

sound about right.  I do not remember when they finally stopped.  They will stop

soon. It is horrible when you are going through it though.

> >>Good luck.

> >>

> >>In a message dated 7/6/2009 9:31:04 P.M. Eastern Daylight Time,

jacnbailcathouse@ yahoo.com writes:

> >>

> >>>

> >>>

> >>>Hi Does anyone come to this group?...Will be kinda hard to post to myself

and get a different point of view...HMMMM? ????--- In dysosmia@yahoogroup s.com,

"jacnbailcathouse" <jacnbailcathouse@ ...> wrote:

> >>>>

> >>>> LOL..but really, the sudden horrid smell I have been smelling since i got

sick 2 months ago is irritating to say the least.

> >>>> I got sick 2 mos ago with some kind of mutant flu or something, I was

with SINUS, and bronchial, fever and on ANTI-B 3 different kinds, and still have

a cough somewhat...NOW. ...after about the first few days of the illness i

started smelling BLEACH, then AMMONIA, and i was looking all over trying to find

the source of the smell, having someone come over to see if they could smell

it...NOPE just a clean house smell...I smelled it at the store, in my house but

not outside.

> >>>> I was going mad..

> >>>> Then I started smelling something like a DIRTY WET ASHTRAY/cigarette

smoke smell....I do not smoke, nor do I have anyone or anything in my home that

would smell like that....AHHHHHHHHHH HHHHHH

> >>>> now I get worried I am smelling smoke running about looking and checking

plugs, cords, appliances, the breaker box, then it goes from smoke smell to wet

cigarette ashtray smell..yuck!

> >>>> I do not smell it outside however....sometime s I seem to think I taste

it but????,,,,I had a break from this for about a week when I had gotten better,

then a few days ago it started again and have pot nasal drip....I am thinkinh

maybe I have a hidden sinus infection or something, but these horrible

smells.....just gross...

> >>>>

> >>>

> >>>

> >>

> >>

> ________________________________

>  >>Summer concert season is here! Find your favorite artists on tour at

TourTracker. com.

>

>

> ________________________________

>  Upgrade to Internet Explorer 8 Optimised for MSN. Download Now

>


Reply | Forward
#4119 From: Ian Donohoe <idonohoeuk@...>
Date: Thu Aug 13, 2009 8:20 am
Subject: RE: Re: cure 		iandon_217
Offline Offline
Send Email Send Email
 
Yes I used  Rhinocort aqua spray for about a year with some sucsess, then it slowly stopped working.
I was without taste and smell again for a few months until I learnt about flixonase drops.  Ever scine then I have been ok.  Must be 2-3 years now.
Ian.
 
To: dysosmia@yahoogroups.com
From: jonviglione@...
Date: Wed, 12 Aug 2009 20:29:34 +0000
Subject: [dysosmia] Re: cure

 
Greetings all,

I used to visit this forum years ago and the day I came back I see this note which EXACTLY mirrors my experience. Two sinus operations and a sense of smell that only returns with oral steroids (prednisone). About a year ago my ENT perscribed a budesonide/saline nasal rinse. I bought these respules that are usually used for nebulizers, mixed with saline, and injected up my nose while my head was inverted (lying over the side of the bed). It had better results than any spray, but not quite good enough to get my smell all the way back. I'm just starting another 1-week prednisone pack and I'm going to try and be more dilligent about the budesonide sinus rinses and see how it goes.

Has anyone tried both fluticasone (Flixonase / Flonase) and compared it to budesonide (Pulmicort / Rhinocort) and had better luck with one over the other?

JV
--- In dysosmia@yahoogroups.com, Paul Collins <pcsworld2006@...> wrote:
>
> hooray
>
> at last someone else who has something good to say about steroids!
>
> keep up the support
>
> regards
>
> paul
>
>
>
> ________________________________
> From: Ian Donohoe <idonohoeuk@...>
> To: dysosmia@yahoogroups.com
> Sent: Tuesday, 7 July, 2009 12:18:55
> Subject: [dysosmia] cure
>
>
>
>
>
>
> I have had just the same as you. Polyps, deviated septum, allergies, late onset Asthma and even that horrible virus that killed it off for two years. I have had the lot! The doctor said I had lost it for good. I had completely given up hope of getting my smell and taste back until I came across this forum. I was very very depressed.
>
> NOW REMEMBER THIS...If it comes back with Prednisone then your senses are ready and able. Prednisone reduces swelling, and when you take Prednisone then the inflamed tissue way up there in the top of your nose reduces and the smell comes back. Stop taking the Prednisone and it swells back up again and you lose it again. All you need to find is the key that unlocks the door for longer periods and without the risks of long term Prednisone steroid use.
> I found that with this forums advice and by using Flixonase DROPS not the spray, keeps my world full of taste and smell. Put the drops in by laying on your bed with your head back over the edge and get the flixonase to get right to the back of your nose where its obviously inflamed to the extent that you senses are blocked. Lay there for over a minute then turn over on your front.
>
> Don't forget I was without taste or smell for about 16 years! I had given up all hope.
>
> IT REALLY WORKS!!
>
> Good luck.
> Ian.
>
>
>
> ________________________________
>
> To: dysosmia@yahoogroup s.com
> From: automan1963@ yahoo.com
> Date: Tue, 7 Jul 2009 03:47:45 -0700
> Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...
>
>
>
>
>
>
> Your story is a lot like mine. I got a sinus infection and the ability to smell went away. I've had 2 surgerys for polyps and no help. I've taken Prednisone twice. Both over a week or so. During those sessions I could taste and smell like I have never in my life. I went to a clinic here in the US and was prescribed the drug Theophylline. I took it for about 7 months and it didn't help. The Dr. wanted me to come back for some more tests and increase the dosage. He said that if this worked I would have to take it the rest of my life. I didn't like that so i opted out. It has been about 15 years for me. I have given up and accept it.
> Good luck all
> Robert Riddle
> --- On Tue, 7/7/09, Felicity Bedggood <fjb01@globalnet. co.uk> wrote:
>
>
> >From: Felicity Bedggood <fjb01@globalnet. co.uk>
> >Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...
> >To: dysosmia@yahoogroup s.com
> >Date: Tuesday, July 7, 2009, 4:57 AM
> >
> >
> >
> >
> >Hi, I have suffered from anosmia for over 9 years now - occasionally alleviated with prescriptions of Prednisolone, typically 30mg for 10 days, but the last two didn't help at all. I had nasal polyps associated with the loss of taste and smell and late onset asthma diagnosed in 2001. Two sinus operations have not helped much. For myself, I think it must be easier to cope with no taste or smell than with distortions. I can appreciate sweet and sour and I try and get some pleasure from the appearance of food and the memories of how I used to enjoy them - especially chocolate. Actually, I found the depression when the steroid effect wore off harder to bear than the affliction. My asthma has been particularly bad over the last few months and I am beginning to find my everyday activities restricted by breathlessness. I have just started seeing a respiratory specialist and hope things will start to improve but no sign yet. Love to you all,
> Felicity PS I read all the postings with interest even if I don't contribute often
> >----- Original Message -----
> >>From: jeanjeannie@ comcast.net
> >>To: dysosmia@yahoogroup s.com
> >>Sent: Tuesday, July 07, 2009 5:18 AM
> >>Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...
> >>
> >>
> >>Sounds like smell distortion to me - which onset can be due to varied situations. One of which is sinus infection. I stumbled upon this Yahoo group, which has been very helpful for me. Mick's page is also great page for information:
> >>
> >>http://personal. ecu.edu/wuenschk /ViralMick. htm
> >>
> >>I hope this is helpful.
> >>
> >>
> >>----- Original Message -----
> >>From: gafoodies706@ aol.com
> >>To: dysosmia@yahoogroup s.com
> >>Sent: Monday, July 6, 2009 7:41:54 PM GMT -07:00 US/Canada Mountain
> >>Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...
> >>
> >>
> >>
> >>
> >>
> >>It has been 2 1/2 years for me. Head trauma not illness but those smells sound about right. I do not remember when they finally stopped. They will stop soon. It is horrible when you are going through it though.
> >>Good luck.
> >>
> >>In a message dated 7/6/2009 9:31:04 P.M. Eastern Daylight Time, jacnbailcathouse@ yahoo.com writes:
> >>
> >>>
> >>>
> >>>Hi Does anyone come to this group?...Will be kinda hard to post to myself and get a different point of view...HMMMM? ????--- In dysosmia@yahoogroup s.com, "jacnbailcathouse" <jacnbailcathouse@ ...> wrote:
> >>>>
> >>>> LOL..but really, the sudden horrid smell I have been smelling since i got sick 2 months ago is irritating to say the least.
> >>>> I got sick 2 mos ago with some kind of mutant flu or something, I was with SINUS, and bronchial, fever and on ANTI-B 3 different kinds, and still have a cough somewhat...NOW. ...after about the first few days of the illness i started smelling BLEACH, then AMMONIA, and i was looking all over trying to find the source of the smell, having someone come over to see if they could smell it...NOPE just a clean house smell...I smelled it at the store, in my house but not outside.
> >>>> I was going mad..
> >>>> Then I started smelling something like a DIRTY WET ASHTRAY/cigarette smoke smell....I do not smoke, nor do I have anyone or anything in my home that would smell like that....AHHHHHHHHHH HHHHHH
> >>>> now I get worried I am smelling smoke running about looking and checking plugs, cords, appliances, the breaker box, then it goes from smoke smell to wet cigarette ashtray smell..yuck!
> >>>> I do not smell it outside however....sometime s I seem to think I taste it but????,,,,I had a break from this for about a week when I had gotten better, then a few days ago it started again and have pot nasal drip....I am thinkinh maybe I have a hidden sinus infection or something, but these horrible smells.....just gross...
> >>>>
> >>>
> >>>
> >>
> >>
> ________________________________
> >>Summer concert season is here! Find your favorite artists on tour at TourTracker. com.
>
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Reply | Forward
#4115 From: Paul Collins <pcsworld2006@...>
Date: Wed Jul 8, 2009 3:46 pm
Subject: Re: Re: HELLO I am new and SMELL................... 		pcsworld2006
Offline Offline
Send Email Send Email
 
hi

If the steroid works get your doctor to help you find a local steroid preparation that works for you. In the uk we can get drops which work when sprays do not (look at my previous posts for my experiences with this).

regards



paul

From: Robert Riddle <automan1963@...>
To: dysosmia@yahoogroups.com
Sent: Tuesday, 7 July, 2009 11:47:45
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL...................

Your story is a lot like mine. I got a sinus infection and the ability to smell went away.  I've had 2 surgerys for polyps and no help.  I've taken Prednisone twice.  Both over a week or so.  During those sessions I could taste and smell like I have never in my life.  I went to a clinic here in the US and was prescribed the drug Theophylline.  I took it for about 7 months and it didn't help.  The Dr. wanted me to come back for some more tests and increase the dosage.  He said that if this worked I would have to take it the rest of my life.  I didn't like that so i opted out.  It has been about 15 years for me.  I have given up and accept it. 
Good luck all
Robert Riddle
--- On Tue, 7/7/09, Felicity Bedggood <fjb01@globalnet. co.uk> wrote:

From: Felicity Bedggood <fjb01@globalnet. co.uk>
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...
To: dysosmia@yahoogroup s.com
Date: Tuesday, July 7, 2009, 4:57 AM


Hi, I have suffered from anosmia for over 9 years now - occasionally alleviated with prescriptions of Prednisolone, typically 30mg for 10 days, but the last two didn't help at all.  I had nasal polyps associated with the loss of taste and smell and late onset asthma diagnosed in 2001.  Two sinus operations have not helped much.   For myself, I think it must be easier to cope with no taste or smell than with distortions.   I can appreciate sweet and sour and I try and get some pleasure from the appearance of food and the memories of how I used to enjoy them - especially chocolate.   Actually, I found the depression when the steroid effect wore off harder to bear than the affliction.   My asthma has been particularly bad over the last few months and I am beginning to find my everyday activities restricted by breathlessness.   I have just started seeing a respiratory specialist and hope things will start to improve but no sign yet.   Love to you all, Felicity   PS I read all the postings with interest even if I don't contribute often
----- Original Message -----
Sent: Tuesday, July 07, 2009 5:18 AM
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...

Sounds like smell distortion to me - which onset can be due to varied situations.  One of which is sinus infection.  I stumbled upon this Yahoo group, which has been very helpful for me.  Mick's page is also great page for information:
 
 
I hope this is helpful. 
 

----- Original Message -----
From: gafoodies706@ aol.com
To: dysosmia@yahoogroup s.com
Sent: Monday, July 6, 2009 7:41:54 PM GMT -07:00 US/Canada Mountain
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...



It has been 2 1/2 years for me.  Head trauma not illness but those smells sound about right.  I do not remember when they finally stopped.  They will stop soon. It is horrible when you are going through it though.
Good luck.
 
In a message dated 7/6/2009 9:31:04 P.M. Eastern Daylight Time, jacnbailcathouse@ yahoo.com writes:


Hi Does anyone come to this group?...Will be kinda hard to post to myself and get a different point of view...HMMMM? ????--- In dysosmia@yahoogroup s.com, "jacnbailcathouse" <jacnbailcathouse@ ...> wrote:
>
> LOL..but really, the sudden horrid smell I have been smelling since i got sick 2 months ago is irritating to say the least.
> I got sick 2 mos ago with some kind of mutant flu or something, I was with SINUS, and bronchial, fever and on ANTI-B 3 different kinds, and still have a cough somewhat...NOW. ...after about the first few days of the illness i started smelling BLEACH, then AMMONIA, and i was looking all over trying to find the source of the smell, having someone come over to see if they could smell it...NOPE just a clean house smell...I smelled it at the store, in my house but not outside.
> I was going mad..
> Then I started smelling something like a DIRTY WET ASHTRAY/cigarette smoke smell....I do not smoke, nor do I have anyone or anything in my home that would smell like that....AHHHHHHHHHH HHHHHH
> now I get worried I am smelling smoke running about looking and checking plugs, cords, appliances, the breaker box, then it goes from smoke smell to wet cigarette ashtray smell..yuck!
> I do not smell it outside however....sometime s I seem to think I taste it but????,,,,I had a break from this for about a week when I had gotten better, then a few days ago it started again and have pot nasal drip....I am thinkinh maybe I have a hidden sinus infection or something, but these horrible smells.....just gross...
>



Reply | Forward
#4109 From: "Nathan Kittner" <vlsgrad@...>
Date: Tue Jul 7, 2009 12:02 pm
Subject: Re: Re: HELLO I am new and SMELL................... 		vlsgrad...
Offline Offline
Send Email Send Email
 
I suffered with phantosmia (horrible smells all the time with no rational explanation) for about 1 year.  I had head trauma about 6 weeks before the smells started.  Saw internists, neurologists, ENT doctors, gastroenterologists..not one could explain the smells and not one could suggest a course of action to eliminate the smells.  Finally went to University of Pennsylvania smell and taste clinic...Dr. Richard Doty...Lots of testing...some medical explanation at the end of the day...but the smells went away on their own..no treatment ever really worked.
----- Original Message -----
Sent: Monday, July 06, 2009 9:30 PM
Subject: [dysosmia] Re: HELLO I am new and SMELL...................

Hi Does anyone come to this group?...Will be kinda hard to post to myself and get a different point of view...HMMMM?????--- In dysosmia@yahoogroups.com, "jacnbailcathouse" <jacnbailcathouse@...> wrote:
>
> LOL..but really, the sudden horrid smell I have been smelling since i got sick 2 months ago is irritating to say the least.
> I got sick 2 mos ago with some kind of mutant flu or something, I was with SINUS, and bronchial, fever and on ANTI-B 3 different kinds, and still have a cough somewhat...NOW....after about the first few days of the illness i started smelling BLEACH, then AMMONIA, and i was looking all over trying to find the source of the smell, having someone come over to see if they could smell it...NOPE just a clean house smell...I smelled it at the store, in my house but not outside.
> I was going mad..
> Then I started smelling something like a DIRTY WET ASHTRAY/cigarette smoke smell....I do not smoke, nor do I have anyone or anything in my home that would smell like that....AHHHHHHHHHHHHHHHH
> now I get worried I am smelling smoke running about looking and checking plugs, cords, appliances, the breaker box, then it goes from smoke smell to wet cigarette ashtray smell..yuck!
> I do not smell it outside however....sometimes I seem to think I taste it but????,,,,I had a break from this for about a week when I had gotten better, then a few days ago it started again and have pot nasal drip....I am thinkinh maybe I have a hidden sinus infection or something, but these horrible smells.....just gross...
>


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