Hi Harry sorry i am on holiday at present but will reply in more depth later J Luke From: dysosmia@yahoogroups.com [mailto:dysosmia@yahoogroups.com] On Behalf...
Hi Luke, I know you are on vacation. I just don't think sodium valproate will help you. I was put on that for a year for phantosmia and it did nothing. I...
Hi Sorry Harry what is it you wanted to know ..... e.g what sodium valproate is ? I am being treated through the Royal Ear Nose and Throat Hospital in...
Hi Anne Thanks for the message, if I am honest I am confused ! , I know Mick will agree it doesn't take much!! When I emailed Dr Henkin , he replied back and...
First off my name is Christi and I suffer from this weird condtition as well. I am just looking for some networking and what not. Thought I would say hi. Would...
* Parosmia -- distorted sense of smell * Phantosmia -- olfactory hallucinations With parosmia there is a chemical substance that normally produces a certain...
See reading that (Call me thick) , i am not entirely sure what i have got ! One doctor is saying one , and the other doctor is saying the other ! Argghhh...
Hi Luke/Anne Officially parosmia is a wide-ranging term to describe any type of distortion in olfaction. Phantosmia (while still being a parosmia) is more ...
Mick O'Hare
Mick.O'Hare@...
May 13, 2009 8:48 am
4046
Hi Luke I reckon treatment will be very similar, yes. Mick ... I ... month ... my ... mg ... of ... the ... r===================== DISCLAIMER...
Mick O'Hare
Mick.O'Hare@...
May 13, 2009 8:50 am
4047
Mick, I have to disagree with you on this. Marjorie and I discussed your posts about parosmia vs phantosmia. They are very different disorders and they are...
Hi Anne I am still confused whether i have parosmia or phantosmia , and am not big on technical/medical words. Emailing Dr Henkin he says i have phatosmia ,...
First Luke... yes I would like to know what sodium valproate is and what it is supposed to accomplish. In fact I would like to know that with any med that is...
Luke, as a former patient of Dr Henkin's (though not a fan of his) I'm guessing he would recognize a case of phantosmia if he heard it described to him. I had...
Yes I did explain my symptoms to Dr Henkin and he went with phantosmia , after I said I was from the UK and needed to find out cost, but he couldn’t give...
Sodium valproate is a drug used to treat epilepsy , but they recognize it's use for treating people with cyclic parosmia. It is meant to help control the...
Happy to bow to your greater knowledge Anne. Thanks Mick ... in ... and ... am ... an ... me! ... normal ... it can ... me to ... and ... to ... always ... do...
Mick O'Hare
Mick.O'Hare@...
May 18, 2009 8:18 am
4054
Luke. You definitely have parosmia, that¹s the term that covers ALL distortions, so Dr Lund is correct. What type is the question. If you smell weird stuff...
Mick O'Hare
Mick.O'Hare@...
May 18, 2009 8:25 am
4055
Big news! The FDA has banned the use of Zicam prodocts. About time...
   I saw this in yesterday's paper, and frankly, this should have been investigated as soon as ONE person lost their smell. I am so grateful my smell has...
I contacted an attorney yesterday about this. They said if I can find the box of Zicam I used in April, 2007, or have a receipt, I'd have a claim. A...
Holly- maybe it would help if you contacted others in the class-action suit. I do believe the article I read mentions one of the names. Perhaps reaching out to...
Holly, I kept the box of Zicam (in my refridgerator so no one else would use or destroy). I don’t know if I have a receipt, but could probably find one –...
I threw out my box before I even knew there was a relationship. I had the virus and frankly can not remember taking the whole box! But it really doesn't make...
Hi Danna - if I had the box, I'd be all over a claim. Go for it! You're right - it won't bring your smell back, but it might help smooth over some of the...
Thanks, Pat. That would be great! Let me know if you need my email address.  I don't know if it shows up here at the blog site. Holly ... From: Pat...
Does anyone have the name of the attorney involved in the class action? I never gave it a thought; but I still saved my Zicam bottle; and it’s even older…...
    " What worries you masters you"-Pat                                                      ...
Danna, you are right on!!!!! I saw this letter on-line in 2006 warning about Zicam. Those bast-rds HAD to know there might be a problem. Again the only way to...
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