My stories are the same as past and I understand the ups and downs. However it is so hard when everything goes back to ZERO ! ! Its like the forbidden fruit...
Harry In my case there is no question that my recovery was not linear. I had those dreadful bouts where I thought it had all gone away. It was hard to deal...
O'Hare, Mick (RBI-UK)
Mick.O'Hare@...
Dec 5, 2008 4:14 pm
3957
Mick et el, I think the hardest part is those who surround me claim they understand, but continue to be belligerent in there actions and statements. Although I...
That's always been hard for me too. People just can't seem to understand... eventually it just sort of sinks in and you develop a thick skin for it. My...
Thanks Adam, you too Mick. My biggest issue is I just can't develop that "thick skin" but on the brighter side, I am up 95 per cent of the time! Would you...
Good news Harry, let us know how the chat with Dr Henkin goes. Mick...
O'Hare, Mick (RBI-UK)
Mick.O'Hare@...
Dec 11, 2008 10:17 am
3962
Hi guys, just thought I'd weigh in with my reaction to Harry's predicament. I know exactly how you feel mate, you and I have a very similar story. I have...
Dr. Henkin.... It was a short sweet and too the point telephone call focused on any side effects of theo !! Increased dosage to 300mg for a couple of weeks...
Richard I am curious to know why you would stop the theo? and what percentage of taste/smell do you believe you have with using the med and not using the...
Sounds like the conversations I had with him too. The non-linear nature is frustrating isn't it? But it's how it was for me, if it's any consolation. Mick...
O'Hare, Mick (RBI-UK)
Mick.O'Hare@...
Dec 16, 2008 10:28 am
3966
Well it is a consolation!! It is always a positive to know that your system is reacting in such a manner of someone who has had success while being treated by...
The good thing about theophylline is that it is cheap and well documented, it's been in use for decades so its side-effects are known. Stick with it Harry. M...
O'Hare, Mick (RBI-UK)
Mick.O'Hare@...
Dec 16, 2008 1:06 pm
3968
tks Mick. Next report after Feb 09 visit. Unless the roses come first!! Harry ... documented, it's been in use for decades so its side-effects are known. ......
Well...I am having surgery to correct my deviated septum the day after tomorrow. Another desperate attempt to fix my smell and taste disorder. Well...at the...
My husband had his uvula removed, his palate shaved and his deviated septum fixed all in one....it was for his snoring but it did not affect his taste and...
Harry, I stopped the theo to see if I could live without taking drugs and still smell at an acceptable level. I don't know about you, but I'd much rather live...
Richard, I am banking that it is the constant barrage that eventually will squelch the, what ever it is, from getting back up and covering my olfactory. I...
Yep Harry, I totally understand. And don't get me wrong, I'm not saying Theo is bad. I mean, it helped me tremendously I believe. The only reason I have ...
Richard, Were you a patient of Dr. Henkin? You have stopped the med because it has helped you in 2 years or you have given up after taking it for two years...
yes i was a patient of Dr H. I believe it did help me. I stopped because I got to the point where i didn't feel i was improving, so I wanted to see if it would...
Ok, till then and best of success (tasting). In conjuction I still do nasel rinses and take nasonex which apparently helps with the process. Harry ... where i...
After surgery to correct a deviated septum a week ago, another desperate attempt to resolve my taste and smell issues, I am happy to say that today I have been...
Hi all... I am new to the group. I've been desperately searching for information regarding smell disorders for my son (age 6). He has cycles when smells...
Julie It sounds like you have taken no actions yet on this awful affliction that has disrupted your sons life and many of ours also. Does he have normal taste...
Julie, He should really be seen by a doctor to have an MRI and CT scan. There have been very RARE cases of a brain tumour causing this. My phantosmia is ...
Good news indeed. The same happened to me after my operation. I presume they have given you a course of prednisilone steroids.I found that when the steroids...
Julie, if you haven't taken your some to a doctor I suggest you have the full work up on him. This can be something brought on by a virus but it seems...
Harry, I had a period of time where I felt like I was imagining being able to taste/smell something, then being absolutely sure I was, then I couldn't...
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