Greetings all,

I used to visit this forum years ago and the day I came back I see this note
which EXACTLY mirrors my experience. Two sinus operations and a sense of smell
that only returns with oral steroids (prednisone). About a year ago my ENT
perscribed a budesonide/saline nasal rinse. I bought these respules that are
usually used for nebulizers, mixed with saline, and injected up my nose while my
head was inverted (lying over the side of the bed). It had better results than
any spray, but not quite good enough to get my smell all the way back. I'm just
starting another 1-week prednisone pack and I'm going to try and be more
dilligent about the budesonide sinus rinses and see how it goes.

Has anyone tried both fluticasone (Flixonase / Flonase) and compared it to
budesonide (Pulmicort / Rhinocort) and had better luck with one over the other?

JV
--- In dysosmia@yahoogroups.com, Paul Collins <pcsworld2006@...> wrote:
>
> hooray
>
> at last someone else who has something good to say about steroids!
>
> keep up the support
>
> regards
>
> paul
>
>
>
> ________________________________
> From: Ian Donohoe <idonohoeuk@...>
> To: dysosmia@yahoogroups.com
> Sent: Tuesday, 7 July, 2009 12:18:55
> Subject: [dysosmia] cure
>
>
>
>
>
>
> I have had just the same as you. Polyps, deviated septum, allergies, late
onset Asthma and even that horrible virus that killed it off for two years. I
have had the lot! The doctor said I had lost it for good. I had completely
given up hope of getting my smell and taste back until I came across this forum.
I was very very depressed.
>
> NOW REMEMBER THIS...If it comes back with Prednisone then your senses are
ready and able. Prednisone reduces swelling, and when you take Prednisone then
the inflamed tissue way up there in the top of your nose reduces and the smell
comes back. Stop taking the Prednisone and it swells back up again and you lose
it again. All you need to find is the key that unlocks the door for longer
periods and without the risks of long term Prednisone steroid use.
> I found that with this forums advice and by using Flixonase DROPS not the
spray, keeps my world full of taste and smell. Put the drops in by laying on
your bed with your head back over the edge and get the flixonase to get right to
the back of your nose where its obviously inflamed to the extent that you senses
are blocked. Lay there for over a minute then turn over on your front.
>
> Don't forget I was without taste or smell for about 16 years! I had given up
all hope.
>
> IT REALLY WORKS!!
>
> Good luck.
> Ian.
>
>
>
> ________________________________
>
> To: dysosmia@yahoogroup s.com
> From: automan1963@ yahoo.com
> Date: Tue, 7 Jul 2009 03:47:45 -0700
> Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...
>
>
>
>
>
>
> Your story is a lot like mine. I got a sinus infection and the ability to
smell went away. I've had 2 surgerys for polyps and no help. I've taken
Prednisone twice. Both over a week or so. During those sessions I could taste
and smell like I have never in my life. I went to a clinic here in the US and
was prescribed the drug Theophylline. I took it for about 7 months and it
didn't help. The Dr. wanted me to come back for some more tests and increase
the dosage. He said that if this worked I would have to take it the rest of my
life. I didn't like that so i opted out. It has been about 15 years for me. I
have given up and accept it.
> Good luck all
> Robert Riddle
> --- On Tue, 7/7/09, Felicity Bedggood <fjb01@globalnet. co.uk> wrote:
>
>
> >From: Felicity Bedggood <fjb01@globalnet. co.uk>
> >Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...
> >To: dysosmia@yahoogroup s.com
> >Date: Tuesday, July 7, 2009, 4:57 AM
> >
> >
> >
> >
> >Hi, I have suffered from anosmia for over 9 years now - occasionally
alleviated with prescriptions of Prednisolone, typically 30mg for 10 days, but
the last two didn't help at all. I had nasal polyps associated with the loss of
taste and smell and late onset asthma diagnosed in 2001. Two sinus operations
have not helped much. For myself, I think it must be easier to cope with no
taste or smell than with distortions. I can appreciate sweet and sour and I
try and get some pleasure from the appearance of food and the memories of how I
used to enjoy them - especially chocolate. Actually, I found the depression
when the steroid effect wore off harder to bear than the affliction. My asthma
has been particularly bad over the last few months and I am beginning to find my
everyday activities restricted by breathlessness. I have just started seeing a
respiratory specialist and hope things will start to improve but no sign yet.
Love to you all,
> Felicity PS I read all the postings with interest even if I don't
contribute often
> >----- Original Message -----
> >>From: jeanjeannie@ comcast.net
> >>To: dysosmia@yahoogroup s.com
> >>Sent: Tuesday, July 07, 2009 5:18 AM
> >>Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...
> >>
> >>
> >>Sounds like smell distortion to me - which onset can be due to varied
situations. One of which is sinus infection. I stumbled upon this Yahoo group,
which has been very helpful for me. Mick's page is also great page for
information:
> >>
> >>http://personal. ecu.edu/wuenschk /ViralMick. htm
> >>
> >>I hope this is helpful.
> >>
> >>
> >>----- Original Message -----
> >>From: gafoodies706@ aol.com
> >>To: dysosmia@yahoogroup s.com
> >>Sent: Monday, July 6, 2009 7:41:54 PM GMT -07:00 US/Canada Mountain
> >>Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...
> >>
> >>
> >>
> >>
> >>
> >>It has been 2 1/2 years for me. Head trauma not illness but those smells
sound about right. I do not remember when they finally stopped. They will stop
soon. It is horrible when you are going through it though.
> >>Good luck.
> >>
> >>In a message dated 7/6/2009 9:31:04 P.M. Eastern Daylight Time,
jacnbailcathouse@ yahoo.com writes:
> >>
> >>>
> >>>
> >>>Hi Does anyone come to this group?...Will be kinda hard to post to myself
and get a different point of view...HMMMM? ????--- In dysosmia@yahoogroup s.com,
"jacnbailcathouse" <jacnbailcathouse@ ...> wrote:
> >>>>
> >>>> LOL..but really, the sudden horrid smell I have been smelling since i got
sick 2 months ago is irritating to say the least.
> >>>> I got sick 2 mos ago with some kind of mutant flu or something, I was
with SINUS, and bronchial, fever and on ANTI-B 3 different kinds, and still have
a cough somewhat...NOW. ...after about the first few days of the illness i
started smelling BLEACH, then AMMONIA, and i was looking all over trying to find
the source of the smell, having someone come over to see if they could smell
it...NOPE just a clean house smell...I smelled it at the store, in my house but
not outside.
> >>>> I was going mad..
> >>>> Then I started smelling something like a DIRTY WET ASHTRAY/cigarette
smoke smell....I do not smoke, nor do I have anyone or anything in my home that
would smell like that....AHHHHHHHHHH HHHHHH
> >>>> now I get worried I am smelling smoke running about looking and checking
plugs, cords, appliances, the breaker box, then it goes from smoke smell to wet
cigarette ashtray smell..yuck!
> >>>> I do not smell it outside however....sometime s I seem to think I taste
it but????,,,,I had a break from this for about a week when I had gotten better,
then a few days ago it started again and have pot nasal drip....I am thinkinh
maybe I have a hidden sinus infection or something, but these horrible
smells.....just gross...
> >>>>
> >>>
> >>>
> >>
> >>
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