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HELLO I am new and SMELL...................   Message List  
Reply | Forward Message #4116 of 4128 |
Re: [dysosmia] cure

hooray

at last someone else who has something good to say about steroids!

keep up the support

regards

paul


From: Ian Donohoe <idonohoeuk@...>
To: dysosmia@yahoogroups.com
Sent: Tuesday, 7 July, 2009 12:18:55
Subject: [dysosmia] cure

 
I have had just the same as you. Polyps, deviated septum, allergies, late onset Asthma and even that horrible virus that killed it off for two years. I have had the lot!  The doctor said I had lost it for good.  I had completely given up hope of getting my smell and taste back until I came across this forum.  I was very very depressed.
 
NOW REMEMBER THIS...If it comes back with Prednisone then your senses are ready and able.  Prednisone reduces swelling, and when you take Prednisone then the inflamed tissue way up there in the top of your nose reduces and the smell comes back.  Stop taking the Prednisone and it swells back up again and you lose it again.  All you need to find is the key that unlocks the door for longer periods and without the risks of long term Prednisone steroid use.
I found that with this forums advice and by using Flixonase DROPS not the spray, keeps my world full of taste and smell.  Put the drops in by laying on your bed with your head back over the edge and get the flixonase to get right to the back of your nose where its obviously inflamed to the extent that you senses are blocked.  Lay there for over a minute then turn over on your front.
 
Don't forget I was without taste or smell for about 16 years!  I had given up all hope.
 
IT REALLY WORKS!!
 
Good luck.
Ian.
 



To: dysosmia@yahoogroup s.com
From: automan1963@ yahoo.com
Date: Tue, 7 Jul 2009 03:47:45 -0700
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...




Your story is a lot like mine. I got a sinus infection and the ability to smell went away.  I've had 2 surgerys for polyps and no help.  I've taken Prednisone twice.  Both over a week or so.  During those sessions I could taste and smell like I have never in my life.  I went to a clinic here in the US and was prescribed the drug Theophylline.  I took it for about 7 months and it didn't help.  The Dr. wanted me to come back for some more tests and increase the dosage.  He said that if this worked I would have to take it the rest of my life.  I didn't like that so i opted out.  It has been about 15 years for me.  I have given up and accept it. 
Good luck all
Robert Riddle
--- On Tue, 7/7/09, Felicity Bedggood <fjb01@globalnet. co.uk> wrote:

From: Felicity Bedggood <fjb01@globalnet. co.uk>
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...
To: dysosmia@yahoogroup s.com
Date: Tuesday, July 7, 2009, 4:57 AM


Hi, I have suffered from anosmia for over 9 years now - occasionally alleviated with prescriptions of Prednisolone, typically 30mg for 10 days, but the last two didn't help at all.  I had nasal polyps associated with the loss of taste and smell and late onset asthma diagnosed in 2001.  Two sinus operations have not helped much.   For myself, I think it must be easier to cope with no taste or smell than with distortions.   I can appreciate sweet and sour and I try and get some pleasure from the appearance of food and the memories of how I used to enjoy them - especially chocolate.   Actually, I found the depression when the steroid effect wore off harder to bear than the affliction.   My asthma has been particularly bad over the last few months and I am beginning to find my everyday activities restricted by breathlessness.   I have just started seeing a respiratory specialist and hope things will start to improve but no sign yet.   Love to you all, Felicity   PS I read all the postings with interest even if I don't contribute often
----- Original Message -----
Sent: Tuesday, July 07, 2009 5:18 AM
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...

Sounds like smell distortion to me - which onset can be due to varied situations.  One of which is sinus infection.  I stumbled upon this Yahoo group, which has been very helpful for me.  Mick's page is also great page for information:
 
 
I hope this is helpful. 
 

----- Original Message -----
From: gafoodies706@ aol.com
To: dysosmia@yahoogroup s.com
Sent: Monday, July 6, 2009 7:41:54 PM GMT -07:00 US/Canada Mountain
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...



It has been 2 1/2 years for me.  Head trauma not illness but those smells sound about right.  I do not remember when they finally stopped.  They will stop soon. It is horrible when you are going through it though.
Good luck.
 
In a message dated 7/6/2009 9:31:04 P.M. Eastern Daylight Time, jacnbailcathouse@ yahoo.com writes:


Hi Does anyone come to this group?...Will be kinda hard to post to myself and get a different point of view...HMMMM? ????--- In dysosmia@yahoogroup s.com, "jacnbailcathouse" <jacnbailcathouse@ ...> wrote:
>
> LOL..but really, the sudden horrid smell I have been smelling since i got sick 2 months ago is irritating to say the least.
> I got sick 2 mos ago with some kind of mutant flu or something, I was with SINUS, and bronchial, fever and on ANTI-B 3 different kinds, and still have a cough somewhat...NOW. ...after about the first few days of the illness i started smelling BLEACH, then AMMONIA, and i was looking all over trying to find the source of the smell, having someone come over to see if they could smell it...NOPE just a clean house smell...I smelled it at the store, in my house but not outside.
> I was going mad..
> Then I started smelling something like a DIRTY WET ASHTRAY/cigarette smoke smell....I do not smoke, nor do I have anyone or anything in my home that would smell like that....AHHHHHHHHHH HHHHHH
> now I get worried I am smelling smoke running about looking and checking plugs, cords, appliances, the breaker box, then it goes from smoke smell to wet cigarette ashtray smell..yuck!
> I do not smell it outside however....sometime s I seem to think I taste it but????,,,,I had a break from this for about a week when I had gotten better, then a few days ago it started again and have pot nasal drip....I am thinkinh maybe I have a hidden sinus infection or something, but these horrible smells.....just gross...
>





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Wed Jul 8, 2009 3:48 pm

pcsworld2006
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Message #4116 of 4128 |
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LOL..but really, the sudden horrid smell I have been smelling since i got sick 2 months ago is irritating to say the least. I got sick 2 mos ago with some kind...
jacnbailcathouse
jacnbailcath...
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Jul 5, 2009
9:58 pm
jacnbailcathouse
jacnbailcath...
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Jul 7, 2009
1:30 am

Believe me ­ this group is awesome ­ I think you may have posted while everyone was on holiday or vacation. I lost my smell over a year and a half ago and...
DANNA FRANKS
dannafranks
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Jul 7, 2009
2:15 pm

sometimes it seems NO ONE is listening- then we all come out of the woodwork like termites! Welcome to this group- it might not solve your problems, but there...
Pat
patandtaz2
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Jul 7, 2009
6:49 pm

It has been 2 1/2 years for me. Head trauma not illness but those smells sound about right. I do not remember when they finally stopped. They will stop...
gafoodies706@...
gafoodies
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Jul 7, 2009
1:42 am

Sounds like smell distortion to me - which onset can be due to varied situations.  One of which is sinus infection.  I stumbled upon this Yahoo group, which...
jeanjeannie@...
jebaynnie
Offline Send Email
Jul 7, 2009
4:18 am

Hi, I have suffered from anosmia for over 9 years now - occasionally alleviated with prescriptions of Prednisolone, typically 30mg for 10 days, but the last...
Felicity Bedggood
fjb01@...
Send Email
Jul 7, 2009
9:58 am

The combination of anosmia (with polyps) and asthma suggests that Samters Triad is a possibility. Have your docs mentioned that? Cheers, Karl W. ...
Wuensch, Karl L
klwuensch
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Jul 7, 2009
10:39 pm

hi there seems to be a lot of dislike for steroids as a treatment for anosmia - even on this forum! For sure systemic (oral, injected) steroids will have...
Paul Collins
pcsworld2006
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Jul 8, 2009
3:44 pm

Your story is a lot like mine. I got a sinus infection and the ability to smell went away.  I've had 2 surgerys for polyps and no help.  I've taken...
Robert Riddle
automan1963
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Jul 7, 2009
10:47 am

I have had just the same as you. Polyps, deviated septum, allergies, late onset Asthma and even that horrible virus that killed it off for two years. I have...
Ian Donohoe
iandon_217
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Jul 7, 2009
11:19 am

hooray at last someone else who has something good to say about steroids! keep up the support regards paul ________________________________ From: Ian Donohoe...
Paul Collins
pcsworld2006
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Jul 8, 2009
3:48 pm

Greetings all, I used to visit this forum years ago and the day I came back I see this note which EXACTLY mirrors my experience. Two sinus operations and a...
Jon Viglione
jonviglione
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Aug 12, 2009
8:30 pm

Yes I used Rhinocort aqua spray for about a year with some sucsess, then it slowly stopped working. I was without taste and smell again for a few months until...
Ian Donohoe
iandon_217
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Aug 13, 2009
8:23 am

hi If the steroid works get your doctor to help you find a local steroid preparation that works for you. In the uk we can get drops which work when sprays do...
Paul Collins
pcsworld2006
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Jul 8, 2009
3:47 pm

I suffered with phantosmia (horrible smells all the time with no rational explanation) for about 1 year. I had head trauma about 6 weeks before the smells...
Nathan Kittner
vlsgrad...
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Jul 7, 2009
12:03 pm
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