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HELLO I am new and SMELL...................   Message List  
Reply | Forward Message #4114 of 4128 |
Re: [dysosmia] Re: HELLO I am new and SMELL...................

hi

there seems to be a lot of dislike for steroids as a treatment for anosmia - even on this forum!

For sure systemic (oral, injected) steroids will have prolong biological effects in addition to a possible beneficial effect on your taste and smell. The fact that it has worked though means that you have the capability to recover function. Try locally applied steroid drops (in the UK betnesol or Flixonase nasules). If these work you should be able to stay on these for life with minimum side effects (search for my previous posts for my experience with these drugs). If you cannot get these preps then you could try the sprays and with appropriate advice from your doctor consider administering them as a liquid i.e. open the bottle and drip it into the nose in the inverted head position.

good luck

paul


From: Felicity Bedggood <fjb01@...>
To: dysosmia@yahoogroups.com
Sent: Tuesday, 7 July, 2009 10:57:05
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL...................



Hi, I have suffered from anosmia for over 9 years now - occasionally alleviated with prescriptions of Prednisolone, typically 30mg for 10 days, but the last two didn't help at all.  I had nasal polyps associated with the loss of taste and smell and late onset asthma diagnosed in 2001.  Two sinus operations have not helped much.   For myself, I think it must be easier to cope with no taste or smell than with distortions.   I can appreciate sweet and sour and I try and get some pleasure from the appearance of food and the memories of how I used to enjoy them - especially chocolate.   Actually, I found the depression when the steroid effect wore off harder to bear than the affliction.   My asthma has been particularly bad over the last few months and I am beginning to find my everyday activities restricted by breathlessness.   I have just started seeing a respiratory specialist and hope things will start to improve but no sign yet.   Love to you all, Felicity   PS I read all the postings with interest even if I don't contribute often
----- Original Message -----
Sent: Tuesday, July 07, 2009 5:18 AM
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...

Sounds like smell distortion to me - which onset can be due to varied situations.  One of which is sinus infection.  I stumbled upon this Yahoo group, which has been very helpful for me.  Mick's page is also great page for information:

 

http://personal. ecu.edu/wuenschk /ViralMick. htm

 

I hope this is helpful. 

 


----- Original Message -----
From: gafoodies706@ aol.com
To: dysosmia@yahoogroup s.com
Sent: Monday, July 6, 2009 7:41:54 PM GMT -07:00 US/Canada Mountain
Subject: Re: [dysosmia] Re: HELLO I am new and SMELL....... ......... ...



It has been 2 1/2 years for me.  Head trauma not illness but those smells sound about right.  I do not remember when they finally stopped.  They will stop soon. It is horrible when you are going through it though.
Good luck.
 
In a message dated 7/6/2009 9:31:04 P.M. Eastern Daylight Time, jacnbailcathouse@ yahoo.com writes:


Hi Does anyone come to this group?...Will be kinda hard to post to myself and get a different point of view...HMMMM? ????--- In dysosmia@yahoogroup s.com, "jacnbailcathouse" <jacnbailcathouse@ ...> wrote:
>
> LOL..but really, the sudden horrid smell I have been smelling since i got sick 2 months ago is irritating to say the least.
> I got sick 2 mos ago with some kind of mutant flu or something, I was with SINUS, and bronchial, fever and on ANTI-B 3 different kinds, and still have a cough somewhat...NOW. ...after about the first few days of the illness i started smelling BLEACH, then AMMONIA, and i was looking all over trying to find the source of the smell, having someone come over to see if they could smell it...NOPE just a clean house smell...I smelled it at the store, in my house but not outside.
> I was going mad..
> Then I started smelling something like a DIRTY WET ASHTRAY/cigarette smoke smell....I do not smoke, nor do I have anyone or anything in my home that would smell like that....AHHHHHHHHHH HHHHHH
> now I get worried I am smelling smoke running about looking and checking plugs, cords, appliances, the breaker box, then it goes from smoke smell to wet cigarette ashtray smell..yuck!
> I do not smell it outside however....sometime s I seem to think I taste it but????,,,,I had a break from this for about a week when I had gotten better, then a few days ago it started again and have pot nasal drip....I am thinkinh maybe I have a hidden sinus infection or something, but these horrible smells.....just gross...
>




Wed Jul 8, 2009 3:43 pm

pcsworld2006
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Message #4114 of 4128 |
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LOL..but really, the sudden horrid smell I have been smelling since i got sick 2 months ago is irritating to say the least. I got sick 2 mos ago with some kind...
jacnbailcathouse
jacnbailcath...
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Jul 5, 2009
9:58 pm
jacnbailcathouse
jacnbailcath...
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Jul 7, 2009
1:30 am

Believe me ­ this group is awesome ­ I think you may have posted while everyone was on holiday or vacation. I lost my smell over a year and a half ago and...
DANNA FRANKS
dannafranks
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Jul 7, 2009
2:15 pm

sometimes it seems NO ONE is listening- then we all come out of the woodwork like termites! Welcome to this group- it might not solve your problems, but there...
Pat
patandtaz2
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Jul 7, 2009
6:49 pm

It has been 2 1/2 years for me. Head trauma not illness but those smells sound about right. I do not remember when they finally stopped. They will stop...
gafoodies706@...
gafoodies
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Jul 7, 2009
1:42 am

Sounds like smell distortion to me - which onset can be due to varied situations.  One of which is sinus infection.  I stumbled upon this Yahoo group, which...
jeanjeannie@...
jebaynnie
Offline Send Email
Jul 7, 2009
4:18 am

Hi, I have suffered from anosmia for over 9 years now - occasionally alleviated with prescriptions of Prednisolone, typically 30mg for 10 days, but the last...
Felicity Bedggood
fjb01@...
Send Email
Jul 7, 2009
9:58 am

The combination of anosmia (with polyps) and asthma suggests that Samters Triad is a possibility. Have your docs mentioned that? Cheers, Karl W. ...
Wuensch, Karl L
klwuensch
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Jul 7, 2009
10:39 pm

hi there seems to be a lot of dislike for steroids as a treatment for anosmia - even on this forum! For sure systemic (oral, injected) steroids will have...
Paul Collins
pcsworld2006
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Jul 8, 2009
3:44 pm

Your story is a lot like mine. I got a sinus infection and the ability to smell went away.  I've had 2 surgerys for polyps and no help.  I've taken...
Robert Riddle
automan1963
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Jul 7, 2009
10:47 am

I have had just the same as you. Polyps, deviated septum, allergies, late onset Asthma and even that horrible virus that killed it off for two years. I have...
Ian Donohoe
iandon_217
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Jul 7, 2009
11:19 am

hooray at last someone else who has something good to say about steroids! keep up the support regards paul ________________________________ From: Ian Donohoe...
Paul Collins
pcsworld2006
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Jul 8, 2009
3:48 pm

Greetings all, I used to visit this forum years ago and the day I came back I see this note which EXACTLY mirrors my experience. Two sinus operations and a...
Jon Viglione
jonviglione
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Aug 12, 2009
8:30 pm

Yes I used Rhinocort aqua spray for about a year with some sucsess, then it slowly stopped working. I was without taste and smell again for a few months until...
Ian Donohoe
iandon_217
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Aug 13, 2009
8:23 am

hi If the steroid works get your doctor to help you find a local steroid preparation that works for you. In the uk we can get drops which work when sprays do...
Paul Collins
pcsworld2006
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Jul 8, 2009
3:47 pm

I suffered with phantosmia (horrible smells all the time with no rational explanation) for about 1 year. I had head trauma about 6 weeks before the smells...
Nathan Kittner
vlsgrad...
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Jul 7, 2009
12:03 pm
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