Hi Luke,

I know you are on vacation. I just don't think sodium valproate will help you.
I was put on that for a year for phantosmia and it did nothing. I think your
condition sounds more like phantosmia as it is unilateral and cyclical, although
there are all kinds of smell dysfunction. I would try Lyrica. Sodium valproate
is really difficult to tolerate. I know you are in Great Britain, but if you
can contact Dr Donald Leopold in Omaha, Nebraska, he might be able to suggest
something for you.

anne christie


--- In dysosmia@yahoogroups.com, "Luke Sampson" <luke.sampson@...> wrote:
>
> Hi Anne ,
>
>
>
> I have been diagnosed with Cyclical Parosmia by the ENT Hospital in London!
>
>
>
>
> Here are my symptoms , i have cheated slightly and copied this from an
> email i sent someone as my laptop battery is just about to die on me!
>
>
>
> My condition has gradually got worse over the years , I wake up as normal
> and even with 15 minutes or my smell and taste will just change, some days I
> can go with experiencing the problem , but these are few and far between. I
> can only describe what I taste and smell a bit cheesy , other times it can
> taste different. When I do exercise or get hot it will also trigger me to
> lose my taste/smell.
>
>
>
> I used to be able to gain my taste/smell back by pinching my nose and
> breathing in words, however while this to use work it doesn't seem to
> anymore and also can hurt , I am scared to sniff or blow my nose, I always
> feel like I got a cold and generally I find myself dread going out to meals
> or drinking as this effect my enjoyment and when I do lose my smell/taste it
> does make me depressed.
>
>
>
> Other symptoms i recognise is that it seems to happen in only one nostril.
> Either way when i have the problem i don't want to drink / eat anything ,
> if i really have to have anything then it needs to be as plain as plain can
> be.
>
>
>
> Luke
>
>
>
> From: dysosmia@yahoogroups.com [mailto:dysosmia@yahoogroups.com] On Behalf
> Of Anne
> Sent: 21 April 2009 23:14
> To: dysosmia@yahoogroups.com
> Subject: [dysosmia] Re: Also new
>
>
>
>
>
>
>
>
> Luke - what are your symptoms? Are you just experiencing anosmia or do you
> suffer from parosmia or phantosmia?
>
> anne christie
>
> --- In dysosmia@yahoogroups.com <mailto:dysosmia%40yahoogroups.com> , "Luke
> Sampson" <luke.sampson@> wrote:
> >
> > Hi all , here is my two pennies worth :
> >
> >
> >
> >
> > I am currently one sodium valproate tablets , and had been for now a month
> ,
> > and it seem to be working great with only one side effect (my skin was
> > really sore, and felt dry) , I had little other symptoms.
> >
> > During the last month it was better than I have been for ages, but since
> > Easter Sunday , it's really been playing up again ..... I am due to see my
> > doctor this week. I am still on 200 mg , not sure what else they will do
> > except up the dosage ?? , the doctors in London say i can go up to 600 mg
> >
> > The three or so weeks I was fairly symptom free, this could be because of
> > the tablets, or sometimes in the past , a week or so would pass where the
> > symptons would be less frequent and then return with a vengence, so
> unsure.
> >
> > Luke
>