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Reply | Forward Message #4032 of 4133 |
RE: [dysosmia] Re: Also new

Hi Anne ,

 

I have been diagnosed with Cyclical Parosmia  by the ENT Hospital in London!

 

Here are my symptoms ,  i have cheated slightly and copied this from an email i sent someone as my laptop battery is just about to die on me!

 

My condition has gradually got worse over the years , I wake up as normal and even with 15 minutes or my smell and taste will just change, some days I can go with experiencing the problem , but these are few and far between. I can only describe what I taste and smell a bit cheesy , other times it can taste different.  When I do exercise or get hot it will also trigger me to lose my taste/smell.

 

I used to be able to gain my taste/smell back by pinching my nose and breathing in words, however while this to use work it doesn’t seem to anymore and also can hurt , I am scared to sniff or blow my nose, I always feel like I got a cold and generally I find myself dread going out to meals or drinking as this effect my enjoyment and when I do lose my smell/taste it does make me depressed.

 

Other symptoms i recognise is that it seems to happen in only one nostril.   Either way when i have the problem i don’t want to drink / eat anything  , if i really have to have anything then it needs to be as plain as plain can be.

 

Luke

 

From: dysosmia@yahoogroups.com [mailto:dysosmia@yahoogroups.com] On Behalf Of Anne
Sent: 21 April 2009 23:14
To: dysosmia@yahoogroups.com
Subject: [dysosmia] Re: Also new

 




Luke - what are your symptoms? Are you just experiencing anosmia or do you suffer from parosmia or phantosmia?

anne christie

--- In dysosmia@yahoogroups.com, "Luke Sampson" <luke.sampson@...> wrote:
>
> Hi all , here is my two pennies worth :
>
>
>
>
> I am currently one sodium valproate tablets , and had been for now a month ,
> and it seem to be working great with only one side effect (my skin was
> really sore, and felt dry) , I had little other symptoms.
>
> During the last month it was better than I have been for ages, but since
> Easter Sunday , it's really been playing up again ..... I am due to see my
> doctor this week. I am still on 200 mg , not sure what else they will do
> except up the dosage ?? , the doctors in London say i can go up to 600 mg
>
> The three or so weeks I was fairly symptom free, this could be because of
> the tablets, or sometimes in the past , a week or so would pass where the
> symptons would be less frequent and then return with a vengence, so unsure.
>
> Luke



Tue Apr 21, 2009 10:24 pm

lukesampson78
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Message #4032 of 4133 |
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Luke - what are your symptoms? Are you just experiencing anosmia or do you suffer from parosmia or phantosmia? anne christie...
Anne
christie5519
Offline Send Email
Apr 21, 2009
10:14 pm

Hi Anne , I have been diagnosed with Cyclical Parosmia by the ENT Hospital in London! Here are my symptoms , i have cheated slightly and copied this from an ...
Luke Sampson
lukesampson78
Offline Send Email
Apr 21, 2009
10:25 pm

Hi Luke, I know you are on vacation. I just don't think sodium valproate will help you. I was put on that for a year for phantosmia and it did nothing. I...
Anne
christie5519
Offline Send Email
May 4, 2009
10:52 pm

Hi Anne Thanks for the message, if I am honest I am confused ! , I know Mick will agree it doesn't take much!! When I emailed Dr Henkin , he replied back and...
Luke Sampson
lukesampson78
Offline Send Email
May 12, 2009
7:02 pm

* Parosmia -- distorted sense of smell * Phantosmia -- olfactory hallucinations With parosmia there is a chemical substance that normally produces a certain...
Wuensch, Karl L
klwuensch
Offline Send Email
May 12, 2009
9:26 pm

See reading that (Call me thick) , i am not entirely sure what i have got ! One doctor is saying one , and the other doctor is saying the other ! Argghhh...
Luke Sampson
lukesampson78
Offline Send Email
May 12, 2009
9:34 pm

Hi Luke I reckon treatment will be very similar, yes. Mick ... I ... month ... my ... mg ... of ... the ... r===================== DISCLAIMER...
Mick O'Hare
Mick.O'Hare@...
Send Email
May 13, 2009
8:50 am

Mick, I have to disagree with you on this. Marjorie and I discussed your posts about parosmia vs phantosmia. They are very different disorders and they are...
Anne
christie5519
Offline Send Email
May 17, 2009
6:20 am

Hi Anne I am still confused whether i have parosmia or phantosmia , and am not big on technical/medical words. Emailing Dr Henkin he says i have phatosmia ,...
Luke Sampson
lukesampson78
Offline Send Email
May 17, 2009
8:12 am

Luke, as a former patient of Dr Henkin's (though not a fan of his) I'm guessing he would recognize a case of phantosmia if he heard it described to him. I had...
Anne
christie5519
Offline Send Email
May 17, 2009
4:09 pm

Yes I did explain my symptoms to Dr Henkin and he went with phantosmia , after I said I was from the UK and needed to find out cost, but he couldn’t give...
Luke Sampson
lukesampson78
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May 17, 2009
4:43 pm

Hi Anne Sorry for the delay in replying...... i had a letter back from the hospital in London today which was sent to my doctor , I was CC’ed/ Saying ,...
Luke Sampson
lukesampson78
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Jul 13, 2009
7:27 pm

Luke. You definitely have parosmia, that¹s the term that covers ALL distortions, so Dr Lund is correct. What type is the question. If you smell weird stuff...
Mick O'Hare
Mick.O'Hare@...
Send Email
May 18, 2009
8:25 am

Happy to bow to your greater knowledge Anne. Thanks Mick ... in ... and ... am ... an ... me! ... normal ... it can ... me to ... and ... to ... always ... do...
Mick O'Hare
Mick.O'Hare@...
Send Email
May 18, 2009
8:18 am

Hi Luke/Anne Officially parosmia is a wide-ranging term to describe any type of distortion in olfaction. Phantosmia (while still being a parosmia) is more ...
Mick O'Hare
Mick.O'Hare@...
Send Email
May 13, 2009
8:48 am

Luke You are being treated in England I guess and with one theropy? Sodium valproate ?? What is that? Would you expand on that for me please?? tks Harry...
harryony1
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Apr 25, 2009
8:53 pm

Hi Harry sorry i am on holiday at present but will reply in more depth later J Luke From: dysosmia@yahoogroups.com [mailto:dysosmia@yahoogroups.com] On Behalf...
Luke Sampson
lukesampson78
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May 4, 2009
5:06 pm

Man, I am suffering from this disease. Today it has been very rough. Terrible in fact. Mark Nichols From: dysosmia@yahoogroups.com...
Nichols, Mark
tiodiego2004
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May 4, 2009
7:55 pm

Hi Sorry Harry what is it you wanted to know ..... e.g what sodium valproate is ? I am being treated through the Royal Ear Nose and Throat Hospital in...
Luke Sampson
lukesampson78
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May 12, 2009
6:43 pm
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