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Since I developed the smelling distortion in October of 2007, I have had some recovery of my sense of smell.  My first bad smell was car exhaust, which wouldn't go away.  After an MRI, the doctor (ENT) who finally diagnosed me with Dysosmia in January, 2008, didn't have any advice for me.  She said it would either stick with me forever, or go away eventually.  At the time, I had no health insurance, and I still wouldn't persue treatment any further today.
 
Now, I have some of my normal sense of smell back.  There are a few things I can't eat, like liver sausage (which I used to LOVE), it tastes rancid now, and I still have a hard time with bananas.  Popcorn still tastes kinda funny, but I love it so much, I just ignore the taste and eat it anyway. Cooking is still hard, but at least I can smell smoke again, so if something's burning, I'd know it.
 
I've tried a few things suggested by different people in this group, including the head up-side down saline rinse.  I used regular sea salt and water, and a prepared solution from Walgreen's.  That's to keep my sinuses clean and dry.  I also tried the pepper spray that someone posted about last summer.  What a waste of time that was!  That stuff tasted SOOOO bad, I couldn't use it again after the first try.
 
Because I didn't have insurance, I couldn't afford the prescription for Nasonex.
 
The only good thing out of this is I lost 13 pounds!
 
So after 1-1/2 years, I'm doing much better that I expected after the discouraging report from the doctor.  I still get weird phantom smells that won't go away (I can't even describe them, but they are sort of chemically smelling), and I swear out loud because it's so frustrating.  My kids think I'm nuts sometimes.  I'm just hoping that, with time, I'll eventually be 100% back to normal.  And, if not, oh well.
 
Thanks to you all for being there when I needed help the most.
 
Sandy James in Milwaukee, WI.


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Mon Apr 20, 2009 7:21 pm

sandy6j
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Message #4030 of 4133 |
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This is my 13th month. I was initially so depressed I did virtually nothing in the line of what the Dr's. prescribed (worthless info) Monday the 11th I had...
harryony1
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Feb 15, 2008
2:03 pm

... I would recommend you get in touch with Dr Robert Henkin. His website is www.tasteandsmell.com....
dmpauly
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Feb 15, 2008
2:35 pm

... virtually ... sense ... evident/present. I ... Just ... times) ... I ... of ... the ... Year. ... for ... can ... website ... I have already talked to Dr....
harryony1
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Feb 15, 2008
2:47 pm

"I tend to have some success when using the 'neck back over the edge of the bed method.' This is the third time since religiously using the nasonex WITH THE...
Anne
christie5519
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Feb 16, 2008
5:28 am

Do the nasal rinses help out when the dysosmia was caused by head trauma or just with the viral induced? If it does help with the trauma induced, where can I...
Dave Taylor
designtech91
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Feb 16, 2008
6:18 am

Saline rinses help everyone. For those of us with asnomia or parosmia it keeps our alfactory nerves free and clear of allergens, bacteria and other things...
stannseniors
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Feb 16, 2008
4:10 pm

Dave, as far as head trauma, I'm not sure how effective it will be but Patty is right, nasal rinses are really healthy to use, studies are coming out now that...
Anne
christie5519
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Feb 16, 2008
4:46 pm

You're getting good advice, here, newbies -- don't over-think everything or you'll end up wasting precious months. Saline washing needn't be all that...
Stephen E. Phelps Jr.
stephenephel...
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Feb 17, 2008
7:56 pm

Steve, You are a he-man, viking or caveman (take your pick). I have a vision of you living in the wild, wearing a plaid shirt and dirty torn jeans and...
stannseniors
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Feb 17, 2008
9:09 pm

Neilmed is what I use too..I thought it would be a nasty water- up- the- nose burn but its not and its easy too use..im sounding like a commercial. lol ... ...
Cyndi Harrington
nosferatu1642
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Feb 17, 2008
9:33 pm

Since I developed the smelling distortion in October of 2007, I have had some recovery of my sense of smell. My first bad smell was car exhaust, which...
Sandy James
sandy6j
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Apr 20, 2009
7:21 pm

You are a lot stronger than me Sandy, for sure. I am on a quest for resolution of this infliction and hope to learn more from everyone. I am seeing for those...
harryony1
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Apr 25, 2009
8:59 pm

It's okay about the pepper spray, Harry! My friends got a kick out of me trying all that off-the-wall stuff, but I think we're all kind of desperate to get...
Sandy James
sandy6j
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Apr 25, 2009
9:19 pm
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