I was disappointed in the lack of postings.. Please don't give up people!!! If any of you have regained any part of your sense, please share it with us so we may have some hope.

thanks
Harry

--- In dysosmia@yahoogroups.com, Mick O'Hare <Mick.O'Hare@...> wrote:
>
> Hi Harry
>
> Nice to have you back. Stick with the treatment!
>
> Mick
>
>
> On 15/04/2009 01:16, "harryony1" <harryony1@...> wrote:
>
> >
> >
> >
> >
> >
> >
> > Well I didn't use the beta for the second post but it took and now that
> > is how I am getting it done.
> >
> > continuation: Nothing special , I am doing ok mentally and have great
> > faith in Dr Henkins theropy!! Several hundred words less :)
> > .....................
> > --- In dysosmia@yahoogroups.com <mailto:dysosmia%40yahoogroups.com> ,
> > "harryony1" <harryony1@> wrote:
> >> >
> >> > lost the continuation too !! ,,,, nothing great I am doing ok and have
> > faith in the theorpy.
> >> >
> >> > Harry
> >> >
> >> > --- In dysosmia@yahoogroups.com <mailto:dysosmia%40yahoogroups.com> ,
> >> "harryony1" harryony1@ wrote:
> >>> > >
> >>> > > Well, here it is and I did just get back from a 23 state tour of the
> > USA with 8750 miles of driving and 2075 nautical miles (Caribbean
> > Cruise) on the great Atlantic.
> >>> > > We left the great Northeast USA on Feb 17 and visited Dr. Harkin on
> > the 19th, a scheduled appointment. I took my daily report sheets which
> > indicated how I was smell/tasting for the previous several months from
> > my first meeting, percentage wise to what I thought. Update: apparentyly
> > I was not at 0 when first diagnosed, as I called it a sensation. These
> > sensations are taste/smell but unable to identify what I was eating. The
> > sensations were still there, however, now I have these distortions that
> > made bad smelly things the object of a dinner craving???? WOW I think I
> > blew the ole doc away when I suggested that a flavor that was "something
> > really bad" would have been a favorable meal. :) Well it certainly
> > answered a few questions for me.
> >>> > >
> >>> > > to be continued!! ( I have posted prior to this and lost lenghty
> > post)
> >>> > >
> >>> > > --- In dysosmia@yahoogroups.com <mailto:dysosmia%40yahoogroups.com> ,
> >>> "O'Hare, Mick (RBI-UK)"
> > <Mick.O'Hare@> wrote:
> >>>> > > >
> >>>> > > > Back last week Harry. Hopefully you've missed the worst of the
> > winter.
> >>>> > > >
> >>>> > > > M
> >>>> > > >
> >>>>> > > > > ----------
> >>>>> > > > > From: dysosmia@yahoogroups.com <mailto:dysosmia%40yahoogroups.com>
> >>>>> on behalf of Harry O
> >>>>> > > > > Reply To: dysosmia@yahoogroups.com
> >>>>> <mailto:dysosmia%40yahoogroups.com>
> >>>>> > > > > Sent: Monday, February 16, 2009 2:43 PM
> >>>>> > > > > To: dysosmia@yahoogroups.com <mailto:dysosmia%40yahoogroups.com>
> >>>>> > > > > Subject: RE: [dysosmia] Re: Also new
> >>>>> > > > >
> >>>>> > > > > Sure thing Mick. Arn't you there now for business, if I recall
> > correctly.
> >>>>> > > > >
> >>>>> > > > > H
> >>>>> > > > >
> >>>>> > > > > --- On Mon, 2/16/09, O'Hare, Mick (RBI-UK) <Mick.O'Hare@> wrote:
> >>>>> > > > >
> >>>>> > > > >
> >>>>> > > > > From: O'Hare, Mick (RBI-UK) <Mick.O'Hare@>
> >>>>> > > > > Subject: RE: [dysosmia] Re: Also new
> >>>>> > > > > To: dysosmia@yahoogroups.com <mailto:dysosmia%40yahoogroups.com>
> >>>>> > > > > Date: Monday, February 16, 2009, 4:46 AM
> >>>>> > > > >
> >>>>> > > > >
> >>>>> > > > > Harry, let me know how your DC visit goes
> >>>>> > > > >
> >>>>> > > > > Mick
> >>>>> > > > >
> >>>>>> > > > > > ----------
> >>>>>> > > > > > From: dysosmia@yahoogroup s.com on behalf of harryony1
> >>>>>> > > > > > Reply To: dysosmia@yahoogroup s.com
> >>>>>> > > > > > Sent: Sunday, February 15, 2009 11:06 PM
> >>>>>> > > > > > To: dysosmia@yahoogroup s.com
> >>>>>> > > > > > Subject: [dysosmia] Re: Also new
> >>>>>> > > > > >
> >>>>>> > > > > > I just knew one of the smells I get was something I used in my
> >>>>>> > > > > > lifetime and you made that happen. Thank You. Playdough, duh!!
> >>>>>> > > > > > Right now I am continuing the fried onion smell that I cooked
> > 3 days
> >>>>>> > > > > > ago, which is very strong. They did agree it was strong while
> > I was
> >>>>>> > > > > > cooking them but presnetly they can not smell onion anymore.
> > Oh
> >>>>>> > > > > > Well !
> >>>>>> > > > > > The first ENT you went to, was just as insensitive as mine,
> > however
> >>>>>> > > > > > he did 87 more discoveries then mine. Mine just said "you
> > should
> >>>>>> > > > > > have it back in 12 months or less" and that was 2 years ago!!
> > Of
> >>>>>> > > > > > course that was after the ct, mri, and poking a rod up my
> > nasel
> >>>>>> > > > > > passage.
> >>>>>> > > > > > Use the saline rinse and it should help with the odors.
> >>>>>> > > > > > I believe that I am at the stage you are in but I came from
> > ZERO, so
> >>>>>> > > > > > anything I can smell/taste now is a holiday ;). Few and far
> > inbetween
> >>>>>> > > > > > but never-the-less still a happening even if it is at 25
> > percent.
> >>>>>> > > > > > I am visiting Washington D.C. for my second appointment with
> > Dr.
> >>>>>> > > > > > Henkin this thursday and will update from there.
> >>>>>> > > > > >
> >>>>>> > > > > > Good Luck
> >>>>>> > > > > > Harry
> >>>>>> > > > > >
> >>>>>> > > > > > --- In dysosmia@yahoogroup s.com, "Jeannie" <jeanjeannie@ ...>
> > wrote:
> >>>>>>> > > > > > >
> >>>>>>> > > > > > > Hello to all. I've been reading posts on this for quite some
> > time -
> >>>>>> > > > > >
> >>>>>>> > > > > > > but only became a member today. I wanted to thank those who
> > have
> >>>>>>> > > > > > > taken the time to share their story...as it provides insight
> > to me
> >>>>>>> > > > > > > (and how to apply to my personal case). While everyone's
> > story and
> >>>>>>> > > > > > > perspective is unique, it's good to know that there are
> > others who
> >>>>>>> > > > > > > provide support.
> >>>>>>> > > > > > >
> >>>>>>> > > > > > > As for me, my symptoms began in 5/2008. I'd been diagnosed
> > in
> >>>>>>> > > > > > > February with RSV and told to wait it out. In early May I
> >>>>>>> > > > > > > experienced such terrible congestion - I could barely
> > function. I
> >>>>>>> > > > > > > had used Flonase (combined with Allegra-D) in the past for
> >>>>>> > > > > > allergies,
> >>>>>>> > > > > > > so my physician suggested to try Flonase again.
> >>>>>>> > > > > > >
> >>>>>>> > > > > > > Admittedly, it's difficult to determine the exact cause of
> > the
> >>>>>>> > > > > > > onset...whether it was due to the URI, or the Flonase. There
> > was
> >>>>>> > > > > > one
> >>>>>>> > > > > > > time where I used it and experienced a radiating pain on the
> > left
> >>>>>>> > > > > > > side of my head and face. Within days, I noticed that I
> > could
> >>>>>> > > > > > barely
> >>>>>>> > > > > > > smell anything.
> >>>>>>> > > > > > >
> >>>>>>> > > > > > > As of now, there are still odors/vapors that I cannot smell
> > - while
> >>>>>> > > > > > I
> >>>>>>> > > > > > > can distinguish that the odor of the air changes...I cannot
> >>>>>>> > > > > > > distiguish a specific scent associated with it. For quite
> > some
> >>>>>> > > > > > time,
> >>>>>>> > > > > > > this was the same with all odors, but some have improved
> > over time.
> >>>>>>> > > > > > >
> >>>>>>> > > > > > > In the summer of 08, the absence of smell changed for many
> > odors
> >>>>>> > > > > > for
> >>>>>>> > > > > > > me. Detergents and shampoos smelled of asphalt (if the
> > detergent
> >>>>>> > > > > > or
> >>>>>>> > > > > > > shampoo was non-floral, berry scented). Coffee, urine, body
> > odor,
> >>>>>>> > > > > > > diesel fuel, extreme skunk were also categorized as my "bad
> > smell",
> >>>>>>> > > > > > > which smells of chemicals, rotting flesh, playdough and
> > burnt >
> >>>>>>> > > > > > > coffee. In truth, this was (and continues to be) the most
> >>>>>>> > > > > > > disconcerting for me.
> >>>>>>> > > > > > >
> >>>>>>> > > > > > > In September, I visited my Neurologist who referred me to an
> >>>>>>> > > > > > > ENT...which was a miserable experience. He had me sniff
> > upwards of
> >>>>>>> > > > > > > 85 scratch and sniff cards and put salt and sugar on my
> > tongue. He
> >>>>>>> > > > > > > said that since I only missed 5 - that I should get over it.
> >>>>>>> > > > > > >
> >>>>>>> > > > > > > Initially, I felt deflated, as I consider myself to be the
> > opposite
> >>>>>>> > > > > > > of a hypochondriac - and I felt rather insulted. More
> > recently,
> >>>>>> > > > > > I've
> >>>>>>> > > > > > > seen a different ENT who seems open to entertaining my
> > symptoms and
> >>>>>>> > > > > > > has scheduled a sinus CT scan this week.
> >>>>>>> > > > > > >
> >>>>>>> > > > > > > Admittedly, there are times when it feels like I'm living
> > life with
> >>>>>>> > > > > > > the lights half on - however I have experienced some relief.
> > The
> >>>>>>> > > > > > > asphalt smell has diminished quite a bit. I can smell things
> > now >
> >>>>>>> > > > > > > that I couldn't six months ago. Sometimes it depends on the
> > day.
> >>>>>>> > > > > > > There are things that I still cannot smell at all (garbage),
> > and
> >>>>>>> > > > > > > there are times when the bad smell becomes overwhelming.
> >>>>>>> > > > > > >
> >>>>>>> > > > > > > Nonetheless, I feel happy to have stumbled upon this group -
> > as
> >>>>>> > > > > > it's
> >>>>>>> > > > > > > provided ideas and clinics to visit - and most of all a
> > glimmer of
> >>>>>>> > > > > > > hope.
> >>>>>>> > > > > > >
> >>>>>>> > > > > > > Thanks,
> >>>>>>> > > > > > > Jeannie
> >>>>>>> > > > > > >
> >>>>>> > > > > >
> >>>>>> > > > > >
> >>>>>> > > > > >
> >>>>>> > > > > >
> >>>>>> > > > > >
> >>>>> > > > >
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