Well I didn't use the beta for the second post but it took and now that
is how I am getting it done.

continuation: Nothing special , I am doing ok mentally and have great
faith in Dr Henkins theropy!! Several hundred words less :)
.....................
--- In dysosmia@yahoogroups.com, "harryony1" <harryony1@...> wrote:
>
> lost the continuation too !! ,,,, nothing great I am doing ok and have
faith in the theorpy.
>
> Harry
>
> --- In dysosmia@yahoogroups.com, "harryony1" harryony1@ wrote:
> >
> > Well, here it is and I did just get back from a 23 state tour of the
USA with 8750 miles of driving and 2075 nautical miles (Caribbean
Cruise) on the great Atlantic.
> > We left the great Northeast USA on Feb 17 and visited Dr. Harkin on
the 19th, a scheduled appointment. I took my daily report sheets which
indicated how I was smell/tasting for the previous several months from
my first meeting, percentage wise to what I thought. Update: apparentyly
I was not at 0 when first diagnosed, as I called it a sensation. These
sensations are taste/smell but unable to identify what I was eating. The
sensations were still there, however, now I have these distortions that
made bad smelly things the object of a dinner craving???? WOW I think I
blew the ole doc away when I suggested that a flavor that was "something
really bad" would have been a favorable meal. :) Well it certainly
answered a few questions for me.
> >
> > to be continued!! ( I have posted prior to this and lost lenghty
post)
> >
> > --- In dysosmia@yahoogroups.com, "O'Hare, Mick (RBI-UK)"
<Mick.O'Hare@> wrote:
> > >
> > > Back last week Harry. Hopefully you've missed the worst of the
winter.
> > >
> > > M
> > >
> > > > ----------
> > > > From: dysosmia@yahoogroups.com on behalf of Harry O
> > > > Reply To: dysosmia@yahoogroups.com
> > > > Sent: Monday, February 16, 2009 2:43 PM
> > > > To: dysosmia@yahoogroups.com
> > > > Subject: RE: [dysosmia] Re: Also new
> > > >
> > > > Sure thing Mick. Arn't you there now for business, if I recall
correctly.
> > > >
> > > > H
> > > >
> > > > --- On Mon, 2/16/09, O'Hare, Mick (RBI-UK) <Mick.O'Hare@> wrote:
> > > >
> > > >
> > > > From: O'Hare, Mick (RBI-UK) <Mick.O'Hare@>
> > > > Subject: RE: [dysosmia] Re: Also new
> > > > To: dysosmia@yahoogroups.com
> > > > Date: Monday, February 16, 2009, 4:46 AM
> > > >
> > > >
> > > > Harry, let me know how your DC visit goes
> > > >
> > > > Mick
> > > >
> > > > > ----------
> > > > > From: dysosmia@yahoogroup s.com on behalf of harryony1
> > > > > Reply To: dysosmia@yahoogroup s.com
> > > > > Sent: Sunday, February 15, 2009 11:06 PM
> > > > > To: dysosmia@yahoogroup s.com
> > > > > Subject: [dysosmia] Re: Also new
> > > > >
> > > > > I just knew one of the smells I get was something I used in my
> > > > > lifetime and you made that happen. Thank You. Playdough, duh!!
> > > > > Right now I am continuing the fried onion smell that I cooked
3 days
> > > > > ago, which is very strong. They did agree it was strong while
I was
> > > > > cooking them but presnetly they can not smell onion anymore.
Oh
> > > > > Well !
> > > > > The first ENT you went to, was just as insensitive as mine,
however
> > > > > he did 87 more discoveries then mine. Mine just said "you
should
> > > > > have it back in 12 months or less" and that was 2 years ago!!
Of
> > > > > course that was after the ct, mri, and poking a rod up my
nasel
> > > > > passage.
> > > > > Use the saline rinse and it should help with the odors.
> > > > > I believe that I am at the stage you are in but I came from
ZERO, so
> > > > > anything I can smell/taste now is a holiday ;). Few and far
inbetween
> > > > > but never-the-less still a happening even if it is at 25
percent.
> > > > > I am visiting Washington D.C. for my second appointment with
Dr.
> > > > > Henkin this thursday and will update from there.
> > > > >
> > > > > Good Luck
> > > > > Harry
> > > > >
> > > > > --- In dysosmia@yahoogroup s.com, "Jeannie" <jeanjeannie@ ...>
wrote:
> > > > > >
> > > > > > Hello to all. I've been reading posts on this for quite some
time -
> > > > >
> > > > > > but only became a member today. I wanted to thank those who
have
> > > > > > taken the time to share their story...as it provides insight
to me
> > > > > > (and how to apply to my personal case). While everyone's
story and
> > > > > > perspective is unique, it's good to know that there are
others who
> > > > > > provide support.
> > > > > >
> > > > > > As for me, my symptoms began in 5/2008. I'd been diagnosed
in
> > > > > > February with RSV and told to wait it out. In early May I
> > > > > > experienced such terrible congestion - I could barely
function. I
> > > > > > had used Flonase (combined with Allegra-D) in the past for
> > > > > allergies,
> > > > > > so my physician suggested to try Flonase again.
> > > > > >
> > > > > > Admittedly, it's difficult to determine the exact cause of
the
> > > > > > onset...whether it was due to the URI, or the Flonase. There
was
> > > > > one
> > > > > > time where I used it and experienced a radiating pain on the
left
> > > > > > side of my head and face. Within days, I noticed that I
could
> > > > > barely
> > > > > > smell anything.
> > > > > >
> > > > > > As of now, there are still odors/vapors that I cannot smell
- while
> > > > > I
> > > > > > can distinguish that the odor of the air changes...I cannot
> > > > > > distiguish a specific scent associated with it. For quite
some
> > > > > time,
> > > > > > this was the same with all odors, but some have improved
over time.
> > > > > >
> > > > > > In the summer of 08, the absence of smell changed for many
odors
> > > > > for
> > > > > > me. Detergents and shampoos smelled of asphalt (if the
detergent
> > > > > or
> > > > > > shampoo was non-floral, berry scented). Coffee, urine, body
odor,
> > > > > > diesel fuel, extreme skunk were also categorized as my "bad
smell",
> > > > > > which smells of chemicals, rotting flesh, playdough and
burnt >
> > > > > > coffee. In truth, this was (and continues to be) the most
> > > > > > disconcerting for me.
> > > > > >
> > > > > > In September, I visited my Neurologist who referred me to an
> > > > > > ENT...which was a miserable experience. He had me sniff
upwards of
> > > > > > 85 scratch and sniff cards and put salt and sugar on my
tongue. He
> > > > > > said that since I only missed 5 - that I should get over it.
> > > > > >
> > > > > > Initially, I felt deflated, as I consider myself to be the
opposite
> > > > > > of a hypochondriac - and I felt rather insulted. More
recently,
> > > > > I've
> > > > > > seen a different ENT who seems open to entertaining my
symptoms and
> > > > > > has scheduled a sinus CT scan this week.
> > > > > >
> > > > > > Admittedly, there are times when it feels like I'm living
life with
> > > > > > the lights half on - however I have experienced some relief.
The
> > > > > > asphalt smell has diminished quite a bit. I can smell things
now >
> > > > > > that I couldn't six months ago. Sometimes it depends on the
day.
> > > > > > There are things that I still cannot smell at all (garbage),
and
> > > > > > there are times when the bad smell becomes overwhelming.
> > > > > >
> > > > > > Nonetheless, I feel happy to have stumbled upon this group -
as
> > > > > it's
> > > > > > provided ideas and clinics to visit - and most of all a
glimmer of
> > > > > > hope.
> > > > > >
> > > > > > Thanks,
> > > > > > Jeannie
> > > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > >
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