lost the continuation too !! ,,,, nothing great I am doing ok and have faith in
the theorpy.

Harry

--- In dysosmia@yahoogroups.com, "harryony1" <harryony1@...> wrote:
>
> Well, here it is and I did just get back from a 23 state tour of the USA with
8750 miles of driving and 2075 nautical miles (Caribbean Cruise) on the great
Atlantic.
> We left the great Northeast USA on Feb 17 and visited Dr. Harkin on the 19th,
a scheduled appointment. I took my daily report sheets which indicated how I
was smell/tasting for the previous several months from my first meeting,
percentage wise to what I thought. Update: apparentyly I was not at 0 when
first diagnosed, as I called it a sensation. These sensations are taste/smell
but unable to identify what I was eating. The sensations were still there,
however, now I have these distortions that made bad smelly things the object of
a dinner craving???? WOW I think I blew the ole doc away when I suggested that
a flavor that was "something really bad" would have been a favorable meal. :)
Well it certainly answered a few questions for me.
>
> to be continued!! ( I have posted prior to this and lost lenghty post)
>
> --- In dysosmia@yahoogroups.com, "O'Hare, Mick (RBI-UK)" <Mick.O'Hare@>
wrote:
> >
> > Back last week Harry. Hopefully you've missed the worst of the winter.
> >
> > M
> >
> > > ----------
> > > From: dysosmia@yahoogroups.com on behalf of Harry O
> > > Reply To: dysosmia@yahoogroups.com
> > > Sent: Monday, February 16, 2009 2:43 PM
> > > To: dysosmia@yahoogroups.com
> > > Subject: RE: [dysosmia] Re: Also new
> > >
> > > Sure thing Mick. Arn't you there now for business, if I recall
correctly.
> > >
> > > H
> > >
> > > --- On Mon, 2/16/09, O'Hare, Mick (RBI-UK) <Mick.O'Hare@> wrote:
> > >
> > >
> > > From: O'Hare, Mick (RBI-UK) <Mick.O'Hare@>
> > > Subject: RE: [dysosmia] Re: Also new
> > > To: dysosmia@yahoogroups.com
> > > Date: Monday, February 16, 2009, 4:46 AM
> > >
> > >
> > > Harry, let me know how your DC visit goes
> > >
> > > Mick
> > >
> > > > ----------
> > > > From: dysosmia@yahoogroup s.com on behalf of harryony1
> > > > Reply To: dysosmia@yahoogroup s.com
> > > > Sent: Sunday, February 15, 2009 11:06 PM
> > > > To: dysosmia@yahoogroup s.com
> > > > Subject: [dysosmia] Re: Also new
> > > >
> > > > I just knew one of the smells I get was something I used in my
> > > > lifetime and you made that happen. Thank You. Playdough, duh!!
> > > > Right now I am continuing the fried onion smell that I cooked 3 days
> > > > ago, which is very strong. They did agree it was strong while I was
> > > > cooking them but presnetly they can not smell onion anymore. Oh
> > > > Well !
> > > > The first ENT you went to, was just as insensitive as mine, however
> > > > he did 87 more discoveries then mine. Mine just said "you should
> > > > have it back in 12 months or less" and that was 2 years ago!! Of
> > > > course that was after the ct, mri, and poking a rod up my nasel
> > > > passage.
> > > > Use the saline rinse and it should help with the odors.
> > > > I believe that I am at the stage you are in but I came from ZERO, so
> > > > anything I can smell/taste now is a holiday ;). Few and far inbetween
> > > > but never-the-less still a happening even if it is at 25 percent.
> > > > I am visiting Washington D.C. for my second appointment with Dr.
> > > > Henkin this thursday and will update from there.
> > > >
> > > > Good Luck
> > > > Harry
> > > >
> > > > --- In dysosmia@yahoogroup s.com, "Jeannie" <jeanjeannie@ ...> wrote:
> > > > >
> > > > > Hello to all. I've been reading posts on this for quite some time -
> > > >
> > > > > but only became a member today. I wanted to thank those who have
> > > > > taken the time to share their story...as it provides insight to me
> > > > > (and how to apply to my personal case). While everyone's story and
> > > > > perspective is unique, it's good to know that there are others who
> > > > > provide support.
> > > > >
> > > > > As for me, my symptoms began in 5/2008. I'd been diagnosed in
> > > > > February with RSV and told to wait it out. In early May I
> > > > > experienced such terrible congestion - I could barely function. I
> > > > > had used Flonase (combined with Allegra-D) in the past for
> > > > allergies,
> > > > > so my physician suggested to try Flonase again.
> > > > >
> > > > > Admittedly, it's difficult to determine the exact cause of the
> > > > > onset...whether it was due to the URI, or the Flonase. There was
> > > > one
> > > > > time where I used it and experienced a radiating pain on the left
> > > > > side of my head and face. Within days, I noticed that I could
> > > > barely
> > > > > smell anything.
> > > > >
> > > > > As of now, there are still odors/vapors that I cannot smell - while
> > > > I
> > > > > can distinguish that the odor of the air changes...I cannot
> > > > > distiguish a specific scent associated with it. For quite some
> > > > time,
> > > > > this was the same with all odors, but some have improved over time.
> > > > >
> > > > > In the summer of 08, the absence of smell changed for many odors
> > > > for
> > > > > me. Detergents and shampoos smelled of asphalt (if the detergent
> > > > or
> > > > > shampoo was non-floral, berry scented). Coffee, urine, body odor,
> > > > > diesel fuel, extreme skunk were also categorized as my "bad smell",
> > > > > which smells of chemicals, rotting flesh, playdough and burnt >
> > > > > coffee. In truth, this was (and continues to be) the most
> > > > > disconcerting for me.
> > > > >
> > > > > In September, I visited my Neurologist who referred me to an
> > > > > ENT...which was a miserable experience. He had me sniff upwards of
> > > > > 85 scratch and sniff cards and put salt and sugar on my tongue. He
> > > > > said that since I only missed 5 - that I should get over it.
> > > > >
> > > > > Initially, I felt deflated, as I consider myself to be the opposite
> > > > > of a hypochondriac - and I felt rather insulted. More recently,
> > > > I've
> > > > > seen a different ENT who seems open to entertaining my symptoms and
> > > > > has scheduled a sinus CT scan this week.
> > > > >
> > > > > Admittedly, there are times when it feels like I'm living life with
> > > > > the lights half on - however I have experienced some relief. The
> > > > > asphalt smell has diminished quite a bit. I can smell things now >
> > > > > that I couldn't six months ago. Sometimes it depends on the day.
> > > > > There are things that I still cannot smell at all (garbage), and
> > > > > there are times when the bad smell becomes overwhelming.
> > > > >
> > > > > Nonetheless, I feel happy to have stumbled upon this group - as
> > > > it's
> > > > > provided ideas and clinics to visit - and most of all a glimmer of
> > > > > hope.
> > > > >
> > > > > Thanks,
> > > > > Jeannie
> > > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > >
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