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Having a hard time of this!!   Message List  
Reply | Forward Message #3965 of 4133 |
RE: [dysosmia] Re: Having a hard time of this!!

Sounds like the conversations I had with him too.

The non-linear nature is frustrating isn't it? But it's how it was for me, if
it's any consolation.

Mick

> ----------
> From: dysosmia@yahoogroups.com on behalf of harryony1
> Reply To: dysosmia@yahoogroups.com
> Sent: Monday, December 15, 2008 3:05 PM
> To: dysosmia@yahoogroups.com
> Subject: [dysosmia] Re: Having a hard time of this!!
>
> Dr. Henkin....
>
> It was a short sweet and too the point telephone call focused on any
> side effects of theo !! Increased dosage to 300mg for a couple of
> weeks (for acclamation, I assume) and then up to 400mg daily. Will
> stick this out unless there are any sides that affect me. I am
> generally at 10/20 percent (a sensation but no identification) of
> what I am eating but wow when It goes to ZERO you know that the
> sensation is tasting something. Likewise when all of the sudden I
> get a bouquet of 60 to 80 percent its like flowers in the meadows!!
> however so brief its what makes me believe that it can not be a
> permanent block and the theropy may make a permanent difference as it
> has for you and others.
>
> Happy Holidays too All
> Harry
>
> --- In dysosmia@yahoogroups.com, "O'Hare, Mick (RBI-UK)"
> <Mick.O'Hare@...> wrote:
> >
> > Good news Harry, let us know how the chat with Dr Henkin goes.
> >
> > Mick
> >
> > > ----------
> > > From: dysosmia@yahoogroups.com on behalf of harryony1
> > > Reply To: dysosmia@yahoogroups.com
> > > Sent: Wednesday, December 10, 2008 7:10 PM
> > > To: dysosmia@yahoogroups.com
> > > Subject: [dysosmia] Re: Having a hard time of this!!
> > >
> > > Thanks Adam, you too Mick. My biggest issue is I just can't
> develop
> > > that "thick skin" but on the brighter side, I am up 95 per cent
> of
> > > the time! Would you believe I am baking Christmas Cookies today!!
> > > OH WELL! Tomorrow I report to Dr. H.
> > >
> > > Till Then
> > > Happy Holidays All (to the best we are able to enjoy)
> > >
> > > Harry
> > >
> > > --- In dysosmia@yahoogroups.com, "O'Hare, Mick (RBI-UK)"
> > > <Mick.O'Hare@> wrote:
> > > >
> > > > Hi Harry
> > > >
> > > > Agreed!
> > > >
> > > > M
> > > >
> > > > > ----------
> > > > > From: dysosmia@yahoogroups.com on behalf of harryony1
> > > > > Reply To: dysosmia@yahoogroups.com
> > > > > Sent: Friday, December 5, 2008 6:21 PM
> > > > > To: dysosmia@yahoogroups.com
> > > > > Subject: [dysosmia] Re: Having a hard time of this!!
> > > > >
> > > > > Mick et el,
> > > > >
> > > > > I think the hardest part is those who surround me claim they
> > > > > understand, but continue to be belligerent in there actions
> and
> > > > > statements.
> > > > > Although I express a downside I definitely will adhere to
> this
> > > > > routine prescribed, for years if necessary. It appears the
> only
> > > way
> > > > > to recover without using some radical drugs.
> > > > >
> > > > > Happier Holidays to All
> > > > > Harry O
> > > > >
> > > > > --- In dysosmia@yahoogroups.com, "O'Hare, Mick (RBI-UK)"
> > > > > <Mick.O'Hare@> wrote:
> > > > > >
> > > > > > Harry
> > > > > >
> > > > > > In my case there is no question that my recovery was not
> > > linear. I
> > > > > had those dreadful bouts where I thought it had all gone
> away. It
> > > was
> > > > > hard to deal with (as you are finding). But over the months
> the
> > > long-
> > > > > term trend was up. I didn't think I could stick it out, but I
> did.
> > > > > >
> > > > > > Mick
> > > > > >
> > > > > > > ----------
> > > > > > > From: dysosmia@yahoogroups.com on behalf of harryony1
> > > > > > > Reply To: dysosmia@yahoogroups.com
> > > > > > > Sent: Friday, December 5, 2008 3:55 PM
> > > > > > > To: dysosmia@yahoogroups.com
> > > > > > > Subject: [dysosmia] Having a hard time of this!!
> > > > > > >
> > > > > > > My stories are the same as past and I understand the ups
> and
> > > > > downs.
> > > > > > > However it is so hard when everything goes back to >
> ZERO ! !
> > > Its
> > > > > like
> > > > > > > the forbidden fruit of life. I was having sucesses of
> > > periodic
> > > > > > > sniffs of this and that and 1 or 2 days (not together) of
> 50
> > > > > percent
> > > > > > > on some foods, which never make sense/rhyme or reason,
> either
> > > > > > > gradually tapering off or suddenly gone! As most of you
> know
> > > I
> > > > > have
> > > > > > > been to Dr Henkin and am prescribed 100mg of
> theophenillin
> > > (?),
> > > > > theo
> > > > > > > 24 twice a day with breakfast and lunch. Nasel rinses in
> the
> > > am
> > > > > and
> > > > > > > pm , gently inhaling from the palm of my hand into each
> > > nostril
> > > > > with
> > > > > > > 8oz of water and a measure 1/4 teaspoon of salt (for the
> > > perfect
> > > > > > > saline mixture) and do intermittedly whenever during the
> day.
> > > I
> > > > > did
> > > > > > > have some lessor sucesses before my trip to D.C. Spicy
> foods
> > > were
> > > > > my
> > > > > > > salvation untill last week when I went to 0/0 (0 taste 0
> > > smell)
> > > > > > > again!! I have used my steroid spray with limitations as
> Dr
> > > > > Henkin
> > > > > > > mentioned that they will work but not necessarily as a
> > > permenant
> > > > > > > repair (healing). The very cold air outside, I am in the
> > > > > Northeast
> > > > > > > US 180 miles south of Montreal, seems to have a
> benificial
> > > > > influance
> > > > > > > when it comes to breathing, and yes I long for a breath
> of
> > > fresh
> > > > > > > mountain air as it all is the same to me now.
> > > > > > > I have a telcon with Dr. Henkin scheduled next week for
> my
> > > second
> > > > > > > contact with him since my Sept appointment. The one thing
> I >
> > > am
> > > > > sure
> > > > > > > he can not help with are these sudden outbreaks of demise.
> > > > > > >
> > > > > > > Harry
> > > > > > >
> > > > > > >
> > > > > > >
> > > > > > >
> > > > > > >
> > > > > >
> > > > > > r===================== DISCLAIMER ======================
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> Accordingly
> > > > > > any dissemination, distribution, copying or other use of
> this
> > > > > > message or any of its content by any person other than the
> > > Intended
> > > > > > Recipient may constitute a breach of civil or criminal law
> and
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> > > > > > strictly prohibited. If you are not the Intended Recipient,
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> > > > > > contact the sender as soon as possible.
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>



Tue Dec 16, 2008 10:28 am

Mick.O'Hare@...
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Message #3965 of 4133 |
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My stories are the same as past and I understand the ups and downs. However it is so hard when everything goes back to ZERO ! ! Its like the forbidden fruit...
harryony1
Offline Send Email
Dec 5, 2008
3:55 pm

Harry In my case there is no question that my recovery was not linear. I had those dreadful bouts where I thought it had all gone away. It was hard to deal...
O'Hare, Mick (RBI-UK)
Mick.O'Hare@...
Send Email
Dec 5, 2008
4:14 pm

Mick et el, I think the hardest part is those who surround me claim they understand, but continue to be belligerent in there actions and statements. Although I...
harryony1
Offline Send Email
Dec 5, 2008
6:21 pm

That's always been hard for me too. People just can't seem to understand... eventually it just sort of sinks in and you develop a thick skin for it. My...
Adam Frey
permeant1
Offline Send Email
Dec 9, 2008
3:57 am

Hi Harry Agreed! M...
O'Hare, Mick (RBI-UK)
Mick.O'Hare@...
Send Email
Dec 9, 2008
9:21 am

Thanks Adam, you too Mick. My biggest issue is I just can't develop that "thick skin" but on the brighter side, I am up 95 per cent of the time! Would you...
harryony1
Offline Send Email
Dec 10, 2008
7:10 pm

Good news Harry, let us know how the chat with Dr Henkin goes. Mick...
O'Hare, Mick (RBI-UK)
Mick.O'Hare@...
Send Email
Dec 11, 2008
10:17 am

Hi guys, just thought I'd weigh in with my reaction to Harry's predicament. I know exactly how you feel mate, you and I have a very similar story. I have...
R Overall
the_roozda
Offline Send Email
Dec 15, 2008
10:58 am

Richard I am curious to know why you would stop the theo? and what percentage of taste/smell do you believe you have with using the med and not using the...
harryony1
Offline Send Email
Dec 15, 2008
3:10 pm

Harry, I stopped the theo to see if I could live without taking drugs and still smell at an acceptable level. I don't know about you, but I'd much rather live...
R Overall
the_roozda
Offline Send Email
Dec 17, 2008
4:47 am

Richard, I am banking that it is the constant barrage that eventually will squelch the, what ever it is, from getting back up and covering my olfactory. I...
harryony1
Offline Send Email
Dec 17, 2008
12:51 pm

Yep Harry, I totally understand. And don't get me wrong, I'm not saying Theo is bad. I mean, it helped me tremendously I believe. The only reason I have ...
R Overall
the_roozda
Offline Send Email
Dec 21, 2008
6:48 am

Richard, Were you a patient of Dr. Henkin? You have stopped the med because it has helped you in 2 years or you have given up after taking it for two years...
harryony1
Offline Send Email
Dec 23, 2008
12:37 pm

yes i was a patient of Dr H. I believe it did help me. I stopped because I got to the point where i didn't feel i was improving, so I wanted to see if it would...
R Overall
the_roozda
Offline Send Email
Dec 26, 2008
10:57 am

Ok, till then and best of success (tasting). In conjuction I still do nasel rinses and take nasonex which apparently helps with the process. Harry ... where i...
harryony1
Offline Send Email
Dec 26, 2008
11:11 pm

Dr. Henkin.... It was a short sweet and too the point telephone call focused on any side effects of theo !! Increased dosage to 300mg for a couple of weeks...
harryony1
Offline Send Email
Dec 15, 2008
3:05 pm

Sounds like the conversations I had with him too. The non-linear nature is frustrating isn't it? But it's how it was for me, if it's any consolation. Mick...
O'Hare, Mick (RBI-UK)
Mick.O'Hare@...
Send Email
Dec 16, 2008
10:28 am

Well it is a consolation!! It is always a positive to know that your system is reacting in such a manner of someone who has had success while being treated by...
harryony1
Offline Send Email
Dec 16, 2008
1:00 pm

The good thing about theophylline is that it is cheap and well documented, it's been in use for decades so its side-effects are known. Stick with it Harry. M...
O'Hare, Mick (RBI-UK)
Mick.O'Hare@...
Send Email
Dec 16, 2008
1:06 pm

tks Mick. Next report after Feb 09 visit. Unless the roses come first!! Harry ... documented, it's been in use for decades so its side-effects are known. ......
harryony1
Offline Send Email
Dec 16, 2008
1:30 pm

Harry, I had a period of time where I felt like I was imagining being able to taste/smell something, then being absolutely sure I was, then I couldn't...
Franni
franni_nm
Offline Send Email
Dec 31, 2008
7:02 pm

Thanks Franni Up to 200mg of theophylline twice daily now and have been cheating on the rinsing proceedure that the Doc recommended... I have gone back to the...
harryony1
Offline Send Email
Dec 31, 2008
8:28 pm
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