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Reply | Forward Message #3887 of 4132 |
Re: New member introduction

Hi Anne!

We all understand you fear and depression. This condition is a lonely
one because hardly anyone...especially doctors...understand how
devastating it is. The only except is those of us who have had it.

So, know that this is a great place for asking ANY question! This is
an incredible support group.

Franni


--- In dysosmia@yahoogroups.com, "annegian" <annegian@...> wrote:
>
> So I'm not crazy. It's good to know.
>
> My story. About a year ago, I had a terrible cold including such a
stuffed up head I
> couldn't breathe. After about 5 days of being unable to pull any air
through my nose, I
> went through 5-7 days of having absolutely no sense of smell or
taste - nada - zip. As the
> senses came back, I noticed two things: Coffee smelled funny (and
slight difference in
> taste) and my sugar-free, caffeine-free diet Coke tasted mildly of
mold. I more or less
> lived with it and never really questioned it.
>
> About 8-10 weeks ago, my symptoms started to compound. It started
one day in the work
> cafeteria. I noticed a very unpleasant odor - never smelled it
before - a chemically smell
> with a slight undertone of ammonia. Then I noticed all my t-shirts
smelled funny. Then I
> noticed the dishwasher had the same odd aroma. Again I didn't really
think much about it.
> I've always had a keen sense of smell which my husband does not
have. I asked him and
> he didn't smell anything. Then I noticed that my bath wash smelled
funny (a different,
> sweet but unpleasant smell). Then I noticed that my hand wash had
that odd cloying smell.
>
> I started to complain more about it to my husband - asking him to
smell things for me.
> But still didn't put it all together.
>
> Then this week I had the "Oh &#*# - something is very wrong here".
Stopped at Starbucks,
> my husband bought a donut and I took one bite and the taste of that
bad smell just filled
> my mouth - I had to spit it out. A donut for crimeny sakes!! Then I
tried the tiniest crumb.
> Same thing. Now I know something is very wrong. I googled "olfactory
halluncinations"
> and here I am. Last night, at a Mexican restaurant, I found out that
cilantro tastes like
> glazed donut!! Wow - what a new world this is ;-)
>
> Spoke to my brother (an MD but not ENT specialist) last night and he
suggested that a
> virus could have damaged my nerve. The increase in abnormal smells
and tastes might
> suggest the nerves are trying to regenerate. But either way, I'm
calling my doctor today.
>
> What scares me is whether this may be permanent. It's like a time
bomb. What will I put in
> my mouth next that will taste so horrible I'll be spitting it out...
in a restaurant. Out last
> night, as I passed various restaurants in an outdoor shopping mall,
the smell was
> overwhelming. I felt like an idiot having to cover my nose with my
hands. Ordered my
> dinner and ended up eating rice - everything else has "essence of
cilantro" in it. Cilantro -
> one of my most favorite foods. No more Mexican for me.
>
> All my clothes stink. Most of my soaps and shampoos either stink or
don't smell the way
> they did. I'm a person who uses smell as one of my primary purchase
drivers. I buy things
> that smell nice. Now I only smell this horrible stench. I have those
lovely reed diffusers in
> almost every room. I now realize they've "turned" on me.
>
> Anyway, glad to find I'm not crazy, but if this is permanent, I'm
not sure I'll be able to
> survive it. Not sure if I'd rather have lost my sense of smell - but
as my world closes down,
> it's very depressing.
>
> Joining this group to get advice and look for similarities in cases
- and hopefully to read
> about stories of recovery. I have to have something to hold on to.
>
> Cheers,
> anne
>





Sun Oct 5, 2008 5:03 pm

franni_nm
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Forward
Message #3887 of 4132 |
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Hello Everyone, I stumbled across this group today after visting Dr. Wuensch's website on anosmia. It was a slow day at work so I have been doing so searching...
Jon Viglione
jonviglione
Offline Send Email
Mar 10, 2006
9:43 pm

Jon, I used Rhinocort Aqua (2 puffs in each nostril) for a year and half but remained anosmic. I am now taking Rhinocort 3 times a day (6 puffs in each...
Kevin Carrigan
kcarr0590
Offline Send Email
Mar 12, 2006
1:18 am

I have two questions: 1. When you say 6 puffs per nostril do you mean 6 puffs each Nostril three times a day or two puffs per nostril three times a day? 2. How...
s2french
badsniffer
Offline Send Email
Mar 12, 2006
3:29 am

Shannon, 1. 6 puffs or sprays in each nostril TOTAL per day. (2 puffs 3 times a day) 2. 3 bottles of Rhinocort per month. (1 every 10 days). I was anosmic for...
Kevin Carrigan
kcarr0590
Offline Send Email
Mar 12, 2006
5:30 am

Kevin, Thanks for the insight! I will try this when I get my next new bottle. I can't really go inverted at work, so I'll try two sprays in morning, two...
Jon Viglione
jonviglione
Offline Send Email
Mar 12, 2006
4:33 pm

Thank you so much!! Finally there is hope!! ... From: "Kevin Carrigan" <kcarr0590@...> To: <dysosmia@yahoogroups.com> Sent: Saturday, March 11, 2006...
s2french
badsniffer
Offline Send Email
Mar 12, 2006
5:51 am

Kevin, I am assuming that if my sinuses are normal, no inflammation or congestion, that this drug would not help me? Apparently, my olfactory nerve was...
flood farm
floodfarm2002
Offline Send Email
Mar 12, 2006
7:56 am

Jon, I do hope that Kevin's Rhinocort high-dose suggestion works for you. Had I known about this before my surgery I would have tried it. However, in my ...
Michael Russell
mrusitzky
Offline Send Email
Mar 13, 2006
2:52 pm

Thanks Michael. I will ask my ENT about this after my next office visit (inspired by this board and some success stories I've heard). I do live in St. Louis...
Jon Viglione
jonviglione
Offline Send Email
Mar 13, 2006
6:00 pm

So I'm not crazy. It's good to know. My story. About a year ago, I had a terrible cold including such a stuffed up head I couldn't breathe. After about 5 days...
annegian
Offline Send Email
Sep 19, 2008
2:51 pm

Hi Anne, check out my FAQ at http://personal.ecu.edu/wuenschk/ViralMick.htm It will relate to you I think. Mick ... r===================== DISCLAIMER...
O'Hare, Mick (RBI-UK)
Mick.O'Hare@...
Send Email
Sep 19, 2008
3:00 pm

Thanks all. I'm actually getting more depressed wondering if this is going to be a very long and arduous process. But I have my first appointment with the...
Anne Giansiracusa
annegian
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Sep 19, 2008
9:42 pm

Good luck, report back. Mick...
O'Hare, Mick (RBI-UK)
Mick.O'Hare@...
Send Email
Sep 22, 2008
8:37 am

No, you are NOT crazy but you may feel like it for a while. I'm afraid to say the EXACT thing happened to me and it went on over a year (still a little...
stannseniors
Offline Send Email
Sep 19, 2008
3:07 pm

Hello Anne Read on with what Mick has to offer, a great cronological of events that he has shared with us and his recovery. Also read past messages to learn...
harryony1
Offline Send Email
Sep 19, 2008
3:13 pm

Good luck Harry, I do hope it pays off for you. Keep us informed. Mick ... r===================== DISCLAIMER ====================== This message is intended...
O'Hare, Mick (RBI-UK)
Mick.O'Hare@...
Send Email
Sep 19, 2008
3:19 pm

Thanks Mick, I certainly will. Harry ... events ... made ... Dr. ... and ... Luck!! ... such a ... any ... (and ... of ... started ... shirts ... smelled ... ...
harryony1
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Sep 19, 2008
7:11 pm

Hey Harry, I too was inspired by Mick's story and made the pilgrimage to see Dr Henkin in DC. That was over 2 years ago and although I'm not at 100%, I am at a...
R Overall
the_roozda
Offline Send Email
Sep 20, 2008
11:17 am

Thank you Richard. I am in the northeast living in the Adirondack Mountains so getting there was never an issue, 8 hour drive. Insurance was however, and that...
harryony1
Offline Send Email
Sep 20, 2008
1:15 pm

Ah, you're a little closer than me. I flew from Australia! And no insurance for me either. But it was worth it to get on the road to recovery....
R Overall
the_roozda
Offline Send Email
Sep 20, 2008
9:52 pm

I may have used the lack of insurance as a delay (excuse) in hopes of a miraculus recovery. ;). I might be paying more for a hotel then Dr. Henkin fees! and...
harryony1
Offline Send Email
Sep 21, 2008
3:13 am

Hi Anne! We all understand you fear and depression. This condition is a lonely one because hardly anyone...especially doctors...understand how devastating it...
Franni
franni_nm
Offline Send Email
Oct 5, 2008
5:04 pm

Hang in there Anne, I lost mine in May of 2007, but I'm convinced mine is slowly coming back. Baby steps but progress!! Mel ... From: Anne Giansiracusa To:...
Melody Heller
melhell29
Offline Send Email
Sep 19, 2008
9:53 pm
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