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Where is Everybody   Message List  
Reply | Forward Message #3668 of 4132 |
Re: [dysosmia] Re: Where is Everybody

I'm still here and struggling more lately  My complete anosmia is due to a head injury last september.  I initially went through some serious grief and then panics about possible fire and gas leaks in my home.  I'm better with that but still have very painful moments when I realize that I am walking around with a complete absence of one of my senses and there is a whole realm of experience that I am missing.  I got a limeade yesterday and could taste the tartness but no lime flavor at all.  I still wear my perfume but can't smell it.  I can't smell food or coffee...just pleasurable and comforting things that are gone.  Ironically, I work with people who have sustained serious brain injuries and spinal cord injuries/paralysis from falls just like mine....I consciously tell myself I am very lucky to just have anosmia and vertigo...but it is still very difficult I can't know if my sense of smell will ever come back...so I live with a big question mark.  I guess this is a pity party but no one really wants to hear this or understands as it is not like having a visible impairment...it's just a sad absence.  My best to all.
 
----- Original Message -----
From: midnightdiamonds
Sent: Friday, April 04, 2008 8:45 PM
To: dysosmia@yahoogroups.com
Subject: [dysosmia] Re: Where is Everybody
 

I'm not aware of anyone thinking that using the pot or Simply Saline,
or other such products actually cures parosmia or phantosmia but I've
read plenty (elsewhere) of posts from people saying that using the
Simply Saline has actually helped them feel much better, and I've also
read a few that believe strongly that using the saline was a huge part
of their improvement. But note that I did say Simply Saline. I mean
that one specifically because it has a long snout that shoots the
saline higher into the nasal cavities than moisturizing salines like
Ocean or Ayr. I've not heard much, however, about the Neti Pot being
particularly successful although for many, it seems to make them feel
comfortable in the knowledge that they are cleaning their sinus
passages well (and I'm sure it is).

In my case, using the Simply Saline hasn't done much for me other than
make me feel I've been fair about cleaning or rinsing out the sinuses.
However, I believe those who say it has been helpful for them. It makes
complete sense that it would be helpful in some cases.

It's been about a year now for me and I have shown considerable
improvement but I seem to have reached a plateau. Sometimes I seem to
slip back a bit then improve a bit then slip back a bit. It's much
better now than it was a year ago but I'm wondering if I've almost
reached the final point of improvement. Even if that's true, though,
I'll take the bit of improvement I've had because there are at least
more foods I can eat now than I could last year at this time. Last year
I honestly figured I'd have to live the rest of my life never tasting
anything good again ever, but now I know there are many foods I can
handle. I'll accept that but continue to hope for further improvement.
There's always hope. I just keep hoping for everyone else to have at
least as much improvement as I have had, if not more. It's hard to be
patient about getting better when you have no way to know if you even
will improve, and I remember vividly how horrible the first six to
eight months of parosmia mixed with phantosmia was for me. Every day
there's some smell that still reminds me how bad it can get.

--- In dysosmia@yahoogroups.com, "David and Nancy Chilcote"
<nancyc310@...> wrote:
>
> Mine is not right after a year. My anniversary was 04/02/07 I hate
this
> anniversary.
> What should I expect next? Why does everybody think that doing the
> cleansing with the
> Pot and everything makes it good. I have not heard that it has worked
for
> anybody
>
>
>



Sat Apr 5, 2008 5:23 pm

djwokc57
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Message #3668 of 4132 |
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Dave, apparently some have missed my post. I have been away but saved all the reading and catching up!! The rinses are what diminishes the DYSOSMIA affliction...
harryony1
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Apr 23, 2008
7:42 pm

I'm still here and struggling more lately. My complete anosmia is due to a head injury last september. I initially went through some serious grief and then...
Doris Wise
djwokc57
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Apr 5, 2008
3:28 pm

It has been 1 year,,,and I still have the same problem, I have been trying a DETOX,,,cleanzzzzing my body Not, sure if it has helped,,,not sure if it is...
LDSMULCH@...
ldsmulch
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Apr 5, 2008
3:44 pm

Pam, I know the desperation of trying ANYTHING to get rid of this problem. Unfortunately, there is nothing that will "re-grow" the mylon on our olfactory...
stannseniors
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Apr 7, 2008
1:38 am

I have my anniversay on 4/2/2008 after 1 year. Trust me. Nothing works!!!!!!! ... From: stannseniors Date: 04/06/08 20:38:08 To: dysosmia@yahoogroups.com ...
David and Nancy Chilc...
nancyc310
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Apr 7, 2008
1:41 am

Nancy, the saline stopped working for me too. I don't know if you have considered seeing a sense of smell specialist, but Dr Leopold cured me. You might not...
Anne
christie5519
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Apr 7, 2008
2:32 am

I used the spray and rinse on and off through mine and have recovered most of my smell but mine was viral or afrin caused it, im not sure. But it seemed to...
Cyndi Harrington
nosferatu1642
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Apr 7, 2008
1:59 pm

I've lost mine 4 times and got it back only with antibiotics, used reluctantly as they mess up my stomach, wish there was another way. Still, at least I can...
pam bernstein
pamell_berns...
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Apr 21, 2008
4:49 pm

I am here. Have not gotten my smell back. Just moved to Chicago and it is like losing smell all over again. (It has been a little over a year). I have a...
gafoodies706@...
gafoodies
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Apr 21, 2008
4:53 pm

Well it has been a year for me too and my smell and taste is slowly coming back. It is still distorted but not as bad as it use to be. I continue with the...
Aline Bergemann
aline_bergemann
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Apr 22, 2008
4:38 am

Aline, It has been a year for me too....actually it was a year in March and that's when I noticed I could smell and taste more normally. It's still not %100 -...
stannseniors
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Apr 22, 2008
1:55 pm

In the US one can get generic Claritin at the Wal-Mart very cheap. Add some generic pseudoephedrine and you have Claritin-D. They make you sign for it, as...
Wuensch, Karl L
klwuensch
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Apr 23, 2008
12:54 am

Karl, If you live in Oregon as I do, you can't pseudephedrine over the counter anymore. You have to have a doctors prescription for it. I take a generic...
Aline Bergemann
aline_bergemann
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Apr 23, 2008
12:28 pm

Do you think this Claritin D may have better results than Nasonex, which I have been using for 3 months with saline rinses. Now very limited at times and...
harryony1
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Apr 23, 2008
8:10 pm

Probably not, but unless contraindicated it would not hurt to try it for a couple of weeks. I am supposed to stay away from the -D given my hypertension. ...
Wuensch, Karl L
klwuensch
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Apr 24, 2008
11:33 pm

Do you think this Claritin D may have better results than Nasonex, which I have been using for 3 months with saline rinses. Now very limited at times and...
harryony1
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Apr 23, 2008
8:10 pm

Taking Claritin-D is alot better than using nose sprays. If you can get it you should try it. It worked for me but I was taking it before I lost my sense of...
Aline Bergemann
aline_bergemann
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Apr 24, 2008
12:49 am

IF you can get it???? http://www.amazon.com/Claritin-D-Allergy- Congestion-Relief-Tablets/dp/B000QI31QG .... Oddly I just received this from Amazon!! --- In...
harryony1
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Apr 24, 2008
3:00 am

Harryony1 I just checked it out on Amazon and you are correct. And they will ship to Oregon! But in limited quantities. Thanks, Aline...
Aline Bergemann
aline_bergemann
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Apr 25, 2008
1:12 am

I found that by pasting claritin-d in a search engine..out of curosity to see if it could be an alternitive for me, however I too have a bp problem so I will...
harryony1
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Apr 26, 2008
12:43 pm
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