Hello,
Great Info!!!!!!!!!!!!!! I'm new to the group and have been lurking a bit.
Some of my background:
My name is Diana and I have been involved with True Dyslexia/ADD/ADHD and Autism
for around 40+ years. I have four children that use to be afflicted with these
illnesses; and yes, the school systems have paid plenty to educate my children.
All had one-on-one Schooling thru public shools with Certified Mastered Degreed
Special Ed Teachers (not aides) for a full 4-6 hours every day. My youngest son
had his own teacher follow him around from 5th-11th grade. All have gone on to
college with the exception of one. Only one actually finished College and is
now a Nurse. One left College 6 months prior to graduation and needs to go back
and finish. One is a contractor and self-employed and went to college for
Business Administration and one quit high school---my youngest girl (autistic).
Not a bad track record.......as I brush my shoulder. Unfortunately, all have
scars left behind from cruel, ignorant parents, administrators, teachers and
students and have had to work on self-esteem
through the years. Of course, how were they afflicted with all these
superhuman dual brain special gifts......genetics, of course. Yes gifts, since
all are ambidextrous(sp?), outgoing, and have IQ's over 130.

Is this the Dr. Levinson which wrote the book "Smart but Feeling Dumb"? My
oldest son looked at that book once and told me "that is just how I feel".
I bought that book and read it over and over about 18 years ago. He is an
amazing doctor and obviously right up-to-date with the latest research from Dr.
Paula Tallal. At that time he was using antihistamine/sudafed/robitussin/etc.
type meds and other OTC type cold remedy meds with great success and, of course,
now we know why they worked since these open up the inner ear canal from excess
pressure/water, etc. Dr. Tallal is a researcher who has a unique special
reading program/system. She uses a computer program with attached earphones in
a game format which slows down the sound consonants so younger children will be
able to hear them properly thus converting the sounds into the correct letters.
True dyslexics usually have early speech disorders, as well as, reversals. It's
an amazing system and not widely available but should be. I'll try to remember
the name of it, but I'm sure a search on the web would bring it up with her
name.

My brother is ADHD and one of my son's is ADD/Dyslexic. I truly believe that
ADHD/ADD are caused by allergies. I was able to correct my son's ADD through
diet....no dyes (for him at least).

Best of luck to you......sounds like you're absolutely on the right track. By
the way, avoidance and anxiety are "symptoms" not illnesses or diseases. I've
got those two problems caused by an ancient long time disease called "lazziness"
and "fear". LOL

You're really lucky to have found a good doctor.

I'm happy to share and help anyone if I can.



astynaz <astynaz@...> wrote:
Hi

I saw Dr Levinson. After testing, he did acknowledge that I have
Dyslexia stemming
from cerebellar vestibular(inner ear dysfunction). Most of the
results were abnormal
including the auditory scanning. He didn't test visual scanning
because I am not
a visual dyslexic. He didn't note anything on attention deficits. He
didn't think
I had ADD symptoms. He seemed to conclude that I had
Dyslexic,Dyspraxic,Sensory
Integration problems. He didn't even say anything about psychiatric
problems like
anxiety,dysthymia,and avoidant personality disorder like the
psychologist diagnosed
me with after LD/ADHD assessment last year. Dr Levinson just
confirmed what I already
knew about myself. Knowing that the Dyslexia cerebellar vestibular
expert determined
that I have cerebellar vestibular dysfunction made me feel better
that I was right
along. I feel vindicated. After I told him how psychiatrists thought
I had a slight
thought disorder(psychotic related) because of how I forget stuff
when I talk, he
said that they have the thought disorders. heheheheheh He seemed
really irritated
about how the psychiatrists misdiagnose me. I feel so great about
seeing him. The
visit was worth it! He prescribed me mescaline which is an motion
sickness medication,
and he prescribed Ginko,DMAE,and Piracetam which is used in Europe
for Dyslexia.
Man...I am so happy that I got this Dyslexia stuff resolved. I am
ready to ROCK!
:)






I wanted to show you the results of my cerebellar vestibular testing
to give you an idea of what cerebellar vestibular dysfunction is.
These are the problems that I have that were misdiagnosed as
schizoaffective bipolar disorder that include slight thought disorder
(psychotic-related) by psychiatrists in 1999 and 2002 and got me
diagnosed as inattentive type ADHD,Generalized Anxiety
Disorder,Dysthmic Disorder,Avoidant Personality Disorder Per
History:Developmental Coordination Disorder(notably in past)by
psychologist on LD/ADHD assessment in 2004. Cerebellar vestibular
dysfunction is
serious
stuff,and it can be misdiagnosed as mental illness. Dr Levinson has
noted that many Dyslexics' problems get mistaken for psychological
problems.


MY CEREBELLAR VESTIBULAR TESTING:


NEUROLOGICAL TESTING - consists of a series of standardized
neurological tests commonly administered to assess the status of the
integrated function of the cerebellar vestibular system as well as
other central nervous structures. Difficulties with any of these
tests indicates dysfunction within the CV or CNS systems.

Romberg Instability - eyes closed,right foot,left foot
Dysdiadochokinesis - Bilateral
Finger to finger sequencing problems - with distration
Finger to nose sequencing problems - eyes closed
tandem instability - placement
speech - borderline articulation problems, slow auditory input


Romberg instability refers to an inability to stand still with either
both feet together or on one foot, most commonly abnormal with eyes
closed

Dysdiadochokinesis indicates a difficulty with rapid alternating
movements, tested by rotating hands and forearms repeatedly with the
arms extended

Finger to finger sequencing tests the function of small finger muscle
in rapid succession, the performance of which is controlled by the CV
system.

Finger to nose sequencing tests the visuo-spatial perception and
proprioceptive feedback considered to be controlled by the cerebellum.

Tandem instability refers to a difficulty in heel-to-toe successive
walking.


ELECTRONYSTAGMOGRAPHY - is a standardized neurophysiological test in
which eye movements are induced and measured under various testing
conditions. Fine and reflexive eye movements are controlled by the
cerebellum and the vestibular system. As a result, the ENG can help
determine whether or not an inner ear abnormality exists.

Positional - normal
Rotational - abnormal - clockwise and counterclockwise - dysrhythmic
Saccade - abnormal
Optokinetic - abnormal
Gaze - normal

Rotational testing measures vestibular response to rotation. The
patient is rotated, which induces a rapid, rhythmic nystagmus. If the
nystagmus is dysrhythmic,hypo,or hyper, this is considered to be an
abnormal vestibular response.

Saccade testing - a dot moves randomly on the screen and the patient
must chase it with his/her eyes. A saccade is a quick,jerky eye
movement which positions a visual target on the retina. The
cerebellum plays a role in associating the functions of various brain
stem structures related to generating saccades

Pursuit testing - the dot cycles back and forth across the screen and
measures the patient's ability to make smooth eye movements. Smooth
pursuit eye movements continuously follow a a moving target with a
high acuity retinal region. An inability to produce smooth pursuit
movements is known to result from cerebellar dysfunction.

Optokinetic testing - a series of dots move off of the screen causing
the patient to rapidly refix his gaze, testing the ocular reflex.
Optokinetic testing involves continuous drifting and rapidly
resetting eye movements




AUDIOLOGICAL TESTING
3D Auditory Scanner - abnormal


POSTUROGRAPHY - Many of the symptoms in an inner ear disorder
(imbalance,dizziness,motion sickness,etc.) can sometimes result from
other illnesses as well (i.e. extreme stess and anxiety, dysfunction
of cerebral and other related CNS structures). Posturography aids in
this differentiation since since a vestibular dysfunction produces a
specific, quantifiable frequency and pattern of movement which is
distinct from that caused by other disorders.
It assesses overall balance function (sensory integration), vision
dependence, proprioception(internal senses)dependence,symmetry of
weight bearing,lateral sway,and overall assessment of vestibular
deficit

Sway Frequency - vestibular problems, borderline central cerebellar
problems, borderline motor cortex problems
Weight distribution - mild abnormal
Stability - mild abnormal
Lateral Sway - mild abnormal

Sway Frequency - this helps to determine the location of a balance
impairment.

Weight Distribution - the bearing of one's weight in an abnormal and
dysmetic fashion(i.e. to put more weight on the heels or left foot,
per se) can indicate either a cerebellar determined muscle tone
imbalance, or a vestibular imbalance.

Stability - this is a measure of the overall level of instability,
which is compared to normal subjects in a determination of postural
control.

Lateral Sway - a large degree of lateral sway is seen in intoxicated
subjects and results from vestibular impairment. This is also true
for the non-intoxicated patient suffering from a vestibular problem.




Raymond





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