I also have miyoshi myopathy. I am 57 and for the last 28 years I have been walking with knees hyperextended to keep my balance. I have been having pretty bad knee pain for the last couple of years. Anti-inflammatories work fairly well and I am careful not to sit for very long. I get up and walk around a bit every hour. I would also like to know if anyone has other suggestions. --- On Mon, 6/29/09, Rebecca Read <rebeccajread@...> wrote: From: Rebecca Read <rebeccajread@...> Subject: [dysferlin] Knee pain To: dysferlin@yahoogroups.com Date: Monday, June 29, 2009, 9:37 PM I think I have Myoshi dystrophy and have recently started experiencing more knee joint pain. Interestingly this has come on since I started driving again. I spent a year without a car (walking fairly short distances daily) and remained relatively fine, but now I'm walking much less and driving daily and I'm finding I have quite a bit of knee pain. I do try to be quite active (and possibly overdo it sometimes) and I worry a bit about the damage I'm doing to my joints given that they don't have as much muscle to support them anymore. Does anyone have any suggestions for knee/joint care, supplements/ medications maybe? Is this maybe just an adjustment period? Any suggestions appreciated.