Hi everyone; Since we have been having a conversation about stem cells which has gotten a little heated, I'd like to jump in and make a few remarks. First,...
I don't understand how emails slamming religion or attacking others are thought to add value to the readers of this message board. I also find it ironic how...
I don't think this group is on debate of religion. I, as you guys, have the disorder (although in a milder form), and I opened this can of worms because of the...
Matthew, Your only hope may be in science, my hope is in my Lord and Savior Jesus Christ who created science and the scientist. God Bless, Sharon To:...
Good morning      If only folks was like this, It would be a wonderful world. Cheers  Charles       This is so awesome!!! THIS IS A NICE...
I'm sure this has been discussed before, but does anyone have experience or suggestions about supplements. I've heard a little about creatin. What exactly...
Windows Live™: Keep your life in sync. http://windowslive.com/explore?ocid=TXT_TAGLM_WL_t1_allup_explore_022009 Hi, I take magnesium every day. It really...
I was in a moderate amount of pain today and I started to think about how in my life I have never known need. I had parents that were great providers and...
Thank you Casey for these words. I too believe that by still feeling "needed" is a major factor to our well being. Maybe we cannot physically help others but...
Right On!!! Thanks for your reply! Casey ... factor to our well being. Maybe we cannot physically help others but we can do more. Little things like helping...
I have made an observation and I wanted to get some opinions from the fine people that have been forced to learn the definition of dysferlin. Great, my spell...
Hi Folks, I've been following this message board for a while now and have found it rather insightful and encouraging -) I'm currently 27 and living in Sydney....
Enter your vote today! A new poll has been created for the dysferlin group: A quick poll for those with "Miyoshi myopathy". Current age and in what areas of...
dysferlin@yahoogroups...
Feb 22, 2009 3:50 pm
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Hello, in the last week my wedding band has fallen off twice (Ha Ha, not on purpose). I am 6' and currently weigh 175 pounds. I have lost some weight in the...
Casey, I first noticed I couldn't tip toe two years ago, I was 37. My Calves are mush and the muscles on the top of my legs are too, but only on the front...
Hi I'm Louise, this is my first post. I don't have LGMD, but my mum has suffered with it for about 25 years now. Interestingly, she only started to show...
Hi Louise, What your mum and aunt suffer from sounds exactly what my grandfather suffered from. They didn't have a diagnosis for him back when he first...
Hi Donna, Thanks for replying so quickly! You're the first family I've heard of who are dysferlin-positive as well, and it sounds like you have similar...
Louise, I live in Iowa, USA. You are also the first family I've come across that has what I have. Doctors just know that I don't have dysferlin deficiency and...
Hi Donna, I guess I assumed that having children made things worse because my mum started showing symptoms at her first pregnancy, and they got worse after her...
Louise, I can understand your paranoia about being suspect of your pains. Take comfort in how rare this is and that it is a recessive trait not likely to...
Just out of curiosity, what do you tell people when they ask questions? I know responses differ depending on how well you know the person asking the questions....
Hi Donna, I was just reading your posts about how to tell a curious person without going into details etc. This is funny because for me, i start to feel like i...
When people ask about my mum I say 'it's a muscle-wasting disease', but it depends who they are because some people are really curious and want you to explain...
Hi in response to the posts I have just come to realize very quickly how nosey and mean some people can be,but then I have learned that it is maybe because of...
Hi Louise  I was reading your post about how children have affected people with lgmd. I have 2 boys one age 11 and the other 4 I really didn't notice much...
Hi, I think this is a really interesting and important topic, i.e. how we talk about our experiences with this disorder and how other people see it. These...
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