Hello Everyone, I have high blood pressure and high cholesterol and am aware of at least two other Miyoshi patients who do as well. It occurred to me that...
I am O+ but definately have no sign of high blood pressure. Regards. Suzanne ... From: xron922 To: dysferlin@yahoogroups.com Sent: Monday, May 05, 2008 6:25 AM...
Hi Josh, I'm O-negative. I have heard about the blood-type dietary ideas. To me, they're not all that credible--they have been around at least 10 years....
Hello, My name is John. I'm 25 with Miyoshi Myopathy. I have noticed symptoms since I was 17. I have contacted MDA to see if they have any support groups...
Hey John! Welcome to the group here! I noticed symptoms when I was 21 and was diagnosed with Miyoshi Myopathy at 23. If you ever get a chance to make it out to...
Hello Ron, Thanks for your reply. I will definitely let you know when I make a trip out there. John xron922 <xron922@...> wrote: Hey John! Welcome to...
Hi, My name is Roxie and I am 30yrs old. I have 2 beautiful children ages 5 and 2 and a wonderful husband. I was diagnosed with LGMD2B in Sept. 2007. I was in...
... No I don't know about any resources. But both me and my sister have LGMDB and we are looking into this. If we get info I will let everyone know. Samantha...
Hi.......Just got this link from the Jain Foundation. Have enjoyed reading your postings. I was diagnosed 20 some years ago with Limb-girdle when they weren't...
i got this frm a friend's friend. apprently this disabled guy --uses a power chair. he is working on a masters in disability health. he needs some help...
No doubt -- to your point about exercise. It is good for the body. I would also say that good nutrition is vital. I'm talking about almost completely doing...
Hey everyone ! How is everyone doing. This might sould weird but has anyone had a hernia? I fell and developed one. I now have to have surgery. Has anyone else...
My 5 year old son has proximal muscle weakness, CK levels are at 4800, his liver enzymes are elevated and his muscle biospy showed mild muscle myopathy. He...
I'm in love with a man who has dysferlin muscular dystrophy. He is 20 and told me he was diagnosed when he was 18. I tried to find something on the web about...
Hi jschwab547, I'm sorry to hear about your son's problems. These sorts of problems can be very frustrating to diagnose and I can appreciate your frustration...
Hi Kat, Thanks for writing. Generally the progression of dysferlin-deficient muscular dystrophy is fairly slow, and I'm not aware of any reports that it...
I have LGMD2B, i was diagnosed about 4 years now (present age 21), but lately the symptoms of the disease have become more and more prominent and range from...
Hey, My name is John. I have Miyoshi Myopathy. I started noticing a difference in my leg strength when I was 17. I was used to play football and workout...
Hi I'm Patty and i too was recently diagnosed, but realized the unability to do stairs run jump tip toe ect. about 3-4 years ago.  Since my sister and i...
Hi Miriam, I understand your situation. I too have LGMD2B and have gained a LOT Of weight (I was misdiagnosed and treated with steriods) I went from a size...
Hello! John has LGMD 2A, but he has the same challenges as people with LGMD 2B. If you haven't already seen his YouTube videos, they might give those of you...
Hi my name is Roxie and I can relate to the muscle pain. I usually have this every afternoon after a busy day. and every morning before I get to the pool. I...
Sounds good to me.....naturally since I live there............I wonder how many of us there are ? ... From: John To: dysferlin@yahoogroups.com Sent: Tuesday,...
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