Hello everybody, I'm so relieved to find a newsgroup dealing with dysferlin deficiency. I'm very interested in what others are going through. Thank you Brad,...
Amanda. My name is Mathew and I havent introduce myself to the group yet.I am a resident of Ontario, and I have been diagnosed (sort of...) with Myoshi...
Hello Amanda, I actually was diagnosed with LGMD 2B a couple of years ago as well. At first, Doctors told me that I had Polymyositis but I did not respond to...
Hello! I haven't posted in over a year, but I do try to check in regularly. I guess there aren't many of us out there so this group is destined to move very...