hi!

I'm the second spanish in this group (It's not a bad average). I'm
afected by a muscular dystrofhy since i was a child. Now I'm 29 years
old and I haven't a definitive diagnostic but in the last months my
doctor talked me about a dysferlyn deficiency, maybe a "miyoshi
myopathy". Nowadays I don't use a wheelchair but I have too many
problems for walking long distances and, of course, I don't want to
hear anything about stairs.I don't know so much about dysferlin but I
want to collaborate with you in all I can do, and of course I would
be very happy to receive news of all of you.

Than you!

PD: Sorry for my englih

Juan