Thanks so much for organizing this group. I suffer from LGMD. I've
noticed problems since 1993, but it wasn't until last year that
doctors were able to diagnose me and figure out what was going on. I
am 44 and am gradually losing my ability to climb stairs, and walking
is becoming difficult.
Please feel free to e-mail me with any questions or comments you may
have, and let me know if there's anything I can do to help my
condition -- or even to get around better.
Thanks again for creating this very important group.