dysferlin : Message: stats

dysferlin · Dysferlin Deficiency

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Message #56 of 592 |

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Thanks for the help everyone.

Tue Mar 19, 2002 3:46 am

"fretmaster6" <shmookie@...>

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Message #56 of 592 |

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Does anyone have the stats concerning the number of folks in the US with dysferlinopathy ? Just curious . I emailed the MDA and they actually referred me to...	fretmaster6	Mar 14, 2002 12:52 am
... There isn't much in the way of reliable data (at least in the US) partly because there isn't any central place to collect it. Statistics collected on the...	baw1064	Mar 15, 2002 6:54 am
Thanks for the reply Brad. It is very much appreciated. Maybe I'm naive , but I was very surprised the MDA didn't have any answers. Thanks again for your time....	fretmaster6	Mar 15, 2002 5:28 pm
Thanks for the reply Brad. It is very much appreciated. Maybe I'm naive , but I was very surprised the MDA didn't have any answers. Thanks again for your time....	fretmaster6	Mar 15, 2002 5:33 pm
Would it be appropriate to question the Neurological Society, or whatever it's called? Or, maybe better - to submit a questionaire for sending to their members...	jerrywilliams2 nevadanjw	Mar 15, 2002 6:43 pm
It's true that there aren't good epidemiological studies for many of the rarer subtypes of muscular dystrophy. Dr. Jerry Mendell at Ohio State University...	Sharon Hesterlee shesterlee	Mar 15, 2002 9:10 pm
Thanks for the help everyone....	fretmaster6	Mar 19, 2002 3:46 am