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dysferlin · Dysferlin Deficiency
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Knee pain   Message List  
Reply Message #505 of 631 |
Re: [dysferlin] Knee pain

I also have miyoshi myopathy. I am 57 and for the last 28 years I have been walking with knees hyperextended to keep my balance. I have been having pretty bad knee pain for the last couple of years. Anti-inflammatories work fairly well and I am careful not to sit for very long. I get up and walk around a bit every hour. I would also like to know if anyone has other suggestions.

--- On Mon, 6/29/09, Rebecca Read <rebeccajread@...> wrote:

From: Rebecca Read <rebeccajread@...>
Subject: [dysferlin] Knee pain
To: dysferlin@yahoogroups.com
Date: Monday, June 29, 2009, 9:37 PM

I think I have Myoshi dystrophy and have recently started experiencing more knee joint pain. Interestingly this has come on since I started driving again. I spent a year without a car (walking fairly short distances daily) and remained relatively fine, but now I'm walking much less and driving daily and I'm finding I have quite a bit of knee pain. I do try to be quite active (and possibly overdo it sometimes) and I worry a bit about the damage I'm doing to my joints given that they don't have as much muscle to support them anymore. Does anyone have any suggestions for knee/joint care, supplements/ medications maybe? Is this maybe just an adjustment period? Any suggestions appreciated.




Tue Jun 30, 2009 1:05 am

kimberly.nie...
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Message #505 of 631 |
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I think I have Myoshi dystrophy and have recently started experiencing more knee joint pain. Interestingly this has come on since I started driving again. I...
Rebecca Read
rebeccajread
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Jun 29, 2009
9:59 pm

I also have miyoshi myopathy. I am 57 and for the last 28 years I have been walking with knees hyperextended to keep my balance. I have been having pretty bad...
Kimberly Niehaus
kimberly.nie...
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Jun 30, 2009
3:11 am

Thanks for your message Kimberly. It's really good to know that you are still walking with Myoshi. I'm 31 now and seem to be progressing/degenerating...
Rebecca Read
rebeccajread
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Jun 30, 2009
7:19 am
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