Hi, my name is Elaine. I am 35 years old and from Ireland.  I am Liam's sister, who has also joined this website. I hav e had myopathy for the last 10 years and have recently being going for testing.  I have had genetic testing done in Newcastle, England and the results have shown that i am missing the Dysferlin Gene. I have weakness in the legs and now arms and back.  I would like to get in contact with any other suffers out there who also has this.  i would like to know how limited other people are and what limbs of their's are affected. 

 

Hope to chat soon.

 

Elaine.