Hello everyone. I haven't posted in a while and I always get nervous when I do.
I guess because I'm afraid I can't convey what I would like to. With that in
mind I have a couple of things to comment on.
Louise had commented on how great this group is and I have to second that
motion. It's comforting to know that other people are going thru the same
thing. I feel like I have gotten more information about this condition from
this group than from all the other sites I have come across.
What to say to folks that ask...
I can't recall any strangers asking about my condition when I'm just out and
about. I was in the hospital last month for a hystorectomy, and that was the
first time I have been around folks that didn't know what was going on with me.
I found myself wanting to tell them all about what's happened to me in the last
two years. I live in a pretty small town in Southeast Oklahoma and I see that my
Friends and "Friends" don't really know what to say. My best friend told me not
to long ago that it just freaks her out and she hasn't been around much because
she doesn't know what to do. I was up running around, taking care of my dad,
who has MS, hiking and just out and about all the time two years ago. Now I am
unable to stand by myself and am in a wheelchair all the time. I have pretty
much gotten over the whole thing, but I don't think my friends have.

On a more positive note...I went shopping for clothes today for the first time
since being in a wheelchair. You have to look at clothing much differently when
you shop to be sitting down....It was a bit of a chore, but my wonderful
boyfriend helped me and I got a few new outfits.

One last thing. I mentioned a while back that you never see people in
wheelchairs on game shows. I was watching the Price is Right the other day and
lo and behold....they called a woman in a wheelchair.

I'm going to do the genetic testing with the Jain Foundation as soon as I can
get everything coordinated.
Okay, that's all I have to comment on in this posting. Ya'll take care.
Christina