Casey,
I first noticed I couldn't tip toe two years ago, I was 37. My Calves are mush
and the muscles on the top of my legs are too, but only on the front side. I
can feel the weakness going into my arms in the last 4 months. I don't know if
it's because the onset is later than most of the other folks on this site, but
mine seems to be progressing pretty quick.

Christinabelle


--- On Sun, 2/22/09, bowieinc <bowieinc@...> wrote:

> From: bowieinc <bowieinc@...>
> Subject: [dysferlin] My wedding ring keeps falling off!
> To: dysferlin@yahoogroups.com
> Date: Sunday, February 22, 2009, 10:19 AM
> Hello, in the last week my wedding band has fallen off twice
> (Ha Ha, not on purpose). I am 6'
> and currently weigh 175 pounds. I have lost some weight in
> the past couple of months and
> this has worried me some. I have been aware of my calves
> being absent for about 5 years.
> Previously in a post I thought it was earlier, but I looked
> back at when I went to see the first
> doc and it was in 2004. Anyway, I was wondering about the
> progression and if it is possible
> that after all this time am I starting to lose muscle in my
> forearms and hands. Has this
> happened to anyone where symptoms where years apart? I
> created a poll and I thought I
> could see if there where a large # of people over 30 that
> had more symptoms than people
> under 30. If this proves to be the case in my mind this
> would mean more of a chance for
> progression beyond what I have experienced so for. Thanks
> for any input you may have.
>
> Have a sweet, sweet day full of sweetness. Not sweet like
> flowers in the spring, but sweet like
> an incredible guitar solo.
> Casey