Christina,
 
I am 56 will be 57 years old this year.  I started having problems in 1985.  I have gone through 2 biopsies and many tests and have not had a specific diagnosis.   I am now having the blood work done and tested by the Jain Foundation.  My doctor feels that I have LGMD but won't know for sure until the results.  I just want you to know that life is still wonderful for me after all these years.  Yes, I went through the depression and anger and "why me".  But God has been faithful and I have continued to live a wonderful life.  I've had to make lots of adjustments but I am still here enjoying life.  I have raised my children and enjoyed my grandchildren (and still do).  I guess what I'm trying to say is just hang in there.  You will have days when you think you can't go on.  Count your blessings and keep going!  Don't stop.  Stay involved.  We certainly don't understand why these things happen but we can learn from them.  
 
Have a wonderful day,
Sharon 

> To: dysferlin@yahoogroups.com
> From: okchristinabelle@...
> Date: Thu, 8 Jan 2009 21:57:11 +0000
> Subject: [dysferlin] New Member Posting
>
> Hello everyone, my name is Christina Ray,39, and I live in S.E.
> Oklahoma. I FINALLY got my diagnosis yesterday at the MDA Clinic in
> Oklahoma City. I have LGMD2B. My first symptom was May of 2007, I
> went to tip-toe to turn off a ceiling fan and couldn't. I waited
> until October, when I started falling down to go to the doctor, and
> have been waiting a diagnosis ever since. Well, now I have
> it....little bit of a bummer!! Hoping that I can connect with people
> here, make friends and find some hope. I have a hard time getting to
> my computer to post, but I promise I will make the effort everyday
> that I can to read postings and be an active part of this group.
> Looking forward to getting to know ya'll.
> Christina
>
>
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