From: Mathew <matanas@...>
Subject: Re: [dysferlin] New Member Posting
To: dysferlin@yahoogroups.com
Date: Thursday, January 8, 2009, 11:02 PM

Welcome to the group Christina.

wondering how you got diagnosed, with biopsy or dna analysis?

 

----- Original Message -----

From: Christina Ray

To: dysferlin@yahoogrou ps.com

Sent: Thursday, January 08, 2009 1:57 PM

Subject: [dysferlin] New Member Posting

Hello everyone, my name is Christina Ray,39, and I live in S.E.
Oklahoma. I FINALLY got my diagnosis yesterday at the MDA Clinic in
Oklahoma City. I have LGMD2B. My first symptom was May of 2007, I
went to tip-toe to turn off a ceiling fan and couldn't. I waited
until October, when I started falling down to go to the doctor, and
have been waiting a diagnosis ever since. Well, now I have
it....little bit of a bummer!! Hoping that I can connect with people
here, make friends and find some hope. I have a hard time getting to
my computer to post, but I promise I will make the effort everyday
that I can to read postings and be an active part of this group.
Looking forward to getting to know ya'll.
Christina