Search the web
Sign In
New User? Sign Up
dysferlin · Dysferlin Deficiency
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Hear how Yahoo! Groups has changed the lives of others. Take me there.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
New Member Posting   Message List  
Reply | Forward Message #388 of 592 |
Hello everyone, my name is Christina Ray,39, and I live in S.E.
Oklahoma. I FINALLY got my diagnosis yesterday at the MDA Clinic in
Oklahoma City. I have LGMD2B. My first symptom was May of 2007, I
went to tip-toe to turn off a ceiling fan and couldn't. I waited
until October, when I started falling down to go to the doctor, and
have been waiting a diagnosis ever since. Well, now I have
it....little bit of a bummer!! Hoping that I can connect with people
here, make friends and find some hope. I have a hard time getting to
my computer to post, but I promise I will make the effort everyday
that I can to read postings and be an active part of this group.
Looking forward to getting to know ya'll.
Christina




Thu Jan 8, 2009 9:57 pm

okchristinab...
Offline Offline
Send Email Send Email

Forward
Message #388 of 592 |
Expand Messages Author Sort by Date

Hello everyone, my name is Christina Ray,39, and I live in S.E. Oklahoma. I FINALLY got my diagnosis yesterday at the MDA Clinic in Oklahoma City. I have...
Christina Ray
okchristinab...
Offline Send Email
Jan 9, 2009
1:14 am

Welcome to the group Christina. wondering how you got diagnosed, with biopsy or dna analysis? ... From: Christina Ray To: dysferlin@yahoogroups.com Sent:...
Mathew
vlacas2002
Offline Send Email
Jan 9, 2009
1:59 am

Hi christina   My name is Patty I'm 28 from Texas and was diagnosed last november with the same thing.  Although i know what a bummer this is. keep your...
patty martinez
pattymartine...
Offline Send Email
Jan 9, 2009
5:20 am

Just wondering if I registered correctly and if any one  has  gotten my original posting. Christinabelle Just wondering if I registered correctly and if any...
Christinabelle
okchristinab...
Offline Send Email
Jan 9, 2009
4:33 pm

Hi Christina, I'm Brad, the group moderator. Welcome to the group. The reason people didn't get your post for a while is that for new member, I have the...
baw1064
Offline Send Email
Jan 9, 2009
4:42 pm

Christina, I am 56 will be 57 years old this year. I started having problems in 1985. I have gone through 2 biopsies and many tests and have not had a...
Sharon Pace
kigcr
Offline Send Email
Jan 9, 2009
4:33 pm
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help