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dysferlin · Dysferlin Deficiency
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Prednisone   Message List  
Reply | Forward Message #374 of 592 |
Re: [dysferlin] Re: Prednisone

My doctor wants me to take if for a month...I don't think I'm going to take it.  I've heard from several people now that this product has only negative effects.  I really appreciate your input on this stuff. Thank You very much!   = )

--- On Wed, 10/15/08, xron922 <xron922@...> wrote:
From: xron922 <xron922@...>
Subject: [dysferlin] Re: Prednisone
To: dysferlin@yahoogroups.com
Date: Wednesday, October 15, 2008, 10:30 PM

I tried it when i was first diagnosed with the disease. Didn't help at
all but I got a bunch of side effects from it. There are lots of
adverse effects when taken at high doses and prolonged periods. I was
on it for about 6 months at high doses and then tapered off of it over
a year.

--- In dysferlin@yahoogrou ps.com, "bluedestin" <bluedestin@ ...> wrote:
>
> My doctor just prescribed prednisone. Has anyone taken this stuff? What
> were your experiences with it?
>
Thu Oct 16, 2008 4:49 pm

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bluedestin
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Forward 		Message #374 of 592 |
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My doctor just prescribed prednisone. Has anyone taken this stuff? What were your experiences with it?... 		bluedestin
Offline Send Email 		Oct 16, 2008
3:53 am

I tried it when i was first diagnosed with the disease. Didn't help at all but I got a bunch of side effects from it. There are lots of adverse effects when...
xron922
Offline Send Email 		Oct 16, 2008
5:30 am

My doctor wants me to take if for a month...I don't think I'm going to take it.  I've heard from several people now that this product has only negative...
John B
bluedestin
Offline Send Email 		Oct 16, 2008
4:49 pm

With all due respect to your doctors, I think it borders on malpractice at this point to prescribe prednisone to patients with dysferlin deficiency (i.e.,...
Thayer, Joshua
joshtc3
Offline Send Email 		Oct 16, 2008
5:51 pm

Dear Joshua,   Thank you for your opinion. I have made my decision, no bad pred for me!  By chance have you taken CoQ10 and creatine? If so, did you notice...
John B
bluedestin
Offline Send Email 		Oct 16, 2008
6:20 pm

I am a doctor, although not a neuromuscular specialist. But even among neuromuscular specialists there is alot of controversy on how to manage this disease as...
xron922
Offline Send Email 		Oct 17, 2008
4:23 pm

I agree. I have tried CoQ10, and am taking it now again at a higher dose then before. I am also trying Selenium now and intend to try Creatine again (I tried...
Thayer, Joshua
joshtc3
Offline Send Email 		Oct 17, 2008
4:52 pm

I have fallen too, many times.  So far I have been very lucky, no busted bones.  Knock on wood.  Thanks for your input on the meds. ... From: Thayer, Joshua...
John B
bluedestin
Offline Send Email 		Oct 17, 2008
11:33 pm

Yeah, I've tried CoQ10 and Creatine off and on myself.  I didn't noticed any change while I was taking it.  However, I noticed that getting enough sleep has...
John B
bluedestin
Offline Send Email 		Oct 17, 2008
11:41 pm
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