I tried it when i was first diagnosed with the disease. Didn't help at all but I got a bunch of side effects from it. There are lots of adverse effects when...

My doctor wants me to take if for a month...I don't think I'm going to take it.  I've heard from several people now that this product has only negative...

With all due respect to your doctors, I think it borders on malpractice at this point to prescribe prednisone to patients with dysferlin deficiency (i.e.,...

Dear Joshua,   Thank you for your opinion. I have made my decision, no bad pred for me!  By chance have you taken CoQ10 and creatine? If so, did you notice...

I am a doctor, although not a neuromuscular specialist. But even among neuromuscular specialists there is alot of controversy on how to manage this disease as...

I agree. I have tried CoQ10, and am taking it now again at a higher dose then before. I am also trying Selenium now and intend to try Creatine again (I tried...

I have fallen too, many times.  So far I have been very lucky, no busted bones.  Knock on wood.  Thanks for your input on the meds. ... From: Thayer, Joshua...

Yeah, I've tried CoQ10 and Creatine off and on myself.  I didn't noticed any change while I was taking it.  However, I noticed that getting enough sleep has...