If you are interested in teleconferencing there is a place where you
can get free access to a conference call line so that everyone can
call into one place and talk. The only cost will be the long
distance charges to each person to call into the conference line.

Here is the link for the conference call site:
https://www.instantconference.com/

Hope this help!!!

Laura

--- In dysferlin@yahoogroups.com, "xron922" <xron922@...> wrote:
>
> i think teleconferencing or even online video conferencing for
people
> with microphones/cams would be a great idea.
>
> --- In dysferlin@yahoogroups.com, "Thayer, Joshua" <jthayer@> wrote:
> >
> > John,
> >
> > I think this is a great initiative. I have thought about doing
> > something similar in Boston, and I spoke with the MDA
representative,
> > but all she said was that there is no such group and she doesn't
know
> > any other Miyoshi or LGMDIIB patients out here, so I hit some
what of a
> > dead end. She did introduce my wife and me to a man with
Friedreich's
> > Ataxia and his wife, and we've built a friendship and have found
it to
> > be very helpful with respect to general disability issues, but I
can
> > imagine a more specific support group would be great.
> >
> > So, why all this rambling background? Well, I was wondering if it
> > wouldt make sense to set up a call in number for your meetings.
Perhaps
> > not this one, but for future ones. Or, so as not to impose on
your local
> > group, we could maybe just set up a monthly call in
teleconference for
> > interested people. I suppose there is some risk of it getting to
big,
> > but I doubt it given the number of us - especially if it is
scheduled
> > regularly.
> >
> > What do you (and others) think of that?
> >
> > Regards,
> >
> > Josh
> >
> > Joshua M. Thayer
> > Edwards Angell Palmer & Dodge LLP
> > 111 Huntington Avenue at Prudential Center
> > Boston, Massachusetts 02199-7613
> > Direct: 617 239-0518; Fax: 617 227-4420
> > www.eapdlaw.com <http://www.eapdlaw.com/>
> >
> >
> >
> >
> > ________________________________
> >
> > From: dysferlin@yahoogroups.com
> > [mailto:dysferlin@yahoogroups.com] On Behalf Of John
> > Sent: Tuesday, August 19, 2008 2:05 AM
> > To: dysferlin@yahoogroups.com
> > Subject: [dysferlin] New Support Group Available
> >
> >
> >
> > This is a pdf file I created for the support group. What do
you
> > think?
> >
> > http://www.geocities.com/bluedestin/SupportGroup.pdf
> > <http://www.geocities.com/bluedestin/SupportGroup.pdf>
> >
> >
> >
> >
> >
> >
> > _______________________
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