Search the web
Sign In
New User? Sign Up
dysferlin · Dysferlin Deficiency
  • Members Only
  • Post
  • Files
  • Photos
  • Database
  • Polls
  • Members
  • Calendar
  • Promote
  • Groups Labs (Beta)
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Message search is now enhanced, find messages faster. Take it for a spin.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

   Messages Help
Message #
Search:
Advanced
Testing for a Diagnosis   Message List  
Reply | Forward Message #364 of 592 |
Limb Girdle & Distal Support Group in Arizona

First support group meeting on 9/20/08, Saturday at 1:00pm - 2:30pm. Meeting will take place in Glendale Public Library's large meeting room. The purpose of the first meeting is to get to know each other and share thoughts. Please contact me for more information if you plan on coming.
 
Glendale Public Library
5959 W Brown St
Glendale, AZ 85302
(623) 930-3530
Thu Aug 14, 2008 9:20 am

Show Message Option
bluedestin
Offline Offline
Send Email Send Email

Forward 		Message #364 of 592 |
Expand Messages Author Sort by Date

Hi all, I have had quite a few tests including an EMG which indicated that more muscles are affected than what I first thought. I only thought my calf muscles... 		DeejLouise
Offline Send Email 		Aug 3, 2008
8:05 pm

Hi there Donna. I'm sorry to hear that you are going through this as well. In my case, it took doctors 3 years before they gave me a diagnosis. I have had...
mmejia_28
Offline Send Email 		Aug 3, 2008
10:38 pm

I have had numerous tests.  Blood test, emg, and other misc tests.  The final test was the biopsy.  That was the test that determined for sure that I had...
John B
bluedestin
Offline Send Email 		Aug 4, 2008
4:47 am

Hi Donna, I agree that you should contact the Jain Foundation about getting a mutational analysis done. Muscle biopsies are typically done to test for the...
Thayer, Joshua
joshtc3
Offline Send Email 		Aug 4, 2008
2:33 pm

I will definitely keep you posted on my progress. I actually registered with the Jain Foundation yesterday and they will be calling me tomorrow to discuss my...
DeejLouise
Offline Send Email 		Aug 4, 2008
11:40 pm

Hey donna! i agree with others that the staff at the Jain Foundation are awesome. I originally had CPKs 10,000+ and muscle biopsies in the legs which showed...
xron922
Offline Send Email 		Aug 5, 2008
3:27 am

GREAT news! I have located a place to host a support group for Distal MD & LGMD! I will hold meetings at the Glendale Public Library in Glendale, AZ. The room...
John B
bluedestin
Offline Send Email 		Aug 5, 2008
11:08 pm

soooo sorry I live in Tucson.......... ... From: John B To: dysferlin@yahoogroups.com Sent: Tuesday, August 05, 2008 4:08 PM Subject: [dysferlin] Distal MD &...
Debra
dbd19512002
Offline Send Email 		Aug 7, 2008
4:08 pm

First support group meeting on 9/20/08, Saturday at 1:00pm - 2:30pm. Meeting will take place in Glendale Public Library's large meeting room. The purpose of...
John B
bluedestin
Offline Send Email 		Aug 14, 2008
9:20 am
< Prev Topic  |  Next Topic >
Message #
Search:
Advanced
Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help