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Reply | Forward Message #363 of 592 |
Re: [dysferlin] Distal MD & LGMD Physical Support Group Update

soooo sorry  I live in Tucson..........
 
 
----- Original Message -----
From: John B
Sent: Tuesday, August 05, 2008 4:08 PM
Subject: [dysferlin] Distal MD & LGMD Physical Support Group Update

GREAT news! I have located a place to host a support group for Distal MD & LGMD! I will hold meetings at the Glendale Public Library in Glendale, AZ. The room can hold up to 30 people. Now I just need to add members.
Thu Aug 7, 2008 4:11 pm

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dbd19512002
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Forward 		Message #363 of 592 |
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Hi all, I have had quite a few tests including an EMG which indicated that more muscles are affected than what I first thought. I only thought my calf muscles... 		DeejLouise
Offline Send Email 		Aug 3, 2008
8:05 pm

Hi there Donna. I'm sorry to hear that you are going through this as well. In my case, it took doctors 3 years before they gave me a diagnosis. I have had...
mmejia_28
Offline Send Email 		Aug 3, 2008
10:38 pm

I have had numerous tests.  Blood test, emg, and other misc tests.  The final test was the biopsy.  That was the test that determined for sure that I had...
John B
bluedestin
Offline Send Email 		Aug 4, 2008
4:47 am

Hi Donna, I agree that you should contact the Jain Foundation about getting a mutational analysis done. Muscle biopsies are typically done to test for the...
Thayer, Joshua
joshtc3
Offline Send Email 		Aug 4, 2008
2:33 pm

I will definitely keep you posted on my progress. I actually registered with the Jain Foundation yesterday and they will be calling me tomorrow to discuss my...
DeejLouise
Offline Send Email 		Aug 4, 2008
11:40 pm

Hey donna! i agree with others that the staff at the Jain Foundation are awesome. I originally had CPKs 10,000+ and muscle biopsies in the legs which showed...
xron922
Offline Send Email 		Aug 5, 2008
3:27 am

GREAT news! I have located a place to host a support group for Distal MD & LGMD! I will hold meetings at the Glendale Public Library in Glendale, AZ. The room...
John B
bluedestin
Offline Send Email 		Aug 5, 2008
11:08 pm

soooo sorry I live in Tucson.......... ... From: John B To: dysferlin@yahoogroups.com Sent: Tuesday, August 05, 2008 4:08 PM Subject: [dysferlin] Distal MD &...
Debra
dbd19512002
Offline Send Email 		Aug 7, 2008
4:08 pm

First support group meeting on 9/20/08, Saturday at 1:00pm - 2:30pm. Meeting will take place in Glendale Public Library's large meeting room. The purpose of...
John B
bluedestin
Offline Send Email 		Aug 14, 2008
9:20 am
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