I have LGMD2B, i was diagnosed about 4 years now (present age 21),
but lately the symptoms of the disease have become more and more
prominent and range from not being able to take the stairs to getting
up from a seated position. I am about 5'2'' and weigh 165lbs which is
about 40lbs heavier than when i was first diagnosed. The weight gain
came from being a bit depressed about the whole situation not only
because i realized i had a disease but because of the drastic changes
from having a very active lifestyle (runnning, soccer, any sport for
that matter) to not being able to walk very much which led to a
rather sedentary lifestyle. I have tried to get back to the gym but
when i do, i feel the soreness in my legs and i actually feel weaker
up to a week later. therefore i stop going because i am afraid that
the effects will be permanent and i will be yet another stage weaker.
However, i know that it is detrimental for my legs to be carrying
around all that weight so i NEED to loose it somehow, thus my
dilemma. I was wondering if anyone was going through a similar
situation, any tips, help, opinions, anything! Also, did anyone have
serious aching in their muscles as a child or presently? This usually
happens when the day and i are winding down and i am in bed ready to
sleep, but get disturbed by the aching to the point where i need to
get up and move a little (and i have a high pain threshold).

ps. if you've made it down to here, sorry for the life story but
thanks for reading and i would really appreciate any replies. Thanks!

- Miriam