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dysferlin · Dysferlin Deficiency
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Reply | Forward Message #340 of 592 |
I'm in love with a man who has dysferlin muscular dystrophy. He is 20
and told me he was diagnosed when he was 18. I tried to find something
on the web about it and came up blank except for this group. I need to
know as much as I can! he is always feeling sick, and has been in and
out of the emergency room. he has now been diagnosed with congestive
heart failure. I am into herbal remedies, and I know my mother when she
had congestive heart failure was taking CoQ 10, magnesium, and
hawthorn. Will this help him? What can I do? What can i expect?
Please...any information, no matter how grim, would be apreciated. No
matter what i love him and will take care of him as long as he needs me
to.




Tue Jun 10, 2008 6:55 pm

impkittee
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Message #340 of 592 |
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I'm in love with a man who has dysferlin muscular dystrophy. He is 20 and told me he was diagnosed when he was 18. I tried to find something on the web about...
Kat Hanson
impkittee
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Jun 11, 2008
3:19 am

Hi Kat, Thanks for writing. Generally the progression of dysferlin-deficient muscular dystrophy is fairly slow, and I'm not aware of any reports that it...
baw1064
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Jun 11, 2008
3:50 am
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