I was diagnosed at age 18 when I first started to notice signs of this disease.  I am 24 now.  I have Miyoshi Myopathy which is the other type associated with the loss of dysferlin protein.  My doctor prescribed creatine and CoQ10.  Check with your doctor to confirm if these treatments would be suitable.  My doctor also wanted me to do light aerobic exercise (pool being the best choice).  He said it might slow down the progression of my muscle weakness.  Again...I am a patient, go talk to a doctor.  I hope this helps.

iowasmith <iowasmith@...> wrote:

Can anyone please tell me if they have had any success in the treatment
of Limb-Girdle 2B. Does physical therapy help? Does a vitamen regime
help?

We are grasping to find help for our daughter who was recently
diagnosised.

Thank you

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