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dysferlin · Dysferlin Deficiency
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Reply | Forward Message #265 of 592 |
Can anyone please tell me if they have had any success in the treatment
of Limb-Girdle 2B. Does physical therapy help? Does a vitamen regime
help?

We are grasping to find help for our daughter who was recently
diagnosised.

Thank you
Thu Feb 28, 2008 5:51 am

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iowasmith
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Forward 		Message #265 of 592 |
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Can anyone please tell me if they have had any success in the treatment of Limb-Girdle 2B. Does physical therapy help? Does a vitamen regime help? We are... 		iowasmith
Offline Send Email 		Feb 29, 2008
1:18 am

I was diagnosed at age 18 when I first started to notice signs of this disease. I am 24 now. I have Miyoshi Myopathy which is the other type associated with...
John B
bluedestin
Offline Send Email 		Feb 29, 2008
9:58 pm

Thank you so much for replying. We first noticed a few signs when our daughter was 20 but they came so slow, then all of a sudden the symptoms worsened and she...
Karyl Smith
iowasmith
Offline Send Email 		Mar 1, 2008
10:50 pm

Unfortunately, I have a bad habbit of not following through on things...I haven't taken those two items long enough to really notice a difference. I should be...
John B
bluedestin
Offline Send Email 		Mar 3, 2008
1:53 pm
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