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dysferlin · Dysferlin Deficiency
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Just Wondering   Message List  
Reply | Forward Message #242 of 592 |
Re: Just Wondering

thats about how long i have had it and just last night i realized that
my right hand is getting weaker. How do those of you who has had this
longer then me deal with that kinda stuff?


--- In dysferlin@yahoogroups.com, "derek hill [select blinds]"
<bulldog1888@...> wrote:
>
> ive had it for 6 years now
>
>
> >From: "Brad" <bradt32233@...>
> >Reply-To: dysferlin@yahoogroups.com
> >To: dysferlin@yahoogroups.com
> >Subject: [dysferlin] Re: Just Wondering
> >Date: Thu, 24 May 2007 18:48:58 -0000
> >
> >I have Limb-Girdle muscular dystrophy and have never met anyone else
> >who has any kind of Dysferlin Deficiency.
> >
>
> _________________________________________________________________
> Play your part in making history - Email Britain!
> http://www.emailbritain.co.uk/
>





Sat May 26, 2007 4:57 pm

bradt32233
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Message #242 of 592 |
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I was just wondering how many people there are with this disorder. I know thats is rare but just how rare. I live in Jacksonville,Fl and have been living with...
bradt32233
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May 24, 2007
5:01 pm

... I have miyoshi myopathy and I think the incidence is around 1 in 400,000 or so. I have never met anyone else in person with the same disease, but i'd guess...
xron922
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May 24, 2007
6:16 pm

I have Limb-Girdle muscular dystrophy and have never met anyone else who has any kind of Dysferlin Deficiency....
Brad
bradt32233
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May 24, 2007
6:51 pm

ive had it for 6 years now ... _________________________________________________________________ Play your part in making history - Email Britain! ...
derek hill [select bl...
derekselectb...
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May 25, 2007
9:56 am

thats about how long i have had it and just last night i realized that my right hand is getting weaker. How do those of you who has had this longer then me...
Brad
bradt32233
Offline Send Email
May 26, 2007
4:58 pm
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