--- In dysferlin@yahoogroups.com, "bradt32233" <bradt32233@...> wrote:
>
> I was just wondering how many people there are with this disorder. I
> know thats is rare but just how rare. I live in Jacksonville,Fl and
> have been living with this now about 6 years. How many of you on here
> have had it longer then I have?
>


I have miyoshi myopathy and I think the incidence is around 1 in
400,000 or so. I have never met anyone else in person with the same
disease, but i'd guess that maybe around a few hundred people in the
United States may have it too. I was diagnosed about 16 years ago.