dysferlin : Message: Just Wondering

dysferlin · Dysferlin Deficiency

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Message #238 of 592 |

I was just wondering how many people there are with this disorder. I
know thats is rare but just how rare. I live in Jacksonville,Fl and
have been living with this now about 6 years. How many of you on here
have had it longer then I have?

Wed May 23, 2007 10:52 pm

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"bradt32233" <bradt32233@...>

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Message #238 of 592 |

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I was just wondering how many people there are with this disorder. I know thats is rare but just how rare. I live in Jacksonville,Fl and have been living with...	bradt32233	May 24, 2007 5:01 pm
... I have miyoshi myopathy and I think the incidence is around 1 in 400,000 or so. I have never met anyone else in person with the same disease, but i'd guess...	xron922	May 24, 2007 6:16 pm
I have Limb-Girdle muscular dystrophy and have never met anyone else who has any kind of Dysferlin Deficiency....	Brad bradt32233	May 24, 2007 6:51 pm
ive had it for 6 years now ... _________________________________________________________________ Play your part in making history - Email Britain! ...	derek hill [select bl... derekselectb...	May 25, 2007 9:56 am
thats about how long i have had it and just last night i realized that my right hand is getting weaker. How do those of you who has had this longer then me...	Brad bradt32233	May 26, 2007 4:58 pm

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