At the moment, yes, more or less. People do notice that I'm wonky,
have balance problems and lack strength, and obviously its getting
worse, but I find it helps to do what I can when I can. As I
understand it, age of onset and progression varies tremendously so
people have very varied experiences.

--- In dysferlin@yahoogroups.com, John B <bluedestin@...> wrote:
>
> Are you still able to walk normal? I need braces to walk somewhat
normal.
>
> Rebecca Read <rebeccajread@...> wrote: I have found gentle
exercise very helpful (esp. swimming). I have been
> surprised at how much I can do. I think the muscles that are ok are in
> better shape now and are helping to compensate for those that are
> struggling. Also a general good level of health and fitness makes
> anyone feel better I think. I feel that I have more energy now.
> Stretching exercises are also good - gentle yoga - helps me to feel
> more flexible and less stiff and achey. I've been given some
> physiotherapy exercises to do by the specialists which are beneficial
> definitely although I must admit I find it hard to motivate myself to
> do them as much as I should (they're a bit boring). The specialists
> have also sorted me out with some moulded insoles for my shoes which
> are helping my posture and balance, and I have found that wearing
> boots with ankle support (e.g. boxing boots) as opposed to just normal
> low cut shoes/trainers also makes a big difference. Hope that gives
> you some ideas :o)
>
> Best wishes and good luck,
> Bex.
>
> --- In dysferlin@yahoogroups.com, "derekselectblinds"
> <bulldog1888@> wrote:
> >
> > hi there my name is derek hill im from scotland ive had problems
since
> > i was 25 im now 35 is there anything you have tried that has been
> > helpful to you i,ve just been diagnosed with dysferlin at newcastle
> > hospital in england on tuesday and im a bit scared but life goes
on ..
> > i have 2 business,s aswell work all the tme so i havent had time over
> > the years to sit down and take a good look at the future ....if you
> > can help i would appreciate it god bless derek hill.. email
> > bulldog1888@
> >
>
>
>
>
>
>
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