Search the web
Sign In
New User? Sign Up
dysferlin · Dysferlin Deficiency
  • Members Only
  • Post
  • Files
  • Photos
  • Database
  • Polls
  • Members
  • Calendar
  • Promote
  • Groups Labs (Beta)
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Real people. Real stories. See how Yahoo! Groups impacts members worldwide.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

   Messages Help
Message #
Search:
Advanced
help   Message List  
Reply | Forward Message #226 of 592 |
hi there my name is derek hill im from scotland ive had problems since
i was 25 im now 35 is there anything you have tried that has been
helpful to you i,ve just been diagnosed with dysferlin at newcastle
hospital in england on tuesday and im a bit scared but life goes on ..
i have 2 business,s aswell work all the tme so i havent had time over
the years to sit down and take a good look at the future ....if you
can help i would appreciate it god bless derek hill.. email
bulldog1888@...
Sat Nov 25, 2006 5:52 pm

Show Message Option
derekselectb...
Offline Offline
Send Email Send Email

Forward 		Message #226 of 592 |
Expand Messages Author Sort by Date

hi there my name is derek hill im from scotland ive had problems since i was 25 im now 35 is there anything you have tried that has been helpful to you i,ve... 		derekselectblinds
derekselectb...
Offline Send Email 		Nov 25, 2006
10:34 pm

hi there my name is derek hill im from scotland ive had problems since i was 25 im now 35 is there anything you have tried that has been helpful to you i,ve...
derekselectblinds
derekselectb...
Offline Send Email 		Nov 29, 2006
11:35 pm

ya, i have noticed that if I have lack of sleep my muscles feel really weak in the morning. derekselectblinds <bulldog1888@...> wrote: hi...
John B
bluedestin
Offline Send Email 		Nov 30, 2006
8:15 am

I have found gentle exercise very helpful (esp. swimming). I have been surprised at how much I can do. I think the muscles that are ok are in better shape now...
Rebecca Read
rebeccajread
Offline Send Email 		Nov 30, 2006
10:16 am

Are you still able to walk normal? I need braces to walk somewhat normal. Rebecca Read <rebeccajread@...> wrote: I have found gentle exercise...
John B
bluedestin
Offline Send Email 		Dec 1, 2006
4:44 pm

At the moment, yes, more or less. People do notice that I'm wonky, have balance problems and lack strength, and obviously its getting worse, but I find it...
Rebecca Read
rebeccajread
Offline Send Email 		Dec 1, 2006
5:07 pm

Walking has become difficult for me. I use toe-off braces now to walk better. I like swimming as an exercise but it is very hard for me to get out of the...
John B
bluedestin
Offline Send Email 		Dec 2, 2006
9:12 pm

Hi Bex and others, I think we are all in different stages and we are all trying to get the right answers what to do and what is good and what isn't, but I ...
ellynoordover
Offline Send Email 		Dec 4, 2006
12:07 am

Hello Ellynoordover, The toe-up bracers are also known as toe-off bracers. I could get more info if you would like. They are very helpful. Also, I try and...
John B
bluedestin
Offline Send Email 		Dec 5, 2006
6:53 am
< Prev Topic  |  Next Topic >
Message #
Search:
Advanced
Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help