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dysferlin · Dysferlin Deficiency
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Reply | Forward Message #21 of 592 |
New Member

Just wanted to say Hi to everyone here.

I'm not sure yet but we are testing for LGMD Type2B. I've had a
diagnosis of Polymyositis since 1997 and saw a specialist at Stanford
University who thinks I may have MD.

This board seems quiet. Hopefully it will pick up again soon.

Regards,
BillG
Camarillo, CA
36 y.o.
Thu Jan 10, 2002 11:51 pm

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dad4dogs33
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Forward 		Message #21 of 592 |
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Hi! I have been diagnosed with LGMD and live in Spain.I haven't a definitive diagnosis.I would be happy to share with you information. I've read about... 		ew12366@...
Send Email 		May 28, 2001
11:06 pm

Just wanted to say Hi to everyone here. I'm not sure yet but we are testing for LGMD Type2B. I've had a diagnosis of Polymyositis since 1997 and saw a...
dad4dogs33
Offline Send Email 		Jan 10, 2002
11:51 pm

Welcome to the group, BillG. I appreciate how frustrating it must be awaiting a diagnosis--it certainly was for me. From what I've read and also heard from...
baw1064
Offline Send Email 		Jan 14, 2002
4:48 am

Hi.......Just got this link from the Jain Foundation. Have enjoyed reading your postings. I was diagnosed 20 some years ago with Limb-girdle when they weren't...
dbd19512002
Offline Send Email 		May 20, 2008
2:01 pm

Hey! welcome and thanks for posting. Always great to have new members here! ron...
xron922
Offline Send Email 		May 20, 2008
3:52 pm

No doubt -- to your point about exercise. It is good for the body. I would also say that good nutrition is vital. I'm talking about almost completely doing...
Dubya Smith
smith.dubya
Offline Send Email 		Jun 3, 2008
2:43 pm

organic foods sound healthy but they are usually more expensive too. lol...
xron922
Offline Send Email 		Jun 5, 2008
4:29 am
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