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Jain Foundation   Message List  
Reply | Forward Message #215 of 592 |
RE: [dysferlin] Jain Foundation

I"m very excited to hear about this!!!  It makes me extremely happy = D

ron chao <ronchao1@...> wrote:
that's fantastic news. I just registered at the site. thanks and keep in
touch!

Ron
Ron Chao, M.D.

>From: "plavijain" <plavijain@yahoo.com>
>Reply-To: dysferlin@yahoogroups.com
>To: dysferlin@yahoogroups.com
>Subject: [dysferlin] Jain Foundation
>Date: Fri, 06 Oct 2006 17:08:24 -0000
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>Mailing-List: list dysferlin@yahoogroups.com; contact
>dysferlin-owner@yahoogroups.com
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>
>This message if for those members that are suffereing from dysferlin
>deficiency and have been diagnosed with Miyoshi or LGMD2B
>
>I run a family foundation that is focused on dysferlin deficiency. We
>fund research in several labs currently. The foundation is a year old
>and we just established a website for it.
>
>As far as we know, ours is the only foundation that focuses only on
>dysferlin deficiency.
>
>Please go to our website for additional information.
>
>Our website address is
>www.jain-foundation.org
>
>Thanks
>
>
>
>
>



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Thu Oct 12, 2006 6:20 am

bluedestin
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Forward
Message #215 of 592 |
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This message if for those members that are suffereing from dysferlin deficiency and have been diagnosed with Miyoshi or LGMD2B I run a family foundation that...
plavijain
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Oct 10, 2006
8:22 pm

I"m very excited to hear about this!!! It makes me extremely happy = D ron chao <ronchao1@...> wrote: that's fantastic news. I just...
John B
bluedestin
Offline Send Email
Oct 12, 2006
6:29 am

I need to put the word out to anyone who has not yet registered with the Jain Foundation. I spoke with Plavi Mittal, PhD for quite awhile today, she is a...
amglo1
Offline Send Email
Oct 13, 2006
5:32 pm

Hi everyone, Let me add my words of encouragement to all patients to contact Plavi. I have known Plavi for several years, and we have exchanged information on...
baw1064
Offline Send Email
Oct 13, 2006
5:57 pm
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