This message if for those members that are suffereing from dysferlin
deficiency and have been diagnosed with Miyoshi or LGMD2B
I run a family foundation that is focused on dysferlin deficiency. We
fund research in several labs currently. The foundation is a year old
and we just established a website for it.
As far as we know, ours is the only foundation that focuses only on
dysferlin deficiency.
Please go to our website for additional information.
Our website address is
www.jain-foundation.org
Thanks