Hello, Donna,

My suggestion would be to ask for a blood test to check for the most
recent types of genetic mutations, or however you may want to put it.
I was diagnosed using blood tests (originally misdiagnosed with a
biopsy) so I would suggest that.

However, if your MD clinic isn't up to speed on things, you may have
to do some of the homework yourself and don't be surprised if the
doctor isn't too impressed with your self-diagnosis. After all, they
did go to school and are much more capable than us lowly MD patients
(I can't find the sarcasm button on the keyboard). :)

Anyway, that's my two cents.

Phil