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dysferlin · Dysferlin Deficiency
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Reply | Forward Message #202 of 592 |
Hi

My name is Donna. I'm a 37 year old mother of 2 teens and a
grandmother to one beautiful 2 year old little princess. I was
diagnosed with LGMD at the age of 17 but never even knew until
recently that there were different types. What is the best way to go
about finding out which I have? I live in southeast Missouri and go
to the nearest MD clinic, but apparently they don't know too much
either or I'd have heard about this long before now. Any info you can
give me will be great....

Thanks and glad to meet you all!
Tue Jul 11, 2006 2:15 am

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kallysmama
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Forward 		Message #202 of 592 |
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Hi, I'm so glad this group exists, given that this thing is so rare, it's the last thing I expected to find but I'm so glad I did. Thank you to everyone who... 		rebeccajread
Offline Send Email 		Jun 16, 2006
2:11 pm

Hello again Ron, And thanks again. That's really interesting and it's put my mind at rest. Also don't feel so alone, all good! Thanks, Bex....
rebeccajread
Offline Send Email 		Jun 19, 2006
10:08 am

Hi Bex Glad to hear there's someone else in the UK with the same kind of disease (in the nicest possible way!). I think you must be the first person I've heard...
Suzanne Croft
craftycroftyuk
Offline Send Email 		Jun 20, 2006
10:25 am

My name is Donna. I'm a 37 year old mother of 2 teens and a grandmother to one beautiful 2 year old little princess. I was diagnosed with LGMD at the age of...
kallysmama
Offline Send Email 		Jul 11, 2006
4:27 am

Hello, Donna, My suggestion would be to ask for a blood test to check for the most recent types of genetic mutations, or however you may want to put it. I was...
biscuitsmom30
Offline Send Email 		Jul 11, 2006
12:22 pm
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