Glad to have you join the group. I have Miyoshi also, and had
symptoms beginning at 18. I'm 43 now, and have used a wheelchari
for the last 4 years. Like you, I found that not constantly having
to worry about falling was a big incentive to be willing to leave
the house.

I'm sure there are several other members who will also be happy to
share their stories. Please ask any questions you may have.

Brad

--- In dysferlin@yahoogroups.com, "biscuitsmom30" <soonerpgh@...>
wrote:
>
> I was just diagnosed yesterday with Miyoshi Myopathy. I was
> originally diagnosed with LGMD when I was 18 (started having
symptoms
> at 15). They were able to diagnose me with Miyoshi after a blood
> test. I am 34 now and I have been using an electric wheelchair
for
> the past year. After a series of terrible falls, I decided that a
> wheelchair didn't sound so bad after all. It turned out to be a
good
> decision for me. I can now go places with my family and enjoy
their
> company instead of huffing and puffing and worrying about falling
the
> whole time. My legs are basically gone at this point and my arms
are
> weak, especially my biceps. I am married with 4 kids. Two boys
and
> two girls. I'm new to this disorder so any information is
appreciated.
> Thanks,
> Philip
>